confused about antidepressants used to treat vestibulitis

[Guest guest]

Hi – I’m sure you will be fine – and I am glad

you are going to a specialized doctor. And the topical estrogen is great –

I use a little every night to keep my tissues in good shape, so I hope you will

be able to use it.

But I also wanted to tell you not to be afraid of a

vestibulectomy – I had one and it was nothing. I am just trying to change

the bad name that vestibulectomies have gotten over the years. Maybe at one

time it was a bad surgery, but like all surgeries, they have made many

improvements in techniques over the years. There was virtually no pain, the tiny

stitches dissolved within a week, and I can’t even see where I had one. So,

if you ever think you might need a vestibulectomy, - it is not scary, and I

will be glad to give you more information if needed.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of lulubuns

Sent: Sunday, April 27, 2008 2:40 AM

To: VulvarDisorders

Subject: Re: confused about antidepressants used to treat

vestibulitis

Thanks,I made a appointment with a doctor who

specializes in

urogynecology and pelvic reconstructive surgery. I'll bring some info

with about the topical estrogen. At the moment the tissue is so

inflamed it's compltely white so there's no way the doctor can say the

pain is in my head. I have been reading about the surgery,

vestibulectomy which sounds pretty scary, I definately want to try

estrogen first!

>

> Hey LuLubuns,

>

> Boy do I hear you! I too have IC and vulvodynia and I KNEW mine

had a huge hormonal component. I was dead on!!! Estrogen has helped

my vulva and bladder MORE than anything else so far.

>

> Have you tried a uro/gyn? They usually know that estrogen has

good uro/genital effects.

>

> Have you tried the NVA? They have a list of providers for every

state that treat vulvar pain. Even if you have to go out of network

one time to see a doc that will prescribe it, it would be worth it.

I've found that once ONE doc gives in and allows you try something,

other docs won't be afraid to and will comply. It's a shame that you

have to go to such lengths...but it's worth it to get that pain level

down.

>

> Do not give up! Hugs, Chelle

>

> PS - Print out info from the group and take it with you to a doc

appt. I did! I took Dr. Vliet's book, laid it on my uor/gyn's desk

and said, " here, read this " . I took emails from the group of their

experiences with Estrace topically and gave them to him, too. I

overwhelmed him with INFO.... :0)

[Guest guest]

Thanks, did the surgery greatly reduce your pain and are you now able

to have intercourse? What parts did they remove-is it just the hymen

or also the Bartholin's and Skene glands?

>

> Hi - I'm sure you will be fine - and I am glad you are going to a

> specialized doctor. And the topical estrogen is great - I use a

little every

> night to keep my tissues in good shape, so I hope you will be able

to use

> it.

>

> But I also wanted to tell you not to be afraid of a vestibulectomy -

I had

> one and it was nothing. I am just trying to change the bad name that

> vestibulectomies have gotten over the years. Maybe at one time it

was a bad

> surgery, but like all surgeries, they have made many improvements in

> techniques over the years. There was virtually no pain, the tiny

stitches

> dissolved within a week, and I can't even see where I had one. So,

if you

> ever think you might need a vestibulectomy, - it is not scary, and I

will be

> glad to give you more information if needed.

>

> nne