Chelle/ Missed Diagnosis for 16 YEARS....Localized Vestibulitis - Janet

April 9, 2008

Chelle, I always mix the two together - every night, sometimes I

add emu oil too. I hope it works for you. It deadens the area a little for me,

but it is no permanent cure, and lasts only a few hours, that is why I am

having the injections. I have a very sore spot at the entrance to the vagina –

one of the areas’s which they did yesterday. I didn’t find it too

bad – better than what I expected, but then again I took my med cocktail

right before hand – a pain pill and valium.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Chelle

Sent: Tuesday, April 08, 2008 4:36 PM

Subject: Re: Missed Diagnosis for 16 YEARS....Localized

Vestibulitis - Janet

Janet,

I've tried the 5% Lidocaine in the past...I could never get

past 3-4 nights of it, because it always 'upped' the vulvar irritation in that

area. So...I'm gonna try the compounded form to see if I can tolerate it.

Libby and Marrise (her Nurse) encouraged me to mix Estrace with it to help keep

down irritation too.

I am all mixed up with emotions. Happy that I finally

KNOW...so angry and sad that it has been missed for so many years. Oh the

stories I could tell! I have had painful sex since my honeymoon

night. I went through 13 yrs. of pure hell, until I begged my uro/gyn to

allow me to try bio-identical hormones. Estrace cream has helped my skin

so much! It has allowed me to have painfree sex for the last 3 yrs.

I still cannot wear blue jeans though. That is my goal! To be

completely painfree and be able to wear jeans again. Thanks for your kind

words...

Hugs, Chelle

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