Re: Sub Re to: Horrible Words

[Guest guest]

echobabe, do you suffer from Chronic fatigue syndrome. I have studied a bit

about this and would be interested in knowing if you have had any success in

treating it. I know you just said no in your email, but has anything helped.

Does lack of contact with BP help? Research is saying that it is caused by an

overloaded autonomic nervous system that just stops working. So the body's

stress is routed into the central nervous system instead, which is very painful.

My BP mother has it too. She has tried everything but psychotherapy. Cranial

Sacral Massage therapy is the only thing that works for her. She is addicted to

her CSM therapist and has to see him at least twice a month (expensive you

bet!).

Research says that 12 months of regular CBT psychotherapy gets the best results,

but she just will not do it. She would rather stay addicted to her CSM

therapist, who treats only the symptoms. At least she has something that works.

Research suggests that it is genetic, so I am afraid I might get it if I do not

keep my stress levels down. I take anxiety meds to help.

> >

> > Having limited contact with nada was literally making me ill; I'm not sure

you understood that part. I'm talking high blood pressure and debilitating

Meniere's disease-like symptoms after simply hearing nada's voice on the phone.

> >

>

[Guest guest]

re: chronic fatigue. About 20 years ago I developed severe immune responses to

both environmental and food allergies. This following months of antibiotic use

during pregnancy. Then I suffered chronic fatigue for about 5 years, before

finding a competent Dr who helped me build back my health and kick most of the

allergies (as well as most of the meds I was taking--including steroids). Even

though I no longer have chronic fatigue, my energy 'reserves' are next to

non-existent. This is just one of the 'perks' after complete adrenal

exhaustion-- easily riding the edge of the drain. But it's a lot better than how

I felt with the CF, when I could barely get out of bed every day.

CF treatment included b-12 shots, vitamin shakes, dhea, sleep, vitamin IV

cocktails, bovine adrenal supplements. I weaned off the steroids. I learned to

control yeast overgrowth (hit and miss--best info:

www.healingnaturallybybee.com; Tanalbit supplements) I cleared up my leaky gut

(again, hit and miss, final method that worked: www.scdiet.org). Yes, over time

it all helped. NAET cleared up most of my allergies. It took years, a lot of

stumbling back and forth. No one method/Dr had all the answers.

If you have any other magic bullets to suggest that I haven't tried, do share. I

have an open mind, and that is probably the only reason I am still alive.

> > >

> > > Having limited contact with nada was literally making me ill; I'm not

sure you understood that part. I'm talking high blood pressure and debilitating

Meniere's disease-like symptoms after simply hearing nada's voice on the phone.

> > >

> >

>

[Guest guest]

One more clarification I should make. My chronic fatigue never included

fibromyalgia--is that what you are saying your mother experiences?

And yes, any experience that causes my adrenaline to rush can provoke a brush

with exhaustion--getting angry, receiving an unexpected bill, worrying, over

exercising, even riding roller coasters! I have to be very cued in to how I am

feeling and pamper myself for a few days after an event. Nada uproar certainly

qualifies.

And I hate talking about this, because it makes me feel helpless and pathetic,

and I have been fighting this for so long now. I just want to be done! Perhaps

that is the lesson for me.

> > >

> > > Having limited contact with nada was literally making me ill; I'm not

sure you understood that part. I'm talking high blood pressure and debilitating

Meniere's disease-like symptoms after simply hearing nada's voice on the phone.

> > >

> >

>

[Guest guest]

Echo, you might find this website interesting: http://askwaltstollmd.com/ .

I've found it to be a treasure trove of alternative medical information.

>

> One more clarification I should make. My chronic fatigue never included

fibromyalgia--is that what you are saying your mother experiences?

>

> And yes, any experience that causes my adrenaline to rush can provoke a brush

with exhaustion--getting angry, receiving an unexpected bill, worrying, over

exercising, even riding roller coasters! I have to be very cued in to how I am

feeling and pamper myself for a few days after an event. Nada uproar certainly

qualifies.

>

> And I hate talking about this, because it makes me feel helpless and pathetic,

and I have been fighting this for so long now. I just want to be done! Perhaps

that is the lesson for me.

>

[Guest guest]

Thanks for posting--Dr. Stoll's advice was used early on in my yeast treatment.

Bee's info took that advice to the next, sustainable level.

> >

> > One more clarification I should make. My chronic fatigue never included

fibromyalgia--is that what you are saying your mother experiences?

> >

> > And yes, any experience that causes my adrenaline to rush can provoke a

brush with exhaustion--getting angry, receiving an unexpected bill, worrying,

over exercising, even riding roller coasters! I have to be very cued in to how I

am feeling and pamper myself for a few days after an event. Nada uproar

certainly qualifies.

> >

> > And I hate talking about this, because it makes me feel helpless and

pathetic, and I have been fighting this for so long now. I just want to be done!

Perhaps that is the lesson for me.

> >

>

[Guest guest]

I thank you for sharing. I have been worried that my autonomic nervous system

has been severely weakened by the years of constant stress (PTSD). I yawn all

day long and I have to take a nap right after work, because I am exhausted. On

days that I don't work, I want to sleep all day. Everyone thinks it is

depression, but I do not feel depressed anymore. I did psychotherapy for 4

years and I think my depression is mostly gone, but my anxiety levels are still

high. I do not feel pain, just exhaustion.

Does any of this sound familiar. If so, maybe I should try some of the remedies

that worked for you.

> > > >

> > > > Having limited contact with nada was literally making me ill; I'm not

sure you understood that part. I'm talking high blood pressure and debilitating

Meniere's disease-like symptoms after simply hearing nada's voice on the phone.

> > > >

> > >

> >

>

[Guest guest]

I don't think we will ever be done, but isn't that the wonderful thing about

life. I used to resent having to go to therapy and kept asking how much longer

this was going to take. Then I realized I was missing the point. If I have to

be in therapy for the rest of my life, what was so wrong with that?

My mom was once in therapy regularly for 2 years and I remember how happy she

was back then. I remember once we went to go see a movie with her and her

husband. After the movie she went to the ladies room. When she came out, she

had a long piece of toilet paper hanging out of her pants. We tried to tell

her, but she just didn't get it. Then she broke out laughing; she did it on

purpose as a joke. She made us all laugh so hard it hurt.

Then she decided she didn't need therapy anymore, so she quit going. That was a

long time ago. It took less than two years for her to relapse completely. Now

here we are; NC. She refuses to go back, even though many people have asked her

to. Shortly before I went NC with her, she gave in to going to a couples

counselor with her husband. My mother told the counselor she was there to

support her husband. The counselor looked her straight in the eye and said that

her anger was raging and she needed to take responsibility for her anger. She

never went back.

I never want to be like my mother. If that means being in therapy for the rest

of my life, so be it. I never want to relapse and let my loved ones down like

that. I am having to take a break right now, because of insurance issues, but

as soon as the opportunity arises, I will jump right back on the wagon.

Eventually I will get to a place where therapy will be one a month the check in,

more if needed. That is not so bad for happiness and joy.

> > > >

> > > > Having limited contact with nada was literally making me ill; I'm not

sure you understood that part. I'm talking high blood pressure and debilitating

Meniere's disease-like symptoms after simply hearing nada's voice on the phone.

> > > >

> > >

> >

>

[Guest guest]

When I was a the worst point of chronic fatigue, waking up in the morning was

only possible with help. I was able to take my children to daycare, go off to

work, come home and collapse. I spent most of my time off at home in bed. I had

no energy. My husband did everything else. I felt shiftless and lazy, I did not

realize I had a medical condition until much later. Some days I would feel

energized enough to take on a project, but just the planning of it would wear me

out, and it would remain undone.

This is a horrible way to feel. If you are experiencing this, you should find a

competent physician who can help you to recover. And be aware that things like

caffeine, sugar and alcohol just make this condition worse (although at the time

of use, they make one feel better by masking the problem).

>

> I thank you for sharing. I have been worried that my autonomic nervous system

has been severely weakened by the years of constant stress (PTSD). I yawn all

day long and I have to take a nap right after work, because I am exhausted. On

days that I don't work, I want to sleep all day. Everyone thinks it is

depression, but I do not feel depressed anymore. I did psychotherapy for 4

years and I think my depression is mostly gone, but my anxiety levels are still

high. I do not feel pain, just exhaustion.

>

> Does any of this sound familiar. If so, maybe I should try some of the

remedies that worked for you.

>

[Guest guest]

echobabe, thank you so much for everything you have shared. After reading all

your posts about chronic fatigue, I am convinced that I must talk to my doctor

about it right away. I am printing all these emails for reference. Thank you

> >

> > I thank you for sharing. I have been worried that my autonomic nervous

system has been severely weakened by the years of constant stress (PTSD). I

yawn all day long and I have to take a nap right after work, because I am

exhausted. On days that I don't work, I want to sleep all day. Everyone thinks

it is depression, but I do not feel depressed anymore. I did psychotherapy for

4 years and I think my depression is mostly gone, but my anxiety levels are

still high. I do not feel pain, just exhaustion.

> >

> > Does any of this sound familiar. If so, maybe I should try some of the

remedies that worked for you.

> >

>

[Guest guest]

Glad to help-- & hope you feel better soon. Contact me anytime via email if you

want re CF issues. I don't wish this condition on anyone--not even my nada. The

goal is to getting strong enough to get through the day, and not sliding

backward.

I apologize if I let you down the first time you brought this up. I really HATE

that this is a life issue I still have to be aware of, and tend to run away from

discussing it every chance I get. I promise I will not do so again :-)

> > >

> > > I thank you for sharing. I have been worried that my autonomic nervous

system has been severely weakened by the years of constant stress (PTSD). I

yawn all day long and I have to take a nap right after work, because I am

exhausted. On days that I don't work, I want to sleep all day. Everyone thinks

it is depression, but I do not feel depressed anymore. I did psychotherapy for

4 years and I think my depression is mostly gone, but my anxiety levels are

still high. I do not feel pain, just exhaustion.

> > >

> > > Does any of this sound familiar. If so, maybe I should try some of the

remedies that worked for you.

> > >

> >

>

[Guest guest]

Hi there -

Questions before suggestions as I don't want to recommend things you've

already ruled out. Have hope! My experiences in batting the same dragon lead me

to think you likely have more options.

+Have you been diagnosed with/treated for PTSD? If so, what sort of treatments

have you tried?

+Do you have food allergies? If so, to what?

+Have you ever done any cranial-sacral therapy, qi gong, or other bodywork? If

so, which (if any) did you respond to?

+In terms of adrenals (I've been there, and do that) - what sort of

supplements/medicines have you tried, and for how long?

Truly, book after book I've read on neuroplasticity plus my own experiences -

with a BPD mom, PTSD, assorted physical aliments, and having recovered from

having been struck by a car as a pedestrian - have convinced me that, given

time, patience, and effort, any condition can be improved upon.

I'm sorry you're having such a rough time of it. Hang in there!

> >

> > Having limited contact with nada was literally making me ill; I'm not sure

you understood that part. I'm talking high blood pressure and debilitating

Meniere's disease-like symptoms after simply hearing nada's voice on the phone.

> >

>