damage from steroid and ketoconazole creams

[Guest guest]

Hello,My name is Alina and here is my story.I had an allergic vulvitis last year that was treated with cortisone cream, but I was left burning on the top ofmy vulva and itching on my right labia. I calmed that down with some plant gel.Then last December I got a yeast infection and I was told to use Nizoral cream for itching. The problem is I applied it on the labia majora for two weeks and it burned my tissue. I went to many doctors because the damage was not really visible, but I was burning and in pain where I had applied it.Then I applied cortizone cream and was give some estrogen vaginal pessaries that burned like hell and I had to stop using them.Then I went to another derm and he said I had contact dermatitis from all the creams and prescribed another

cortizone cream that I applied for three weeks and this one really burned my tissues. I was all red and inflamed and burning even more. I went back and he claimed I had nothing serious and sent me home and said I should heal by myself in 3 months. Well 3 months are gone, the tissue looks much better, the burning is pretty much gone, but I am still in pain, I cannot stand underwear, my pubes sting, menstrual pads chafe, sometimes my discharge stings.Even a little rubbing means pain and stinging and I get red.I went back to this derm and now he said that I still have an irritation and asked me why I did not seek medical help. He prescribed a nappy rash cream for 1 month and I have to go back for followup.The gynecologist cannot see any irritation and thinks I have vulvodynia and keeps sending me to the shrink to sort my "issues" because he thinks they are triggered by some psychological trauma.I am going to another derm on Tuesday, but

I am at a loss here. How do I repair those damaged tissues?The thing is, in the morning they look really good but are still painful. After using the towel or even rubbing with underwear they turn red and sting.I am now trying cautiously the nappy rash cream on one corner of the labia majora and on the other one the Cicalfate repair cream from Avene.I also have emu oil, that soothed me last night when I was stinging kinda bad.My mom also thinks my vulva skin looks normal, but I know how it used to look, and it is not normal.If you have any suggestions, I would sure like to hear them.Thanks a lot,Alina

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Hi Alina, this sounds similar to my story, regarding allergic

reactions to everything. I was allergic to antifungal creams,

bacterial vaginosis creams, cortisone creams, and all the alternative

medicine stuff (like vaginal acidophilus, boric acid etc.). Basically

I was one big allergic mess all swollen up and burning for 7 months. I

believe this is what caused my vulvar vestibulitis. All I can say is:

don't use anything on the tissue. Since you are allergic to everything

all the creams will just make it worse. I cannot use any topical

medicine. Underwear is very irritating, I do not wear underwear

(except when I have my period, then I have to suffer through the

chafing). Also do not rub yourself dry after showering, either air

dry or use a hair dryer set on low and hold it far away (this is what

I do). That is all I can suggest for now, please try not to put

anything on the skin. If you think it's vulvodynia you need to find a

doctor who specializes in it, most gynecologists don't know anything

about it! I hope you feel better.

>

> Hello,

>

> My name is Alina and here is my story.

> I had an allergic vulvitis last year that was treated with cortisone

cream, but I was left burning on the top of

> my vulva and itching on my right labia. I calmed that down with some

plant gel.

> Then last December I got a yeast infection and I was told to use

Nizoral cream for itching. The problem is I applied it on the labia

majora for two weeks and it burned my tissue. I went to many doctors

because the damage was not really visible, but I was burning and in

pain where I had applied it.

> Then I applied cortizone cream and was give some estrogen vaginal

pessaries that burned like hell and I had to stop using them.

> Then I went to another derm and he said I had contact dermatitis

from all the creams and prescribed another cortizone cream that I

applied for three weeks and this one really burned my tissues. I was

all red and inflamed and burning even more. I went back and he claimed

I had nothing serious and sent me home and said I should heal by

myself in 3 months. Well 3 months are gone, the tissue looks much

better, the burning is pretty much gone, but I am still in pain, I

cannot stand underwear, my pubes sting, menstrual pads chafe,

sometimes my discharge stings.

> Even a little rubbing means pain and stinging and I get red.

>

> I went back to this derm and now he said that I still have an

irritation and asked me why I did not seek medical help. He prescribed

a nappy rash cream for 1 month and I have to go back for followup.

> The gynecologist cannot see any irritation and thinks I have

vulvodynia and keeps sending me to the shrink to sort my " issues "

because he thinks they are triggered by some psychological trauma.

> I am going to another derm on Tuesday, but I am at a loss here. How

do I repair those damaged tissues?

> The thing is, in the morning they look really good but are still

painful. After using the towel or even rubbing with underwear they

turn red and sting.

> I am now trying cautiously the nappy rash cream on one corner of the

labia majora and on the other one the Cicalfate repair cream from Avene.

> I also have emu oil, that soothed me last night when I was stinging

kinda bad.

> My mom also thinks my vulva skin looks normal, but I know how it

used to look, and it is not normal.

>

>

> If you have any suggestions, I would sure like to hear them.

> Thanks a lot,

> Alina

>

>

>

________________________________________________________________________________\

____

> Be a better friend, newshound, and

> know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

[Guest guest]

I told me gynecologist that my issues started after using over-the-

counter yeast medication. That, with the fact that I was dry due to

lack of hormones fried the nerves in that area. He said that he

believes that my theory is correct.

That area has to heal! I use specially compounded creams that do not

irritate.

You also should get to a vulvar specialist because the quicker you

do something about this the more likely you are to be totally

healed. That is what Dr. told me.

Diane

> >

> > Hello,

> >

> > My name is Alina and here is my story.

> > I had an allergic vulvitis last year that was treated with

cortisone

> cream, but I was left burning on the top of

> > my vulva and itching on my right labia. I calmed that down with

some

> plant gel.

> > Then last December I got a yeast infection and I was told to use

> Nizoral cream for itching. The problem is I applied it on the labia

> majora for two weeks and it burned my tissue. I went to many

doctors

> because the damage was not really visible, but I was burning and in

> pain where I had applied it.

> > Then I applied cortizone cream and was give some estrogen vaginal

> pessaries that burned like hell and I had to stop using them.

> > Then I went to another derm and he said I had contact dermatitis

> from all the creams and prescribed another cortizone cream that I

> applied for three weeks and this one really burned my tissues. I

was

> all red and inflamed and burning even more. I went back and he

claimed

> I had nothing serious and sent me home and said I should heal by

> myself in 3 months. Well 3 months are gone, the tissue looks much

> better, the burning is pretty much gone, but I am still in pain, I

> cannot stand underwear, my pubes sting, menstrual pads chafe,

> sometimes my discharge stings.

> > Even a little rubbing means pain and stinging and I get red.

> >

> > I went back to this derm and now he said that I still have an

> irritation and asked me why I did not seek medical help. He

prescribed

> a nappy rash cream for 1 month and I have to go back for followup.

> > The gynecologist cannot see any irritation and thinks I have

> vulvodynia and keeps sending me to the shrink to sort my " issues "

> because he thinks they are triggered by some psychological trauma.

> > I am going to another derm on Tuesday, but I am at a loss here.

How

> do I repair those damaged tissues?

> > The thing is, in the morning they look really good but are still

> painful. After using the towel or even rubbing with underwear they

> turn red and sting.

> > I am now trying cautiously the nappy rash cream on one corner of

the

> labia majora and on the other one the Cicalfate repair cream from

Avene.

> > I also have emu oil, that soothed me last night when I was

stinging

> kinda bad.

> > My mom also thinks my vulva skin looks normal, but I know how it

> used to look, and it is not normal.

> >

> >

> > If you have any suggestions, I would sure like to hear them.

> > Thanks a lot,

> > Alina

> >

> >

> >

>

_____________________________________________________________________

_______________

> > Be a better friend, newshound, and

> > know-it-all with Yahoo! Mobile. Try it now.

> http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

>

[Guest guest]

Diane, what kind of creams do you use now to heal the tissue?

I have healed somewhat (I was a raw mess), but there is still

irritation that prevents me from wearing underwear or pants.

The gynecologist (I had to go to another country -- I live in Eastern

Europe-- for this one, he's supposed to be a specialist) said he

cannot see any irritation, but the derm says he can see it and

prescribed nappy rash cream.

Thanks.

> > >

> > > Hello,

> > >

> > > My name is Alina and here is my story.

> > > I had an allergic vulvitis last year that was treated with

> cortisone

> > cream, but I was left burning on the top of

> > > my vulva and itching on my right labia. I calmed that down with

> some

> > plant gel.

> > > Then last December I got a yeast infection and I was told to use

> > Nizoral cream for itching. The problem is I applied it on the labia

> > majora for two weeks and it burned my tissue. I went to many

> doctors

> > because the damage was not really visible, but I was burning and in

> > pain where I had applied it.

> > > Then I applied cortizone cream and was give some estrogen vaginal

> > pessaries that burned like hell and I had to stop using them.

> > > Then I went to another derm and he said I had contact dermatitis

> > from all the creams and prescribed another cortizone cream that I

> > applied for three weeks and this one really burned my tissues. I

> was

> > all red and inflamed and burning even more. I went back and he

> claimed

> > I had nothing serious and sent me home and said I should heal by

> > myself in 3 months. Well 3 months are gone, the tissue looks much

> > better, the burning is pretty much gone, but I am still in pain, I

> > cannot stand underwear, my pubes sting, menstrual pads chafe,

> > sometimes my discharge stings.

> > > Even a little rubbing means pain and stinging and I get red.

> > >

> > > I went back to this derm and now he said that I still have an

> > irritation and asked me why I did not seek medical help. He

> prescribed

> > a nappy rash cream for 1 month and I have to go back for followup.

> > > The gynecologist cannot see any irritation and thinks I have

> > vulvodynia and keeps sending me to the shrink to sort my " issues "

> > because he thinks they are triggered by some psychological trauma.

> > > I am going to another derm on Tuesday, but I am at a loss here.

> How

> > do I repair those damaged tissues?

> > > The thing is, in the morning they look really good but are still

> > painful. After using the towel or even rubbing with underwear they

> > turn red and sting.

> > > I am now trying cautiously the nappy rash cream on one corner of

> the

> > labia majora and on the other one the Cicalfate repair cream from

> Avene.

> > > I also have emu oil, that soothed me last night when I was

> stinging

> > kinda bad.

> > > My mom also thinks my vulva skin looks normal, but I know how it

> > used to look, and it is not normal.

> > >

> > >

> > > If you have any suggestions, I would sure like to hear them.

> > > Thanks a lot,

> > > Alina

> > >

> > >

> > >

> >

> _____________________________________________________________________

> _______________

> > > Be a better friend, newshound, and

> > > know-it-all with Yahoo! Mobile. Try it now.

> > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> > >

> >

>

[Guest guest]

Lulubuns, the area has healed partly after it's been a raw mess. Now I

can tolerate nappy rash creams, emu oil. In the morning my skin looks

really good, but then with friction it gets irritated.

The derm has prescribed nappy rash cream for a month. It has some

antiinflammatory extract from licorice root and an antibacterial.

It also has parabens. I will see a second derm on Tuesday and ask

about compounding.

Alina

> >

> > Hello,

> >

> > My name is Alina and here is my story.

> > I had an allergic vulvitis last year that was treated with cortisone

> cream, but I was left burning on the top of

> > my vulva and itching on my right labia. I calmed that down with some

> plant gel.

> > Then last December I got a yeast infection and I was told to use

> Nizoral cream for itching. The problem is I applied it on the labia

> majora for two weeks and it burned my tissue. I went to many doctors

> because the damage was not really visible, but I was burning and in

> pain where I had applied it.

> > Then I applied cortizone cream and was give some estrogen vaginal

> pessaries that burned like hell and I had to stop using them.

> > Then I went to another derm and he said I had contact dermatitis

> from all the creams and prescribed another cortizone cream that I

> applied for three weeks and this one really burned my tissues. I was

> all red and inflamed and burning even more. I went back and he claimed

> I had nothing serious and sent me home and said I should heal by

> myself in 3 months. Well 3 months are gone, the tissue looks much

> better, the burning is pretty much gone, but I am still in pain, I

> cannot stand underwear, my pubes sting, menstrual pads chafe,

> sometimes my discharge stings.

> > Even a little rubbing means pain and stinging and I get red.

> >

> > I went back to this derm and now he said that I still have an

> irritation and asked me why I did not seek medical help. He prescribed

> a nappy rash cream for 1 month and I have to go back for followup.

> > The gynecologist cannot see any irritation and thinks I have

> vulvodynia and keeps sending me to the shrink to sort my " issues "

> because he thinks they are triggered by some psychological trauma.

> > I am going to another derm on Tuesday, but I am at a loss here. How

> do I repair those damaged tissues?

> > The thing is, in the morning they look really good but are still

> painful. After using the towel or even rubbing with underwear they

> turn red and sting.

> > I am now trying cautiously the nappy rash cream on one corner of the

> labia majora and on the other one the Cicalfate repair cream from Avene.

> > I also have emu oil, that soothed me last night when I was stinging

> kinda bad.

> > My mom also thinks my vulva skin looks normal, but I know how it

> used to look, and it is not normal.

> >

> >

> > If you have any suggestions, I would sure like to hear them.

> > Thanks a lot,

> > Alina

> >

> >

> >

>

________________________________________________________________________________\

____

> > Be a better friend, newshound, and

> > know-it-all with Yahoo! Mobile. Try it now.

> http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

>

[Guest guest]

I used estrace cream-just a few times a week, a tiny dab and then I worked up to daily. I also use these: www.gladrags.com during my period-much less irritating than conventional products. Of course, PT has helped me a ton...the other thing that has helped a lot is coconut oil. Lindsey

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Lindsey,

Is your problem in the hairy areas (labia majora)? Mine is there

because of steroid overuse.

Thanks,

Alina

>

> I used estrace cream-just a few times a week, a tiny dab and then I

worked up to daily. I also use these:

> www.gladrags.com

> during my period-much less irritating than conventional products.

Of course, PT has helped me a ton...the other thing that has helped a

lot is coconut oil.

> Lindsey

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

[Guest guest]

No-just vestibule and a hypersensitive vulva.

> >

> > I used estrace cream-just a few times a week, a tiny dab and then

I

> worked up to daily. I also use these:

> > www.gladrags.com

> > during my period-much less irritating than conventional

products.

> Of course, PT has helped me a ton...the other thing that has

helped a

> lot is coconut oil.

> > Lindsey

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all with Yahoo!

Mobile.

> Try it now.

> >

>

[Guest guest]

-Hi, I was reading through some of the past posts and these stories

sound very very similiar to me. I have written before but these put

it exactly! Has anyone been able to actually clear up the raw

burning skin? I haven't been able to use anything on the skin

because it seems to make it worse. I am on 600mg Lyrica, 100mg

Tramadol and an antidepressant. I am scheduled for a nerve block on

June 6th. I am going to the doctors and doing exactly what they say,

but I still have this awful red, raw, burning skin. I can't even get

out of the house to walk at all. I have tried to do this, but I end

up in so much pain while out that I just

can't.

On the other hand I have two daughters, one who is going to the

Junior Pronm next week, who would like to have her mother to help. I

have a wonderful husband of twenty years who helps a lot, but

sometimes they need their mother. I am missing out on so much I just

want to cry all the time. This problem came up last November so

everyone has had to adjust. I just feel like I may never get help

and I don't know what to do next. I suppose this nerve block could

help, but nothing has so far. So I have a difficult time believing

it right now. I have written these rants before, but I have just had

it with the pain lately. thanks for listening to this all. Judy--

In VulvarDisorders , " lulubuns " wrote:

>

> Hi Alina, this sounds similar to my story, regarding allergic

> reactions to everything. I was allergic to antifungal creams,

> bacterial vaginosis creams, cortisone creams, and all the

alternative

> medicine stuff (like vaginal acidophilus, boric acid etc.).

Basically

> I was one big allergic mess all swollen up and burning for 7

months. I

> believe this is what caused my vulvar vestibulitis. All I can say

is:

> don't use anything on the tissue. Since you are allergic to

everything

> all the creams will just make it worse. I cannot use any topical

> medicine. Underwear is very irritating, I do not wear underwear

> (except when I have my period, then I have to suffer through the

> chafing). Also do not rub yourself dry after showering, either air

> dry or use a hair dryer set on low and hold it far away (this is

what

> I do). That is all I can suggest for now, please try not to put

> anything on the skin. If you think it's vulvodynia you need to find

a

> doctor who specializes in it, most gynecologists don't know anything

> about it! I hope you feel better.

>

> >

> > Hello,

> >

> > My name is Alina and here is my story.

> > I had an allergic vulvitis last year that was treated with

cortisone

> cream, but I was left burning on the top of

> > my vulva and itching on my right labia. I calmed that down with

some

> plant gel.

> > Then last December I got a yeast infection and I was told to use

> Nizoral cream for itching. The problem is I applied it on the labia

> majora for two weeks and it burned my tissue. I went to many doctors

> because the damage was not really visible, but I was burning and in

> pain where I had applied it.

> > Then I applied cortizone cream and was give some estrogen vaginal

> pessaries that burned like hell and I had to stop using them.

> > Then I went to another derm and he said I had contact dermatitis

> from all the creams and prescribed another cortizone cream that I

> applied for three weeks and this one really burned my tissues. I was

> all red and inflamed and burning even more. I went back and he

claimed

> I had nothing serious and sent me home and said I should heal by

> myself in 3 months. Well 3 months are gone, the tissue looks much

> better, the burning is pretty much gone, but I am still in pain, I

> cannot stand underwear, my pubes sting, menstrual pads chafe,

> sometimes my discharge stings.

> > Even a little rubbing means pain and stinging and I get red.

> >

> > I went back to this derm and now he said that I still have an

> irritation and asked me why I did not seek medical help. He

prescribed

> a nappy rash cream for 1 month and I have to go back for followup.

> > The gynecologist cannot see any irritation and thinks I have

> vulvodynia and keeps sending me to the shrink to sort my " issues "

> because he thinks they are triggered by some psychological trauma.

> > I am going to another derm on Tuesday, but I am at a loss here.

How

> do I repair those damaged tissues?

> > The thing is, in the morning they look really good but are still

> painful. After using the towel or even rubbing with underwear they

> turn red and sting.

> > I am now trying cautiously the nappy rash cream on one corner of

the

> labia majora and on the other one the Cicalfate repair cream from

Avene.

> > I also have emu oil, that soothed me last night when I was

stinging

> kinda bad.

> > My mom also thinks my vulva skin looks normal, but I know how it

> used to look, and it is not normal.

> >

> >

> > If you have any suggestions, I would sure like to hear them.

> > Thanks a lot,

> > Alina

> >

> >

> >

>

______________________________________________________________________

______________

> > Be a better friend, newshound, and

> > know-it-all with Yahoo! Mobile. Try it now.

> http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

>

[Guest guest]

Hey Judy, I'd say Dee has mentioned this, but Estrace (or Estradiol cream) is so good for the vulvar skin, when it is RAW and burning and red, and feels like crap!!! It has helped my skin so much...Also, what kind of a nerve block are you having? I had two rounds of bilateral Pudendal Nerve blocks (through the butt cheek) -- I've had a caudal epidural and two trigger point injections in my sacral area, and the last shot I had was an injection directly into my most painful area of the vestibule. Hang in there... ~Chelle

[Guest guest]

Estrace helped a lot. It was murder at first but I used it a few times a week and stuck in there. Now I'm much better. Lindsey

[Guest guest]

Hi Chelle,

I believe I am having the caudal nerve block. As I'm writing this I am

thinking wow I'm not even sure of the name of the block I am having!

This is how in charge of my care I am! I know the doctor said this was

through my low back. He also said if it didn't work there were two

more sites he would try. I am assuming those are the pudendal nerve

blocks. I have been blindly going in just asking for help. I know I

need to be more informed and in charge now.-Did the Caudal nerve block

help you any? Or the other two?

My general doctor did put me on prednisone Thursday and that seems to

be helping with inflammation some already. She also finally prescribed

hydrocodone for pain. Just being out of pain for awhile seems to be

helping me think more clearly now. That has been a relief. It sure has

helped my emotional state just not being in pain for awhile.

I am going to call my doctor on Tues. to ask her for the estridiol. I

want to get started on that as soon as possible. It seems through all

the posts I have read E in addition to T seem to be mentioned over and

over with excellent results for most people. So I want to start next

week. I am feeling alittle more positive after Dee's email and some of

the others that have found relief.

Thank you, Judy

-- In VulvarDisorders , Chelle wrote:

>

> Hey Judy,

>

> I'd say Dee has mentioned this, but Estrace (or Estradiol cream) is

so good for the vulvar skin, when it is RAW and burning and red, and

feels like crap!!! It has helped my skin so much...

>

> Also, what kind of a nerve block are you having? I had two rounds of

bilateral Pudendal Nerve blocks (through the butt cheek) -- I've had a

caudal epidural and two trigger point injections in my sacral area, and

the last shot I had was an injection directly into my most painful area

of the vestibule. Hang in there...

>

> ~Chelle

>

[Guest guest]

Hi Judy, the blocks (PN and Caudal) reduced the overall inflammation, but did not help with my worst symptom right now, which is pain with sitting. Don't let that affect you though...we are all so different and can have so many different things going on, we just don't know what will work until we try.The Estrogen cream has helped my vulvar skin the most...I think it's at least worth a try, but since you seem to be so sensitive, it might be best for you to have Estradiol compounded in a soothing base to remove the inert ingredients that 'might' bother your skin. Hang in there, Judy. ~Chelle

[Guest guest]

>

> Hi Judy, the blocks (PN and Caudal) reduced the overall inflammation,

but did not help with my worst symptom right now, which is pain with

sitting.

>

> Don't let that affect you though...we are all so different and can

have so many different things going on, we just don't know what will

work until we try.

>

> The Estrogen cream has helped my vulvar skin the most...I think it's

at least worth a try, but since you seem to be so sensitive, it might

be best for you to have Estradiol compounded in a soothing base to

remove the inert ingredients that 'might' bother your skin.

>

> Hang in there, Judy. ~Chelle

>

" PAIN WITH SITTING " !!!!!!!! I can relate to that symptom. I recently

drove - by myself - 1000 miles to and from Chicago. I had my special

pillow and my lidocaine and other elevation devices but I couldnt keep

up with it and I ended up miserable. I have conquered so much with my

Vulvodynia and really felt I could manage. It is discouraging and even

now, a week after my return, I am sitting as little as possible.