JEN/ Vulvodynia

[Guest guest]

Jen, I had a severe reaction to Lyrica, so I can’t take

that med. I was taking medication for pudendal neuropathy.The shots I had were

a form of cortisone and ldiocaine. Did you ever consider you might have

Vestubilitis? If so a vestibulectomy might be the answer. I swear by that

surgery. I had it done and I was completely cured for three months. But all my

nerve endings grew back, as my pain is caused by the pudendal nerve. As soon as

the nerve calms down (it is inflamed by the pudendal surgery I had), my doctor

thinks the pain will go away. But I don’t want to wait, which is why I

had the shots . The shots worked very well also. Truthfully, I don’t

believe any of those medications work very well – but everybody is

different, so I don’t like to tell people not to try. The shots have been

the best for me.

nne

From: VulvarDisorders

[mailto:VulvarDisorders ] On Behalf Of jen9952

Sent: Sunday, May 11, 2008 9:09 AM

To: VulvarDisorders

Subject: Re: Vulvodynia

nne, I had lichen simplex chronicus that

is a form of

dermatitis, I do use Clobetasol 2x a week but the Lichen simplex was

in one tiny area, now the pain is all over even on the labia majora,

I guess it could be caused by the lichen simplex, but the doctor

seems to think it is nerve damage, I have heard that Lyrica works

better than Neorontin but I am not sure, have you ever tried

Lyrica??? and I would really like to now what kind of shots you

recieve??? is it cortisone?? I will try anything to get this under

control.....

Thnak you so very much

Jen

> >

> > Jen, many of us have cried many tears...but please know that

there

> is HOPE!

> >

> > What are your symptoms and what have you used for help besides

> Ice and pain meds? I encourage you to look through our files, links

> and database on the homepage when you feel up to it.

> >

> > Hang in there and Welcome to the group! ~Chelle

> >

> Hi Chelle, Thanks for responding, I have been taking Neurontin I am

> finally up to a 1000 mg for about 2 days now with no improvement, I

> am not sure how long before you see any improvement,I also tried

> premarin cream but seemed to make things worst so I stopped... my

> symptoms are mostly burning in the vestibule area but are now

> spreading out to my outer labia and sometime my ananl area, so I am

> convinced I have some sort of nerve damgage, I was diagnosed with

> Lichen simplex chronicus 2 years ago but that has pretty much under

> control but I think that and that recurring yeast infections that

use

> to have before I changed my diet caused my vulvodynia, I jsut want

> some improvement right now it is even hard to sit without pain it

is

> very discouraging........Thank you so much , Jen

>