Jen/Vulvodynia-Neurontin

[Guest guest]

Hi Jen,

I don’t have a name for what kind I am diagnosed with –

it is a combination of Vulvodynia and Vestibulitis. I have pain upon contact and

pain all the time. Mine was caused by the over-firing of my pudendal nerve. My

pudendal nerve became compressed (first) then came the Vulvodynia and

Vestibulitis. Eventually if the nerve calms down, it should get better - although

the injections helped a great deal. I am having another set of them on Tuesday,

this week. The injections were a combination of a Lidocaine and a steroid. The

reason behind the injections is that if the area calms down, then the pain

signals will not come back. And, I was doubtful, but they really helped. They

were injected in the area all around the vagina, and another set of injections

should further help the pain.

Six months ago I had a Vestibulectomy – it was wonderful –

the absolute best minor surgery I have ever had. I had no pain, nothing at all

in that area, everything was completely cured, but unfortunately after three

months all the nerve endings grew back. I was devastated as I had been absolutely

cured and without any pain anywhere – for three whole months! That was

the worst part – after having this miserable condition for years, and

then having it gone for three wonderful months, and then for it to return –

what a letdown!. There is a 20 percent failure rate, but my doctor still thinks

it is going to reverse itself and it will be gone again as soon as my nerves

calm down. Unfortunately (and I asked), I can’t have another

vestibulectomy, because it would cause too much scar tissue.

But for most women, who have Vestibulitis, I would highly

recommend having a Vestibulectomy. It is a simple surgery, with very little

pain afterwards – the stitches heal within a ten days. The aftercare

following surgery is simple, just use a rinsing bottle following urination –

and that’s it – after a ten days everything is healed, and the best

part is there is no pain! I don’t know why women resist having this

surgery now, as it is so simple, but of course it is so important to find a

doctor who has performed many of these surgeries. The surgery is not what it was

ten years ago – it is not a mutilation of your female anatomy –

believe me, you cannot even tell where it was done, and any male partner will

never be able to tell you had anything done. And for most women it will cure

your pain forever.

nne

>

nne, Thank you for the infornation??? what kind of injections

are you recieving???? and what type of vulvodynia are you diagnosed

with??

Thank you

Jen

[Guest guest]

>Hi nne,

Thank you for responding, I also been diagnosed with both Vulvodnia

and Vestibulitis, but I have no idea what started mine, I first had

Vestibule problems now it hurts all over, even underwear hurts I just

started having pain on my labia majora which really makes it

diffucult to do much, clothes feel like sandpaper.

I will have to ask my doctors about the injections, she has mention

cortisone injections before , I do not know if that is the same thing

or not.

So after you had you surgery all your pain went away even the pain

outside of the vestibule??

Sorry for all the questions, but I have an appointment on the 28th

this month and really want something done this time..

Thnak you so very much

Jen

> Hi Jen,

>

> I don't have a name for what kind I am diagnosed with - it is a

combination

> of Vulvodynia and Vestibulitis. I have pain upon contact and pain

all the

> time. Mine was caused by the over-firing of my pudendal nerve. My

pudendal

> nerve became compressed (first) then came the Vulvodynia and

Vestibulitis.

> Eventually if the nerve calms down, it should get better - although

the

> injections helped a great deal. I am having another set of them on

Tuesday,

> this week. The injections were a combination of a Lidocaine and a

steroid.

> The reason behind the injections is that if the area calms down,

then the

> pain signals will not come back. And, I was doubtful, but they

really

> helped. They were injected in the area all around the vagina, and

another

> set of injections should further help the pain.

>

> Six months ago I had a Vestibulectomy - it was wonderful - the

absolute best

> minor surgery I have ever had. I had no pain, nothing at all in

that area,

> everything was completely cured, but unfortunately after three

months all

> the nerve endings grew back. I was devastated as I had been

absolutely cured

> and without any pain anywhere - for three whole months! That was

the worst

> part - after having this miserable condition for years, and then

having it

> gone for three wonderful months, and then for it to return - what a

> letdown!. There is a 20 percent failure rate, but my doctor still

thinks it

> is going to reverse itself and it will be gone again as soon as my

nerves

> calm down. Unfortunately (and I asked), I can't have another

vestibulectomy,

> because it would cause too much scar tissue.

>

> But for most women, who have Vestibulitis, I would highly recommend

having a

> Vestibulectomy. It is a simple surgery, with very little pain

afterwards -

> the stitches heal within a ten days. The aftercare following

surgery is

> simple, just use a rinsing bottle following urination - and that's

it -

> after a ten days everything is healed, and the best part is there

is no

> pain! I don't know why women resist having this surgery now, as it

is so

> simple, but of course it is so important to find a doctor who has

performed

> many of these surgeries. The surgery is not what it was ten years

ago - it

> is not a mutilation of your female anatomy - believe me, you cannot

even

> tell where it was done, and any male partner will never be able to

tell you

> had anything done. And for most women it will cure your pain

forever.

>

> nne

>

>

>

>

> >

> nne, Thank you for the infornation??? what kind of injections

> are you recieving???? and what type of vulvodynia are you diagnosed

> with??

> Thank you

> Jen

>