Guest guest Posted December 26, 2011 Report Share Posted December 26, 2011 Tammy, Your words have been heavy on my heart and I've been thinking over and over and all I keep coming up with is manual therapies. Have you tried Cranio Sacral Therapy yet? It was a life saver for us. Also, we had significant success with NAET. Both made Mia significantly less reactive. CST helps to flush the craniosacral system, which includes the pineal gland. Practitioners relate that this helps take toxins out of the brain. For Mia, it took away a lot of general tactile sensitivity and just overall pain and tension. Her shoulder/neck muscles relaxed for the first time in her life. She also had very tight kidneys, which meant her adrenals weren't moving the miniscule amount they are supposed to regularly move as you walk or jump, and were not circulating their fluid properly. This contributed to her being stuck in fight or flight mode with an inflexible and hyperactive adrenal response. Mia had significant cognitive gains after CST and was more responsive to her other supplements. Things started working that hadn't before. CST requires the child to lay down for a long time and essentially be 'bored'. This was a challenge for our sensory-seeking, frankly completely jacked up at the time Mia. We took in play puddy that she could work with her hands and I laid with her for the first session. The great thing is, though, once the practitioner gets about 5 minutes in, the effect of CST hits strongly and everything calms down. Mia fell asleep every time. I timed the therapies for nap time to help this out. For the first few therapies, she was VERY disoriented coming out and could not cope with transitions/choices/options very well. So I realized we had to essentially go home right away. For us this meant a nice 30 minute drive on a pretty deserted road between the town our therapist was in and our town. We had driven this road probably a hundred times over the 4 years we lived there. It is interesting, after Mia's third or fourth session, we started the drive home. She was really spacey and disoriented. But she was communicative. She pointed out the window at a resorvoir, one we had not only driven by those hundred or so times, but also one we had ridden our bikes around countless times too. And she said 'Oh, there's a lake. Where are we mommy?'. She made a couple of other comments like this on our way home. She had NO IDEA where we were. It was after this session that she started really enjoying going and also the gains started to really grow. Looking back I remember walking into the first CST session literally shaking in fear, life was so hard and we had tried so much. Please, God, let something work I begged. Our misery and pain started dissolving after this. It was a miracle. NAET was VERY big for us too. It requires less sitting still. We found a practitioner that was covered by insurance (a Dr. of Osteopathy that also does great osteopathic adjustments), and does the newer form of NAET with a- I think UV laser or something? Anyway, it is a little electronic device. He tests the body's response to an allergen by holding his hands on your head, feeling for the response (the allergen is held in a vial by mom, holding the child, or child alone), and then if there is a response, he clears it with the electronic device. Our NAET therapist continually joked that he had no idea why this works, and that it defied any logic he could come up with. But that he repeatedly saw it change people's lives and so he has worked and worked to develop and learn it. He was introduced to it by a patient who had a severe egg allergy (with anaphylaxis). She told him of her success with the therapy and he didn't believe her. So she came into his office with a plate of eggs and ate them. We found NAET life changing in terms of lessening reactivity. The things we can do now compared to before NAET are truly unbelievable to me. This therapy and CST opened my heart and eyes to the irrepressable reality that there are things modern medicine just does not understand about the workings of the body- and that miracles can happen in healing the body if we only find the right, qualified, caring, dedicated therapists and practitioners. CST can also be covered by insurance when done by physical therapists, and we found our WONDERFUL therapist through the behavioral health program at our local hospital. But now that we are in Portland, we can find CST'sts for hourly rates at about the same as insurance, and I wonder if this is the case in some other places also. I send you and your son all of my prayers today and hopes for a turning point soon. One last note- this is a even a little 'further out', but we have found great success with deeksha- oneness blessings. This is I believe similar to Reiki- I am not educated on it all, but essentially we have found that this energetic work of essentially opening the heart to the love of say God or the Universe or the Earth, or your love for yourself or your son, or whatever you may want to call it, and directing that energy towards yourself and your son, can work wonders on the subtle energy fields of the body. I mention this because you can look at Yahoo or Google or Meet Up groups for Reiki or Deeksha in your area and they are FREE. It is FREE therapy. In the groups you may be likely to meet alternative practitioners also that can help with the manual therapies. I hesitate to share this because it opens up many cans of worms- people don't believe it, etc. But we came to this type of world after exhausting all of our own attempts to understand and address Mia's underlying issues and it has been supportive to us all and continues to unlock doors. We have had significant 'faith healing' (or 'energy healing', and in my scientific opinion, something beautiful that is at work that can be explained in scientific language, were science to let go it's belief that it's ability to define things makes it somehow larger than and in control of them) experiences move our life and choices in recent months. And I am humbled by them. For us this has been a path to prayer and belief that I needed to open up to the possiblity of miracles in our lives, and a fluid and reflexive and direct relationship with that greater oneness from which they come. > > oh tammy....i am so sorry....please dont be sad > i will give some ideas...what keeps kids in my opinion a lot of times...un responsive to supps or bad reactions to supps are mercury toxicicty....have you done any chelation?  i know im always pushing AC chelation but heard so much sucess with it....ive had so much sucess with it. > have you done a food allergy test? what diet is he on? if he is eating food that keeps his body in constant inflammation that is other cause of trouble with supps... > then there is parasites... > my heart breaks for you....and i will keep coming out with ideas as long as you will put up with them... > or tell channa to shut up...sometimes i have a big mouth. > you and your son are in my prayers tonight....all my love to you and your son. > channa > > > ________________________________ > > To: mb12valtrex > Sent: Sunday, December 25, 2011 9:16 PM > Subject: Re: copper sebecate > > >  > Not usually either one.But with our thread I tried the copper and molyb. but my son got angry and hyper(he is sensitive to all things I just keep trying).I have tried naturals and unaturals my sons entire life and get the same reaction.He is 12 now and I am extremely discouragedHe is defficient in multiple vits and minerals.Has lyme and co infections but can't treat as he has continuous sickness from meds.The docs always say its die off then months and years later he is still sick.They are stumped.Its got to be something geneticaly I am missing.I did the genomic testing for detoxing and just did the 23 and me genetic testing,thanks to others advice.I still have 6 wks to wait for results.He looks like he may die every day.I don't know how his little body takes.He has lost his childhood to misery .I hope and pray everyday that an answer turns up.Its so cruel and sad to see .I have thought Dr.Klinghardt may have new thoughts (although i have already tried > lots of his stuff with other docs).Or yasko,but my son can't handle all those or can he?Or maybe Dr.Rossignol may be our answer or the emergency room visits.I have taken him from state to state to doctors.Valtrex is the only thing I have ever found that has any kind of positive results.But he still is sick daily.It Changes daily.I am now wondering about stem cells.We havehad many years without a real Christmas,but I can never say stop.Too bad God doesn't take the ones that need relief I am very sad this year.Sorry channa ,your question was a loaded one as you see.I am sorry to do this to this wonderfull group.I know everyone has their own missery. Thanks for all of you,I thank God everyday for alllll of you.Tammy F. > > > > >  > >well....i am not sure but it states in the article with the exception of wilsons disease.... > >do you supplement with molybedenum tammy? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2011 Report Share Posted December 27, 2011 Tammy,when you said genetic test for detox, are you referring to the HLA test, to see if trouble detoxing Lyme and mold neurotoxins? Trouble recovering from Lyme and company usually means looking at mold and KPU- God bless- > > > > oh tammy....i am so sorry....please dont be sad > > i will give some ideas...what keeps kids in my opinion a lot of times...un responsive to supps or bad reactions to supps are mercury toxicicty....have you done any chelation?  i know im always pushing AC chelation but heard so much sucess with it....ive had so much sucess with it. > > have you done a food allergy test? what diet is he on? if he is eating food that keeps his body in constant inflammation that is other cause of trouble with supps... > > then there is parasites... > > my heart breaks for you....and i will keep coming out with ideas as long as you will put up with them... > > or tell channa to shut up...sometimes i have a big mouth. > > you and your son are in my prayers tonight....all my love to you and your son. > > channa > > > > > > ________________________________ > > From: Tammy <stoplyme@> > > To: mb12valtrex > > Sent: Sunday, December 25, 2011 9:16 PM > > Subject: Re: copper sebecate > > > > > >  > > Not usually either one.But with our thread I tried the copper and molyb. but my son got angry and hyper(he is sensitive to all things I just keep trying).I have tried naturals and unaturals my sons entire life and get the same reaction.He is 12 now and I am extremely discouragedHe is defficient in multiple vits and minerals.Has lyme and co infections but can't treat as he has continuous sickness from meds.The docs always say its die off then months and years later he is still sick.They are stumped.Its got to be something geneticaly I am missing.I did the genomic testing for detoxing and just did the 23 and me genetic testing,thanks to others advice.I still have 6 wks to wait for results.He looks like he may die every day.I don't know how his little body takes.He has lost his childhood to misery .I hope and pray everyday that an answer turns up.Its so cruel and sad to see .I have thought Dr.Klinghardt may have new thoughts (although i have already tried > > lots of his stuff with other docs).Or yasko,but my son can't handle all those or can he?Or maybe Dr.Rossignol may be our answer or the emergency room visits.I have taken him from state to state to doctors.Valtrex is the only thing I have ever found that has any kind of positive results.But he still is sick daily.It Changes daily.I am now wondering about stem cells.We havehad many years without a real Christmas,but I can never say stop.Too bad God doesn't take the ones that need relief I am very sad this year.Sorry channa ,your question was a loaded one as you see.I am sorry to do this to this wonderfull group.I know everyone has their own missery. Thanks for all of you,I thank God everyday for alllll of you.Tammy F. > > > > > > > > > >  > > >well....i am not sure but it states in the article with the exception of wilsons disease.... > > >do you supplement with molybedenum tammy? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2011 Report Share Posted December 27, 2011 Hi Tonie Marie,I haven't done the Yasko yet.I heard some contradictory things from Klinghardts last presentation.But Im not sure I understand whether its an issue to be concerned about and to throw away the idea of using her stuff.I do love the idea of her.I am so glad to hear your child can take the methl B12 now.Has there been other things.It sounds like you may be in the beginning stages of her protocal?Did you purchase all her books?Or do you find you need them? I have done the" 23 and me" last week and have done the ,Genova Diagnostics Detox panel.But no one has been able to do anything with them.The Genova test results have a few supplement ideas but no good experience using what is called for.Maybe I should buy Yaskos books and see what I have and haven't already done?I have found her website to be very confusing.Do you? I really appreciate your experience and opinion .Thank you so much,Tammy F. Tammy, Have you done the Yasko testing? We are only on 4 Yasko combination supps. They are the regular multi, the MTR/MTRR, Ultimate B and CBS/NOS. Well, they haven't taken the CBS/NOS this week. These are not the RNA drops. The MTR has been great for my son, the first b12 that hasnt made him nutso. On Sun, Dec 25, 2011 at 9:16 PM, Tammy wrote: Not usually either one.But with our thread I tried the copper and molyb. but my son got angry and hyper(he is sensitive to all things I just keep trying).I have tried naturals and unaturals my sons entire life and get the same reaction.He is 12 now and I am extremely discouragedHe is defficient in multiple vits and minerals.Has lyme and co infections but can't treat as he has continuous sickness from meds.The docs always say its die off then months and years later he is still sick.They are stumped.Its got to be something geneticaly I am missing.I did the genomic testing for detoxing and just did the 23 and me genetic testing,thanks to others advice.I still have 6 wks to wait for results.He looks like he may die every day.I don't know how his little body takes.He has lost his childhood to misery .I hope and pray everyday that an answer turns up.Its so cruel and sad to see .I have thought Dr.Klinghardt may have new thoughts (although i have already tried lots of his stuff with other docs).Or yasko,but my son can't handle all those or can he?Or maybe Dr.Rossignol may be our answer or the emergency room visits.I have taken him from state to state to doctors.Valtrex is the only thing I have ever found that has any kind of positive results.But he still is sick daily.It Changes daily.I am now wondering about stem cells.We havehad many years without a real Christmas,but I can never say stop.Too bad God doesn't take the ones that need relief I am very sad this year.Sorry channa ,your question was a loaded one as you see.I am sorry to do this to this wonderfull group.I know everyone has their own missery. Thanks for all of you,I thank God everyday for alllll of you.Tammy F. well....i am not sure but it states in the article with the exception of wilsons disease.... do you supplement with molybedenum tammy? R.J. Sorenson at the University of Arkansas has done most of the pioneering research work on copper complexes. In one of his publications he states that with the exception of 's disease, there are no chronic degenerative diseases in man known to result from non-industrial exposure to copper. Copper salicylate has a stronger anti-inflammatory effect than cortisone but without the side effects. From: Tammy To: mb12valtrex Sent: Sunday, December 25, 2011 1:59 PM Subject: Re: copper sebecate This sure seems like a great article,if I could wrap my head around it.Can anyone descifer whether my son who has wilsons syndrome (among other things) should or should not take copper suppliments???? Thank you for any input,Tammy F. http://health-science-spirit.com/copper.html ?? On Tue, Nov 29, 2011 at 11:10 PM, Channa Brennon wrote: i wasnt able to open the link you put up... im so pissed i didnt save article...I will see if i can look it up some how again...but that makes sense about having the right form of copper..I was givin my son about 8mg of copper with great results....when i get my copper on thursday im goin to do the same maybe go higher and see if it will work on my migraines like the excedrin does...if the thoery is correct it should help me as well. channa To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 10:49 PM Subject: Re: copper sebecate I just came across this at a website that Discusses Klinghardt's protocol for kpu: ANOTHER SCHOOL OF THOUGHT High toxic copper may indicate the child is copper deficient. Not having the right form of copper may cause individuals to hold on to un-usable toxic copper. When zinc will not drive down the copper, suspect this as the possible reason. In this case you may choose to give the child the correct form and size of copper in small amounts each night and within several months the toxic copper levels may fall.” -Jim from WHM.com Could this be what you were talking about? From: Channa Brennon To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 7:57 PM Subject: copper sebecate oh crap. i am sorry..I thought I kept article..I wiz thru so many things...sometimes i think i kept when i didnt. with all the crap I am goin thru i am even more absent minded bout stuff.. basically the article said copper is to qiute inflammation...zinc is to speed up the immune system....so if you are dealing with an overactive immune system AKA too much inflammation you body is goin to dump all reserves into blood stream trying to bring down all that inflammation...thats why you see such high copper in our kids.. I knew i was on to smething when one of the other moms from diffrent group said her kids hair was turning grey..and that is a sign of copper defieciency..in that other group the motto was zinc zinc and more zinc..so no one would listen to me. sigh. how can i go up against the almighty DAM docters. anyways....I stumbled apon copper cuz my son had signs of hyperthyriodism copper is used to treat this.. my son became so calm and happy when i gave it to him...I backed of thinking maybe the docters were right and I was wrong about the copper theory. but I just ordered some more copper sebacate....for my son and my own migraines from hell. I dont swear by anything but this is what I have used and found to work for me. channa From: T Lynn To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 5:09 PM Subject: Re: cactus juice/antiinflammatory would love to see that! To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 5:06 PM Subject: Re: cactus juice/antiinflammatory Mhel, where is your kids inflammation? if it is in the gut..i swear by the bakin soda and benedryl combo... if it is the brain...i have a great article on copper sebecate as a great antiinflammatory.. the body uses copper to fight inflammation that is why so many kids test high in copper because the body is using it not because it has to much of it...that is one theory any ways if any one wants I can post the article channa To: mb12valtrex Sent: Tuesday, November 29, 2011 3:43 PM Subject: RE: cactus juice/antiinflammatory Thank you for the post. God bless you and your family in moving overseas, same with Channa. I wonder if both of you are moving toward same place? Take care, Mhel To: mb12valtrex From: channabrennon@... Date: Tue, 29 Nov 2011 12:38:27 -0800 Subject: Re: cactus juice/antiinflammatory tunde..i am thinking of moving overseas as well....I tried the napolea cactus juice by trivita...is this the one you ere using? i am looking for easy acess supplements once I move over seas...let me know..what works for you ...i would appreciate the info:) channa To: mb12valtrex Sent: Tuesday, November 29, 2011 3:05 PM Subject: cactus juice/antiinflammatory Hi, I few months ago i was talking about the cactus juice i used for my son's brain inflammation. There were some people from overseas wanted to get the juice but they do not ship overseas. Now I had to move overseas and i did not want to give this up for my son. I searched and came up with this site. It is in powdered form and they ship everywhere and we just have to add water. here is the site http://www.nopalexport.com/contactus.htm I did not try it yet but ordering it tonight. I will let you all know if there is any difference in this product. Hope it will be some help for some of you. Tunde -- -------------------------------------------------------------------------------------------- Click to find info about Vitamins and Minerals: http://www.facebook.com/note.php?note_id=10150543521682565 -------------------------------------------------------------------------------------------- Click to find links to info about the Low Oxalate Diet : http://www.facebook.com/note.php?note_id=10150543495292565 ------ Toni ------ Mind like a steel trap... Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2011 Report Share Posted December 27, 2011 Thank You so much.I really do feel your love.     Tammy F.  Aw, Tammy, I'm praying for you. It's a long road - I hate to hear about a child suffering. I wish I had an answer for you and pray you find one very soon. xox  -Tammy From: Tammy To: mb12valtrex Sent: Sunday, December 25, 2011 9:16 PM Subject: Re: copper sebecate  Not usually either one.But with our thread I tried the copper and molyb. but my son got angry and hyper(he is sensitive to all things I just keep trying).I have tried naturals and unaturals my sons entire life and get the same reaction.He is 12 now and I am extremely discouragedHe is defficient in multiple vits and minerals.Has lyme and co infections but can't treat as he has continuous sickness from meds.The docs always say its die off then months and years later he is still sick.They are stumped.Its got to be something geneticaly I am missing.I did the genomic testing for detoxing and just did the 23 and me genetic testing,thanks to others advice.I still have 6 wks to wait for results.He looks like he may die every day.I don't know how his little body takes.He has lost his childhood to misery .I hope and pray everyday that an answer turns up.Its so cruel and sad to see .I have thought Dr.Klinghardt may have new thoughts (although i have already tried lots of his stuff with other docs).Or yasko,but my son can't handle all those or can he?Or maybe Dr.Rossignol may be our answer or the emergency room visits.I have taken him from state to state to doctors.Valtrex is the only thing I have ever found that has any kind of positive results.But he still is sick daily.It Changes daily.I am now wondering about stem cells.We havehad many years without a real Christmas,but I can never say stop.Too bad God doesn't take the ones that need relief I am very sad this year.Sorry channa ,your question was a loaded one as you see.I am sorry to do this to this wonderfull group.I know everyone has their own missery. Thanks for all of you,I thank God everyday for alllll of you.Tammy F.  well....i am not sure but it states in the article with the exception of wilsons disease.... do you supplement with molybedenum tammy? R.J. Sorenson at the University of Arkansas has done most of the pioneering research work on copper complexes. In one of his publications he states that with the exception of 's disease, there are no chronic degenerative diseases in man known to result from non-industrial exposure to copper. Copper salicylate has a stronger anti-inflammatory effect than cortisone but without the side effects.  From: Tammy To: mb12valtrex Sent: Sunday, December 25, 2011 1:59 PM Subject: Re: copper sebecate  This sure seems like a great article,if I could wrap my head around it.Can anyone descifer whether my son who has wilsons syndrome (among other things) should or should not take copper suppliments???? Thank you for any input,Tammy F.  http://health-science-spirit.com/copper.html ?? On Tue, Nov 29, 2011 at 11:10 PM, Channa Brennon wrote:  i wasnt able to open the link you put up... im so pissed i didnt save article...I will see if i can look it up some how again...but that makes sense about having the right form of copper..I was givin my son about 8mg of copper with great results....when i get my copper on thursday im goin to do the same maybe go higher and see if it will work on my migraines like the excedrin does...if the thoery is correct it should help me as well. channa From: T Lynn To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 10:49 PM Subject: Re: copper sebecate  I just came across this at a website that Discusses Klinghardt's protocol for kpu:    ANOTHER SCHOOL OF THOUGHT High toxic copper may indicate the child is copper deficient. Not having the right form of copper may cause individuals to hold on to un-usable toxic copper. When zinc will not drive down the copper, suspect this as the possible reason. In this case you may choose to give the child the correct form and size of copper in small amounts each night and within several months the toxic copper levels may fall.†-Jim from WHM.com   Could this be what you were talking about?  From: Channa Brennon To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 7:57 PM Subject: copper sebecate  oh crap. i am sorry..I thought I kept article..I wiz thru so many things...sometimes i think i kept when i didnt. with all the crap I am goin thru i am even more absent minded bout stuff..     basically the article said copper is to qiute inflammation...zinc is to speed up the immune system....so if you are dealing with an overactive immune system AKA too much inflammation you body is goin to dump all reserves into blood stream trying to bring down all that inflammation...thats why you see such high copper in our kids.. I knew i was on to smething when one of the other moms from diffrent group said her kids hair was turning grey..and that is a sign of copper defieciency..in that other group the motto was zinc zinc and more zinc..so no one would listen to me. sigh. how can i go up against the almighty DAM docters.   anyways....I stumbled apon copper cuz my son had signs of hyperthyriodism  copper is used to treat this.. my son became so calm and happy when i gave it to him...I backed of thinking maybe the docters were right and I was wrong about the copper theory. but I just ordered some more copper sebacate....for my son and my own migraines from hell. I dont swear by anything but this is what I have used and found to work for me. channa  From: T Lynn To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 5:09 PM Subject: Re: cactus juice/antiinflammatory  would love to see that! From: Channa Brennon To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 5:06 PM Subject: Re: cactus juice/antiinflammatory  Mhel, where is your kids inflammation? if it is in the gut..i swear by the bakin soda and benedryl combo... if it is the brain...i have a great article on copper sebecate as a great antiinflammatory.. the body uses copper to fight inflammation that is why so many kids test high in copper because the body is using it not because it has to much of it...that is one theory any ways if any one wants I can post the article channa From: Abenir Ilasin To: mb12valtrex Sent: Tuesday, November 29, 2011 3:43 PM Subject: RE: cactus juice/antiinflammatory  Thank you for the post. God bless you and your family in moving overseas, same with Channa. I wonder if both of you are moving toward same place?                                          Take care,                                            Mhel                                                    To: mb12valtrex From: channabrennon@... Date: Tue, 29 Nov 2011 12:38:27 -0800 Subject: Re: cactus juice/antiinflammatory  tunde..i am thinking of moving overseas as well....I tried the napolea cactus juice by trivita...is this the one you ere using? i am looking for easy acess supplements once I move over seas...let me know..what works for you ...i would appreciate the info:) channa From: Jaqueline To: mb12valtrex Sent: Tuesday, November 29, 2011 3:05 PM Subject: cactus juice/antiinflammatory  Hi, I few months ago i was talking about the cactus juice i used for my son's brain inflammation. There were some people from overseas wanted to get the juice but they do not ship overseas. Now I had to move overseas and i did not want to give this up for my son. I searched and came up with this site. It is in powdered form and they ship everywhere and we just have to add water. here is the site http://www.nopalexport.com/contactus.htm I did not try it yet but ordering it tonight. I will let you all know if there is any difference in this product. Hope it will be some help for some of you. Tunde Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2011 Report Share Posted December 27, 2011 Hi ,I have done both cranial sacral and NAET.CST when he was a baby.NAET about 2 yrs ago.CST was vaguely helpfull but I only used it for about a year.Hearing your experience I am looking for a practitioner that can take insurance.I understand the NAET is very dependent on the match with the practitioner.I am gong to try that also again.I sure wish I lived near the ones that took insurance.I have lost many welfare benifits here in Kansas.I have researched some and Oregan seems much better than Kansas.We are stuck in a hole going in circles of debt and not having the basics.I was thinking you came from near Oregan?? Anyway I love the story of your trip home with Mia.Do you have to do the CST continuously with Mia?Thats interesting to me what you say about the adrenals from her kidneys being tight.I bought a indoor and an outdoor trampoline and find it helps ever so slightly sometimes,but if I could get his organs moving with manipulatives this may help my son also.What do you mean by HOURLY RATES FOR CST.How do you do that and why,I know it doesn't take an hour for CST? Did you find you could use the CORE vit.s and Bio Silica for Mia from Klinghardts protocal?Your Mia is very lucky to have such a wonderful mama.So in tune.I am excited to dig into the DEEKSHA.Thank you so much .I do not feel so alone.I feel so much love and caring,Tammy F. Tammy, Your words have been heavy on my heart and I've been thinking over and over and all I keep coming up with is manual therapies. Have you tried Cranio Sacral Therapy yet? It was a life saver for us. Also, we had significant success with NAET. Both made Mia significantly less reactive. CST helps to flush the craniosacral system, which includes the pineal gland. Practitioners relate that this helps take toxins out of the brain. For Mia, it took away a lot of general tactile sensitivity and just overall pain and tension. Her shoulder/neck muscles relaxed for the first time in her life. She also had very tight kidneys, which meant her adrenals weren't moving the miniscule amount they are supposed to regularly move as you walk or jump, and were not circulating their fluid properly. This contributed to her being stuck in fight or flight mode with an inflexible and hyperactive adrenal response. Mia had significant cognitive gains after CST and was more responsive to her other supplements. Things started working that hadn't before. CST requires the child to lay down for a long time and essentially be 'bored'. This was a challenge for our sensory-seeking, frankly completely jacked up at the time Mia. We took in play puddy that she could work with her hands and I laid with her for the first session. The great thing is, though, once the practitioner gets about 5 minutes in, the effect of CST hits strongly and everything calms down. Mia fell asleep every time. I timed the therapies for nap time to help this out. For the first few therapies, she was VERY disoriented coming out and could not cope with transitions/choices/options very well. So I realized we had to essentially go home right away. For us this meant a nice 30 minute drive on a pretty deserted road between the town our therapist was in and our town. We had driven this road probably a hundred times over the 4 years we lived there. It is interesting, after Mia's third or fourth session, we started the drive home. She was really spacey and disoriented. But she was communicative. She pointed out the window at a resorvoir, one we had not only driven by those hundred or so times, but also one we had ridden our bikes around countless times too. And she said 'Oh, there's a lake. Where are we mommy?'. She made a couple of other comments like this on our way home. She had NO IDEA where we were. It was after this session that she started really enjoying going and also the gains started to really grow. Looking back I remember walking into the first CST session literally shaking in fear, life was so hard and we had tried so much. Please, God, let something work I begged. Our misery and pain started dissolving after this. It was a miracle. NAET was VERY big for us too. It requires less sitting still. We found a practitioner that was covered by insurance (a Dr. of Osteopathy that also does great osteopathic adjustments), and does the newer form of NAET with a- I think UV laser or something? Anyway, it is a little electronic device. He tests the body's response to an allergen by holding his hands on your head, feeling for the response (the allergen is held in a vial by mom, holding the child, or child alone), and then if there is a response, he clears it with the electronic device. Our NAET therapist continually joked that he had no idea why this works, and that it defied any logic he could come up with. But that he repeatedly saw it change people's lives and so he has worked and worked to develop and learn it. He was introduced to it by a patient who had a severe egg allergy (with anaphylaxis). She told him of her success with the therapy and he didn't believe her. So she came into his office with a plate of eggs and ate them. We found NAET life changing in terms of lessening reactivity. The things we can do now compared to before NAET are truly unbelievable to me. This therapy and CST opened my heart and eyes to the irrepressable reality that there are things modern medicine just does not understand about the workings of the body- and that miracles can happen in healing the body if we only find the right, qualified, caring, dedicated therapists and practitioners. CST can also be covered by insurance when done by physical therapists, and we found our WONDERFUL therapist through the behavioral health program at our local hospital. But now that we are in Portland, we can find CST'sts for hourly rates at about the same as insurance, and I wonder if this is the case in some other places also. I send you and your son all of my prayers today and hopes for a turning point soon. One last note- this is a even a little 'further out', but we have found great success with deeksha- oneness blessings. This is I believe similar to Reiki- I am not educated on it all, but essentially we have found that this energetic work of essentially opening the heart to the love of say God or the Universe or the Earth, or your love for yourself or your son, or whatever you may want to call it, and directing that energy towards yourself and your son, can work wonders on the subtle energy fields of the body. I mention this because you can look at Yahoo or Google or Meet Up groups for Reiki or Deeksha in your area and they are FREE. It is FREE therapy. In the groups you may be likely to meet alternative practitioners also that can help with the manual therapies. I hesitate to share this because it opens up many cans of worms- people don't believe it, etc. But we came to this type of world after exhausting all of our own attempts to understand and address Mia's underlying issues and it has been supportive to us all and continues to unlock doors. We have had significant 'faith healing' (or 'energy healing', and in my scientific opinion, something beautiful that is at work that can be explained in scientific language, were science to let go it's belief that it's ability to define things makes it somehow larger than and in control of them) experiences move our life and choices in recent months. And I am humbled by them. For us this has been a path to prayer and belief that I needed to open up to the possiblity of miracles in our lives, and a fluid and reflexive and direct relationship with that greater oneness from which they come. > > oh tammy....i am so sorry....please dont be sad > i will give some ideas...what keeps kids in my opinion a lot of times...un responsive to supps or bad reactions to supps are mercury toxicicty....have you done any chelation?  i know im always pushing AC chelation but heard so much sucess with it....ive had so much sucess with it. > have you done a food allergy test? what diet is he on? if he is eating food that keeps his body in constant inflammation that is other cause of trouble with supps... > then there is parasites... > my heart breaks for you....and i will keep coming out with ideas as long as you will put up with them... > or tell channa to shut up...sometimes i have a big mouth. > you and your son are in my prayers tonight....all my love to you and your son. > channa > > > ________________________________ > > To: mb12valtrex > Sent: Sunday, December 25, 2011 9:16 PM > Subject: Re: copper sebecate > > >  > Not usually either one.But with our thread I tried the copper and molyb. but my son got angry and hyper(he is sensitive to all things I just keep trying).I have tried naturals and unaturals my sons entire life and get the same reaction.He is 12 now and I am extremely discouragedHe is defficient in multiple vits and minerals.Has lyme and co infections but can't treat as he has continuous sickness from meds.The docs always say its die off then months and years later he is still sick.They are stumped.Its got to be something geneticaly I am missing.I did the genomic testing for detoxing and just did the 23 and me genetic testing,thanks to others advice.I still have 6 wks to wait for results.He looks like he may die every day.I don't know how his little body takes.He has lost his childhood to misery .I hope and pray everyday that an answer turns up.Its so cruel and sad to see .I have thought Dr.Klinghardt may have new thoughts (although i have already tried > lots of his stuff with other docs).Or yasko,but my son can't handle all those or can he?Or maybe Dr.Rossignol may be our answer or the emergency room visits.I have taken him from state to state to doctors.Valtrex is the only thing I have ever found that has any kind of positive results.But he still is sick daily.It Changes daily.I am now wondering about stem cells.We havehad many years without a real Christmas,but I can never say stop.Too bad God doesn't take the ones that need relief I am very sad this year.Sorry channa ,your question was a loaded one as you see.I am sorry to do this to this wonderfull group.I know everyone has their own missery. Thanks for all of you,I thank God everyday for alllll of you.Tammy F. > > > > >  > >well....i am not sure but it states in the article with the exception of wilsons disease.... > >do you supplement with molybedenum tammy? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2011 Report Share Posted December 27, 2011 I haven't read her books or watched all the videos. I didn't even follow the advice really but liked knowing the info.Just recently (October) we tried the mtr compound, it has hydroxo-cobalamin and intrisic factor in it. I guess less methyl groups. My daughter (age 6, asperger's) can take lots of mb12 but just a little makes my son (age 5, ADHD and possibly asperger's, epilepsy) crazy... so this has been great for us... then we JUST started (end of Nov?) the other supps, I got my RNAs (included in the price of testing is 4 RNAs) but only used them a couple times. Hi Tonie Marie,I haven't done the Yasko yet.I heard some contradictory things from Klinghardts last presentation.But Im not sure I understand whether its an issue to be concerned about and to throw away the idea of using her stuff.I do love the idea of her.I am so glad to hear your child can take the methl B12 now.Has there been other things.It sounds like you may be in the beginning stages of her protocal?Did you purchase all her books?Or do you find you need them? I have done the " 23 and me " last week and have done the ,Genova Diagnostics Detox panel.But no one has been able to do anything with them.The Genova test results have a few supplement ideas but no good experience using what is called for.Maybe I should buy Yaskos books and see what I have and haven't already done?I have found her website to be very confusing.Do you? I really appreciate your experience and opinion .Thank you so much,Tammy F. Tammy, Have you done the Yasko testing? We are only on 4 Yasko combination supps. They are the regular multi, the MTR/MTRR, Ultimate B and CBS/NOS. Well, they haven't taken the CBS/NOS this week. These are not the RNA drops. The MTR has been great for my son, the first b12 that hasnt made him nutso. On Sun, Dec 25, 2011 at 9:16 PM, Tammy wrote: Not usually either one.But with our thread I tried the copper and molyb. but my son got angry and hyper(he is sensitive to all things I just keep trying).I have tried naturals and unaturals my sons entire life and get the same reaction.He is 12 now and I am extremely discouragedHe is defficient in multiple vits and minerals.Has lyme and co infections but can't treat as he has continuous sickness from meds.The docs always say its die off then months and years later he is still sick.They are stumped.Its got to be something geneticaly I am missing.I did the genomic testing for detoxing and just did the 23 and me genetic testing,thanks to others advice.I still have 6 wks to wait for results.He looks like he may die every day.I don't know how his little body takes.He has lost his childhood to misery .I hope and pray everyday that an answer turns up.Its so cruel and sad to see .I have thought Dr.Klinghardt may have new thoughts (although i have already tried lots of his stuff with other docs).Or yasko,but my son can't handle all those or can he?Or maybe Dr.Rossignol may be our answer or the emergency room visits.I have taken him from state to state to doctors.Valtrex is the only thing I have ever found that has any kind of positive results.But he still is sick daily.It Changes daily.I am now wondering about stem cells.We havehad many years without a real Christmas,but I can never say stop.Too bad God doesn't take the ones that need relief I am very sad this year.Sorry channa ,your question was a loaded one as you see.I am sorry to do this to this wonderfull group.I know everyone has their own missery. Thanks for all of you,I thank God everyday for alllll of you.Tammy F. well....i am not sure but it states in the article with the exception of wilsons disease.... do you supplement with molybedenum tammy? R.J. Sorenson at the University of Arkansas has done most of the pioneering research work on copper complexes. In one of his publications he states that with the exception of 's disease, there are no chronic degenerative diseases in man known to result from non-industrial exposure to copper. Copper salicylate has a stronger anti-inflammatory effect than cortisone but without the side effects. From: Tammy To: mb12valtrex Sent: Sunday, December 25, 2011 1:59 PM Subject: Re: copper sebecate This sure seems like a great article,if I could wrap my head around it.Can anyone descifer whether my son who has wilsons syndrome (among other things) should or should not take copper suppliments???? Thank you for any input,Tammy F. http://health-science-spirit.com/copper.html ?? On Tue, Nov 29, 2011 at 11:10 PM, Channa Brennon wrote: i wasnt able to open the link you put up... im so pissed i didnt save article...I will see if i can look it up some how again...but that makes sense about having the right form of copper..I was givin my son about 8mg of copper with great results....when i get my copper on thursday im goin to do the same maybe go higher and see if it will work on my migraines like the excedrin does...if the thoery is correct it should help me as well. channa To: " mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 10:49 PM Subject: Re: copper sebecate I just came across this at a website that Discusses Klinghardt's protocol for kpu: ANOTHER SCHOOL OF THOUGHT High toxic copper may indicate the child is copper deficient. Not having the right form of copper may cause individuals to hold on to un-usable toxic copper. When zinc will not drive down the copper, suspect this as the possible reason. In this case you may choose to give the child the correct form and size of copper in small amounts each night and within several months the toxic copper levels may fall.” -Jim from WHM.com Could this be what you were talking about? From: Channa Brennon To: " mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 7:57 PM Subject: copper sebecate oh crap. i am sorry..I thought I kept article..I wiz thru so many things...sometimes i think i kept when i didnt. with all the crap I am goin thru i am even more absent minded bout stuff.. basically the article said copper is to qiute inflammation...zinc is to speed up the immune system....so if you are dealing with an overactive immune system AKA too much inflammation you body is goin to dump all reserves into blood stream trying to bring down all that inflammation...thats why you see such high copper in our kids.. I knew i was on to smething when one of the other moms from diffrent group said her kids hair was turning grey..and that is a sign of copper defieciency..in that other group the motto was zinc zinc and more zinc..so no one would listen to me. sigh. how can i go up against the almighty DAM docters. anyways....I stumbled apon copper cuz my son had signs of hyperthyriodism copper is used to treat this.. my son became so calm and happy when i gave it to him...I backed of thinking maybe the docters were right and I was wrong about the copper theory. but I just ordered some more copper sebacate....for my son and my own migraines from hell. I dont swear by anything but this is what I have used and found to work for me. channa From: T Lynn To: " mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 5:09 PM Subject: Re: cactus juice/antiinflammatory would love to see that! To: " mb12valtrex " <mb12valtrex > Sent: Tuesday, November 29, 2011 5:06 PM Subject: Re: cactus juice/antiinflammatory Mhel, where is your kids inflammation? if it is in the gut..i swear by the bakin soda and benedryl combo... if it is the brain...i have a great article on copper sebecate as a great antiinflammatory.. the body uses copper to fight inflammation that is why so many kids test high in copper because the body is using it not because it has to much of it...that is one theory any ways if any one wants I can post the article channa To: mb12valtrex Sent: Tuesday, November 29, 2011 3:43 PM Subject: RE: cactus juice/antiinflammatory Thank you for the post. God bless you and your family in moving overseas, same with Channa. I wonder if both of you are moving toward same place? Take care, Mhel To: mb12valtrex From: channabrennon@... Date: Tue, 29 Nov 2011 12:38:27 -0800 Subject: Re: cactus juice/antiinflammatory tunde..i am thinking of moving overseas as well....I tried the napolea cactus juice by trivita...is this the one you ere using? i am looking for easy acess supplements once I move over seas...let me know..what works for you ...i would appreciate the info:) channa To: mb12valtrex Sent: Tuesday, November 29, 2011 3:05 PM Subject: cactus juice/antiinflammatory Hi, I few months ago i was talking about the cactus juice i used for my son's brain inflammation. There were some people from overseas wanted to get the juice but they do not ship overseas. Now I had to move overseas and i did not want to give this up for my son. I searched and came up with this site. It is in powdered form and they ship everywhere and we just have to add water. here is the site http://www.nopalexport.com/contactus.htm I did not try it yet but ordering it tonight. I will let you all know if there is any difference in this product. Hope it will be some help for some of you. Tunde -- -------------------------------------------------------------------------------------------- Click to find info about Vitamins and Minerals: http://www.facebook.com/note.php?note_id=10150543521682565 -------------------------------------------------------------------------------------------- Click to find links to info about the Low Oxalate Diet : http://www.facebook.com/note.php?note_id=10150543495292565 ------ Toni ------ Mind like a steel trap... Rusty and illegal in 37 states. -- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565 --------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565 ------Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2011 Report Share Posted December 27, 2011 On 12/27/2011 11:03 AM, sarahsu9 wroteoh,Yes i know what your talking of.This is not that test.My sons primary ordered the kit a few weeks ago.I am sure my son will test positive.i wonder which certain Genetics have this problem?I have been studying and trying to figure out if I can do his protocal or buy Dr.K's videos,but I think not .Its very complicated and my son reacts to EVERYTHING how would I ever know what to PUSH through.Yesterday,I bought everything for the footbaths for mold detox.I have done series of them done on my son at a local practitioner.They made him very sick.He was doing 30 mint. sessions.They said they usually did 1hr. on everybody else.The practitioner and I didn't know any better(to do it for only a few minutes at first).I used up about $2500.00 Are you doing the KPU protocal? Thank You,Tammy F. Tammy,when you said genetic test for detox, are you referring to the HLA test, to see if trouble detoxing Lyme and mold neurotoxins? Trouble recovering from Lyme and company usually means looking at mold and KPU- God bless- > > > > oh tammy....i am so sorry....please dont be sad > > i will give some ideas...what keeps kids in my opinion a lot of times...un responsive to supps or bad reactions to supps are mercury toxicicty....have you done any chelation?  i know im always pushing AC chelation but heard so much sucess with it....ive had so much sucess with it. > > have you done a food allergy test? what diet is he on? if he is eating food that keeps his body in constant inflammation that is other cause of trouble with supps... > > then there is parasites... > > my heart breaks for you....and i will keep coming out with ideas as long as you will put up with them... > > or tell channa to shut up...sometimes i have a big mouth. > > you and your son are in my prayers tonight....all my love to you and your son. > > channa > > > > > > ________________________________ > > From: Tammy <stoplyme@> > > To: mb12valtrex > > Sent: Sunday, December 25, 2011 9:16 PM > > Subject: Re: copper sebecate > > > > > >  > > Not usually either one.But with our thread I tried the copper and molyb. but my son got angry and hyper(he is sensitive to all things I just keep trying).I have tried naturals and unaturals my sons entire life and get the same reaction.He is 12 now and I am extremely discouragedHe is defficient in multiple vits and minerals.Has lyme and co infections but can't treat as he has continuous sickness from meds.The docs always say its die off then months and years later he is still sick.They are stumped.Its got to be something geneticaly I am missing.I did the genomic testing for detoxing and just did the 23 and me genetic testing,thanks to others advice.I still have 6 wks to wait for results.He looks like he may die every day.I don't know how his little body takes.He has lost his childhood to misery .I hope and pray everyday that an answer turns up.Its so cruel and sad to see .I have thought Dr.Klinghardt may have new thoughts (although i have already tried > > lots of his stuff with other docs).Or yasko,but my son can't handle all those or can he?Or maybe Dr.Rossignol may be our answer or the emergency room visits.I have taken him from state to state to doctors.Valtrex is the only thing I have ever found that has any kind of positive results.But he still is sick daily.It Changes daily.I am now wondering about stem cells.We havehad many years without a real Christmas,but I can never say stop.Too bad God doesn't take the ones that need relief I am very sad this year.Sorry channa ,your question was a loaded one as you see.I am sorry to do this to this wonderfull group.I know everyone has their own missery. Thanks for all of you,I thank God everyday for alllll of you.Tammy F. > > > > > > > > > >  > > >well....i am not sure but it states in the article with the exception of wilsons disease.... > > >do you supplement with molybedenum tammy? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Hi- no, not doing the KPU- it does not look to be our issue- although everything else is- Both dd and myself are being treated for Lyme and co-infections- dd got the HLA test, and one of her genes came back the 'dreaded'- issue with detoxing Lyme and mold neurotoxins- so we use binders 2x a day, lots of stuff for detox - we had our house looked at for mold- had a repair done- did a mold detox protocol- I know how expensive this all can be- sending you and your son good thoughts and prayers- you hang in there- keep your chin up- > > > > > > > > oh tammy....i am so sorry....please dont be sad > > > > i will give some ideas...what keeps kids in my opinion a lot of > > times...un responsive to supps or bad reactions to supps are mercury > > toxicicty....have you done any chelation?  i know im always pushing > > AC chelation but heard so much sucess with it....ive had so much > > sucess with it. > > > > have you done a food allergy test? what diet is he on? if he is > > eating food that keeps his body in constant inflammation that is other > > cause of trouble with supps... > > > > then there is parasites... > > > > my heart breaks for you....and i will keep coming out with ideas > > as long as you will put up with them... > > > > or tell channa to shut up...sometimes i have a big mouth. > > > > you and your son are in my prayers tonight....all my love to you > > and your son. > > > > channa > > > > > > > > > > > > ________________________________ > > > > From: Tammy <stoplyme@> > > > > To: mb12valtrex > > <mailto:mb12valtrex%40yahoogroups.com> > > > > Sent: Sunday, December 25, 2011 9:16 PM > > > > Subject: Re: copper sebecate > > > > > > > > > > > >  > > > > Not usually either one.But with our thread I tried the copper and > > molyb. but my son got angry and hyper(he is sensitive to all things I > > just keep trying).I have tried naturals and unaturals my sons entire > > life and get the same reaction.He is 12 now and I am extremely > > discouragedHe is defficient in multiple vits and minerals.Has lyme and > > co infections but can't treat as he has continuous sickness from > > meds.The docs always say its die off then months and years later he is > > still sick.They are stumped.Its got to be something geneticaly I am > > missing.I did the genomic testing for detoxing and just did the 23 and > > me genetic testing,thanks to others advice.I still have 6 wks to wait > > for results.He looks like he may die every day.I don't know how his > > little body takes.He has lost his childhood to misery .I hope and pray > > everyday that an answer turns up.Its so cruel and sad to see .I have > > thought Dr.Klinghardt may have new thoughts (although i have already tried > > > > lots of his stuff with other docs).Or yasko,but my son can't > > handle all those or can he?Or maybe Dr.Rossignol may be our answer > > or the emergency room visits.I have taken him from state to state to > > doctors.Valtrex is the only thing I have ever found that has any kind > > of positive results.But he still is sick daily.It Changes daily.I am > > now wondering about stem cells.We havehad many years without a real > > Christmas,but I can never say stop.Too bad God doesn't take the ones > > that need relief I am very sad this year.Sorry channa ,your question > > was a loaded one as you see.I am sorry to do this to this wonderfull > > group.I know everyone has their own missery. Thanks for all of you,I > > thank God everyday for alllll of you.Tammy F. > > > > > > > > > > > > > > > > > > > >  > > > > >well....i am not sure but it states in the article with the > > exception of wilsons disease.... > > > > >do you supplement with molybedenum tammy? > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Thank you ,Tammy F. Hi- no, not doing the KPU- it does not look to be our issue- although everything else is- Both dd and myself are being treated for Lyme and co-infections- dd got the HLA test, and one of her genes came back the 'dreaded'- issue with detoxing Lyme and mold neurotoxins- so we use binders 2x a day, lots of stuff for detox - we had our house looked at for mold- had a repair done- did a mold detox protocol- I know how expensive this all can be- sending you and your son good thoughts and prayers- you hang in there- keep your chin up- > > > > > > > > oh tammy....i am so sorry....please dont be sad > > > > i will give some ideas...what keeps kids in my opinion a lot of > > times...un responsive to supps or bad reactions to supps are mercury > > toxicicty....have you done any chelation?  i know im always pushing > > AC chelation but heard so much sucess with it....ive had so much > > sucess with it. > > > > have you done a food allergy test? what diet is he on? if he is > > eating food that keeps his body in constant inflammation that is other > > cause of trouble with supps... > > > > then there is parasites... > > > > my heart breaks for you....and i will keep coming out with ideas > > as long as you will put up with them... > > > > or tell channa to shut up...sometimes i have a big mouth. > > > > you and your son are in my prayers tonight....all my love to you > > and your son. > > > > channa > > > > > > > > > > > > ________________________________ > > > > From: Tammy <stoplyme@> > > > > To: mb12valtrex > > <mailto:mb12valtrex%40yahoogroups.com> > > > > Sent: Sunday, December 25, 2011 9:16 PM > > > > Subject: Re: copper sebecate > > > > > > > > > > > >  > > > > Not usually either one.But with our thread I tried the copper and > > molyb. but my son got angry and hyper(he is sensitive to all things I > > just keep trying).I have tried naturals and unaturals my sons entire > > life and get the same reaction.He is 12 now and I am extremely > > discouragedHe is defficient in multiple vits and minerals.Has lyme and > > co infections but can't treat as he has continuous sickness from > > meds.The docs always say its die off then months and years later he is > > still sick.They are stumped.Its got to be something geneticaly I am > > missing.I did the genomic testing for detoxing and just did the 23 and > > me genetic testing,thanks to others advice.I still have 6 wks to wait > > for results.He looks like he may die every day.I don't know how his > > little body takes.He has lost his childhood to misery .I hope and pray > > everyday that an answer turns up.Its so cruel and sad to see .I have > > thought Dr.Klinghardt may have new thoughts (although i have already tried > > > > lots of his stuff with other docs).Or yasko,but my son can't > > handle all those or can he?Or maybe Dr.Rossignol may be our answer > > or the emergency room visits.I have taken him from state to state to > > doctors.Valtrex is the only thing I have ever found that has any kind > > of positive results.But he still is sick daily.It Changes daily.I am > > now wondering about stem cells.We havehad many years without a real > > Christmas,but I can never say stop.Too bad God doesn't take the ones > > that need relief I am very sad this year.Sorry channa ,your question > > was a loaded one as you see.I am sorry to do this to this wonderfull > > group.I know everyone has their own missery. Thanks for all of you,I > > thank God everyday for alllll of you.Tammy F. > > > > > > > > > > > > > > > > > > > >  > > > > >well....i am not sure but it states in the article with the > > exception of wilsons disease.... > > > > >do you supplement with molybedenum tammy? > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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