Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Hi I am new to this site, I have been suffering with vulvodynia for over a year now, it gets so bad that I have to sit on ice and take some Darvocet, I just started taking Neurontin and I have not felt any difference yet can any one tell me if they had any luck with Neurontin and how long it takes to work, I am sooo depressed about this some days I just lay on the couch and cry....so please any advice would be greatly appreciated...thanks Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 Jen, many of us have cried many tears...but please know that there is HOPE! What are your symptoms and what have you used for help besides Ice and pain meds? I encourage you to look through our files, links and database on the homepage when you feel up to it. Hang in there and Welcome to the group! ~Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 > > Jen, many of us have cried many tears...but please know that there is HOPE! > > What are your symptoms and what have you used for help besides Ice and pain meds? I encourage you to look through our files, links and database on the homepage when you feel up to it. > > Hang in there and Welcome to the group! ~Chelle > Hi Chelle, Thanks for responding, I have been taking Neurontin I am finally up to a 1000 mg for about 2 days now with no improvement, I am not sure how long before you see any improvement,I also tried premarin cream but seemed to make things worst so I stopped... my symptoms are mostly burning in the vestibule area but are now spreading out to my outer labia and sometime my ananl area, so I am convinced I have some sort of nerve damgage, I was diagnosed with Lichen simplex chronicus 2 years ago but that has pretty much under control but I think that and that recurring yeast infections that use to have before I changed my diet caused my vulvodynia, I jsut want some improvement right now it is even hard to sit without pain it is very discouraging........Thank you so much , Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2008 Report Share Posted May 10, 2008 If you had LS at one time – you still may not have any visible symptoms, but LS does just cause pain. I use a dab of CLBOB twice a week just for pain (I have LS also), and I also use 5% Lidocaine gel twice a day. If you have any anti-anxiety meds like valium, that also might help. nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of jen9952 Sent: Saturday, May 10, 2008 7:06 PM To: VulvarDisorders Subject: Re: Vulvodynia > > Jen, many of us have cried many tears...but please know that there is HOPE! > > What are your symptoms and what have you used for help besides Ice and pain meds? I encourage you to look through our files, links and database on the homepage when you feel up to it. > > Hang in there and Welcome to the group! ~Chelle > Hi Chelle, Thanks for responding, I have been taking Neurontin I am finally up to a 1000 mg for about 2 days now with no improvement, I am not sure how long before you see any improvement,I also tried premarin cream but seemed to make things worst so I stopped... my symptoms are mostly burning in the vestibule area but are now spreading out to my outer labia and sometime my ananl area, so I am convinced I have some sort of nerve damgage, I was diagnosed with Lichen simplex chronicus 2 years ago but that has pretty much under control but I think that and that recurring yeast infections that use to have before I changed my diet caused my vulvodynia, I jsut want some improvement right now it is even hard to sit without pain it is very discouraging........Thank you so much , Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 nne, I had lichen simplex chronicus that is a form of dermatitis, I do use Clobetasol 2x a week but the Lichen simplex was in one tiny area, now the pain is all over even on the labia majora, I guess it could be caused by the lichen simplex, but the doctor seems to think it is nerve damage, I have heard that Lyrica works better than Neorontin but I am not sure, have you ever tried Lyrica??? and I would really like to now what kind of shots you recieve??? is it cortisone?? I will try anything to get this under control..... Thnak you so very much Jen > > > > Jen, many of us have cried many tears...but please know that there > is HOPE! > > > > What are your symptoms and what have you used for help besides > Ice and pain meds? I encourage you to look through our files, links > and database on the homepage when you feel up to it. > > > > Hang in there and Welcome to the group! ~Chelle > > > Hi Chelle, Thanks for responding, I have been taking Neurontin I am > finally up to a 1000 mg for about 2 days now with no improvement, I > am not sure how long before you see any improvement,I also tried > premarin cream but seemed to make things worst so I stopped... my > symptoms are mostly burning in the vestibule area but are now > spreading out to my outer labia and sometime my ananl area, so I am > convinced I have some sort of nerve damgage, I was diagnosed with > Lichen simplex chronicus 2 years ago but that has pretty much under > control but I think that and that recurring yeast infections that use > to have before I changed my diet caused my vulvodynia, I jsut want > some improvement right now it is even hard to sit without pain it is > very discouraging........Thank you so much , Jen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Jen... just a thought... The steroids esp. the Clob is a class one in potency.. extremely strong... and believe me overuse of that can destroy or fry those nerves too and of course it doesn't stay just where you apply it, it seeps. (Went up to my tail bone to give me blisters there it was so bad, I'm a back sleeper.). So it's just a thought hon and I've no idea for how long you've used it.. and would agree that twice a week doesn't seem like much... but it depends on how long (say if it's been 6 months?) 'I'd' surely give it a second thought that it might be that. For what it's worth hon. Also have you added the Estrace or estradiol? Believe me there's nothing better to restore that tissue than that, esp. with lichen simplex as it is for any V pain if the issue is the tissue & damage there. hugsDee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 > > Hi Dee, I have been using the Clobetasol well over a year and it worked great for the first 6 months or so now I have pain not just in the vestibule but all over even on my labia majora. M doctor did prescribed estrace cream but my insurance would not cover it so I got premarin cream, but she told me to insert it up in the vagina for 2 weeks then 2x a week, but it did burn and made my labia majora inflammed, I have no idea why...but hat is my luck so I havent used it since.. So how often do you apply the estrace cream to the inflammed tissue?? and how long before yoy see results??? Thank you very much Jen > > Jen... just a thought... > > The steroids esp. the Clob is a class one in potency.. extremely strong... and believe me overuse of that can destroy or fry those nerves too and of course it doesn't stay just where you apply it, it seeps. (Went up to my tail bone to give me blisters there it was so bad, I'm a back sleeper.). > > So it's just a thought hon and I've no idea for how long you've used it.. and would agree that twice a week doesn't seem like much... but it depends on how long (say if it's been 6 months?) 'I'd' surely give it a second thought that it might be that. For what it's worth hon. > > Also have you added the Estrace or estradiol? Believe me there's nothing better to restore that tissue than that, esp. with lichen simplex as it is for any V pain if the issue is the tissue & damage there. > > hugs > Dee > Quote Link to comment Share on other sites More sharing options...
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