Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Hi, I very recently was diagnosed with Vulvar Vestibulitis. I am extremely upset and frustrated. Does anyone know which treatments really work? Does this low oxalate diet help? Does the pain ever go away? Thank you. BrunaConnect to the next generation of MSN Messenger Get it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Hi Bruna, Seems to be trial and error for each of us with vulvar pain of any kind. Pelvic floor physical therapy can be very helpful. What does your doctor have you trying right now? For me personally, Estrace cream used topically has helped my skin tremendously, but I still do have some contact pain....*sigh* -- but on a good note, I've come a long, long way. Just be determined to dig your heels in and try several different things... Welcome to the group.... ~Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Hi Bruna, I would like to highly suggest using Capsaicin Cream. I've had VVS for 15 years and it's the only thing to ever truly help me. It sounds crazy, but Cap cream is actually made of hot peppers, and works on nullifying the painful nerves. It does burn to apply, but gets much less painful over time. Let me know if you want to know more about it.nicoleTo: vulvardisorders From: brunabarros@...Date: Wed, 23 Apr 2008 22:11:26 +0000Subject: which treatment works? Hi, I very recently was diagnosed with Vulvar Vestibulitis. I am extremely upset and frustrated. Does anyone know which treatments really work? Does this low oxalate diet help? Does the pain ever go away? Thank you. BrunaConnect to the next generation of MSN Messenger Get it now! Make i'm yours. Create a custom banner to support your cause. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Hi , thank you for sharing about Cap Cream. Does it require a prescription? How do you use it? Thanks Bruna To: From: Date: Wed, 23 Apr 2008 19:53:55 -0400Subject: RE: which treatment works? Hi Bruna, I would like to highly suggest using Capsaicin Cream. I've had VVS for 15 years and it's the only thing to ever truly help me. It sounds crazy, but Cap cream is actually made of hot peppers, and works on nullifying the painful nerves. It does burn to apply, but gets much less painful over time. Let me know if you want to know more about it.nicole To: vulvardisorders From: brunabarros (AT) hotmail (DOT) comDate: Wed, 23 Apr 2008 22:11:26 +0000Subject: which treatment works? Hi, I very recently was diagnosed with Vulvar Vestibulitis. I am extremely upset and frustrated. Does anyone know which treatments really work? Does this low oxalate diet help? Does the pain ever go away?Thank you. Bruna Connect to the next generation of MSN Messenger Get it now! Make i'm yours. Create a custom banner to support your cause. Discover the new Windows Vista Learn more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 HI ... *Wow so you were one of the braver ones hon to use the Capsaicin... *smile* Good for you but better yet to know that it's helped so much. We've had women over the years try it and it is suggested with the literature (and makes sense as to why with substance P) but most couldn't endure it for very long. Anyway so glad to hear from someone where it did help hon. Much appreciated. Dee ~ ----- Original Message ----- From: Zenner Hi Bruna, I would like to highly suggest using Capsaicin Cream. I've had VVS for 15 years and it's the only thing to ever truly help me. It sounds crazy, but Cap cream is actually made of hot peppers, and works on nullifying the painful nerves. It does burn to apply, but gets much less painful over time. Let me know if you want to know more about it.nicole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Hi all,Yes! Capsaicin has made my life bearable. I'm 29, have had VVS since age 14. The usual story, have tried everything with awful results in general. Since starting Capsaicin, after every time I use it, my pain and itching literally go away for 8-10 hours. It always comes back, but my pain overall has significantly decreased.Honestly, I'm a VVS veteran, and have tried basically every single type of treatment out there. That cream was the only thing that's ever allowed me to have relatively pain-free sex (when I actually had a boyfriend:-)It does burn, but I swear it was not as bad for me as it's made to sound. For the first few weeks of using it I applied Lidocaine first, and now - over a year later - I totally forget I even applied it, and I use a much higher strength. I figure, I've already endured so much pain, what's a little more if it's going to ultimately help me?You do need a prescription for it, and it must be made in a compounding pharmacy. I have mine compounded in acid mantle, which is a gentle base. To apply: (you need a hand mirror to apply it)-If you want, apply Lido 10 minutes ahead of time-Dry the area (painful parts of vulva) with a cotton ball-put a LITTLE BIT on a q-tip and apply directly to vulvar area-It may help to put ice pack between thighs - numbs the area a little-Lay there bored for 20 minutes (read a good book or watch tv)-Wet a cotton ball and wipe away (the burning will temporarily increase after washing away - think drinking water after eating hot peppers)After a while, you won't need the Lido, ice pack, and you can move around - the burning gets less and less I promise.let me know if you have any questions,nicoleTo: VulvarDisorders From: dtroll@...Date: Wed, 23 Apr 2008 22:16:03 -0400Subject: Re: which treatment works? HI ... *Wow so you were one of the braver ones hon to use the Capsaicin... *smile* Good for you but better yet to know that it's helped so much. We've had women over the years try it and it is suggested with the literature (and makes sense as to why with substance P) but most couldn't endure it for very long. Anyway so glad to hear from someone where it did help hon. Much appreciated. Dee ~ ----- Original Message ----- From: Zenner Hi Bruna, I would like to highly suggest using Capsaicin Cream. I've had VVS for 15 years and it's the only thing to ever truly help me. It sounds crazy, but Cap cream is actually made of hot peppers, and works on nullifying the painful nerves. It does burn to apply, but gets much less painful over time. Let me know if you want to know more about it.nicole Spell a grand slam in this game where word skill meets World Series. Get in the game. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 My new doctor has just suggested trying this also. I guess the secret is to start out at 1% and build up. It also has to be compounded. nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Zenner Sent: Wednesday, April 23, 2008 7:54 PM To: vulvardisorders Subject: RE: which treatment works? Hi Bruna, I would like to highly suggest using Capsaicin Cream. I've had VVS for 15 years and it's the only thing to ever truly help me. It sounds crazy, but Cap cream is actually made of hot peppers, and works on nullifying the painful nerves. It does burn to apply, but gets much less painful over time. Let me know if you want to know more about it. nicole To: vulvardisorders From: brunabarros@... Date: Wed, 23 Apr 2008 22:11:26 +0000 Subject: which treatment works? Hi, I very recently was diagnosed with Vulvar Vestibulitis. I am extremely upset and frustrated. Does anyone know which treatments really work? Does this low oxalate diet help? Does the pain ever go away? Thank you. Bruna Connect to the next generation of MSN Messenger Get it now! Make i'm yours. Create a custom banner to support your cause. Quote Link to comment Share on other sites More sharing options...
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