Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Yikes! – Good luck to you Marcia – you are very fortunate to have this doctor so close to you so that you can have it done. I had pudendal decompression surgery, and that didn’t scare me, when everybody else couldn’t believe that I would take the chance in having it done. For some reason, in my heart, I felt it would be OK. But just reading the details on the surgery that Dr. Baggish performs really makes me nervous. “Dr. Baggish cautioned that excision of the Bartholin's glands is a surgically challenging procedure that can take more than an hour per gland and requires intraoperative visualization with a microscope to ensure accuracy”. Wow! But you have to have faith in the doctor and the procedure, and if you feel it will turn out OK, then it will. And as you said, you would discuss it with him thoroughly before you had it done. It would be wonderful if it worked and you were back on your feet in a short amount of time – for me that would be a miracle. Please keep us informed and let us know if you decide to go ahead with it and the date, so that I can put you in my prayers the day of the surgery. nne From: VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Marcia Gallas Sent: Friday, May 16, 2008 5:32 PM To: VulvarDisorders Subject: Re: Marcia/Bartholin's Glands Removal Hi nne and Dee: Thanks for your input. I thought you (and everyone) might be interested in the article below. Dr. Baggish pioneered this surgery and he would be performing the surgery on me: PALM BEACH, FLA. -- Up to 97% of patients with vulvar vestibulitis can become totally pain free after surgical excision of the Bartholin's glands, said Dr. Baggish, one of the pioneers of this technique. " It's my belief that this problem, which I am now seeing in almost epidemic proportions in the United States, stems from dysfunctional mucous glands in the vulva. You can pinpoint this in virtually every case of vestibulitis, and the Bartholin's glands seem to be the most frequently affected, " Dr. Baggish noted during an interview. Other vulvar glands that are less often involved include Skene's, as well as the paraurethral glands, he said at an ob.gyn. meeting sponsored by the University of Chicago. A more commonly used surgery involves the simple excision of the hymen and perihymenal tissues or photocoagulation of the vestibular dermis and epidermis. The problem with simple excision is that it simply excises the glandular ducts, leaving the glands themselves still in place. About 45% of patients report good results with the simple vestibular excision technique, said Dr. Baggish, who is professor of ob.gyn. at the University of Cincinnati. " Results are objectively better with removing the gland, rather than just excising the skin. It's not a skin-deep problem. If you're going to take the duct of the gland, what happens to the gland? In some cases it will atrophy, " he said at the meeting. In a variation of the more common technique, Dr. Baggish performs an excision of the vestibule and excision of the Bartholin's glands and sometimes other glands, as well as advancement of the vagina. This treatment provides the most consistent and long-lasting relief, compared with any other treatments for vulvar vestibulitis. In a series of 250 patients with vulvar vestibulitis whom Dr. Baggish has treated, a total of 95%-97% have had complete relief of pain with intercourse, he said. Patients with vulvar vestibulitis are typically nulliparous (66%), almost exclusively white (96.5%), and invariably have a long history of recurrent vaginal fungal infections. The fungal etiology is seldom documented by culture evidence. Vulvar vestibulitis usually presents abruptly with burning pain that is limited to the vestibule and is instigated by such things as sexual intercourse, tampon insertion, wearing constricting pants, and bicycle or horseback riding. " Gynecologists need to be aware this is the typical way this syndrome starts--they shouldn't just dismiss this as recurrent fungal infections. The simplest thing is to examine the patient, " said Dr. Baggish, who is also chair of obstetrics and gynecology at Good Samaritan Hospital in Cincinnati. The condition is easily recognized. " The patient is red over the Bartholin's ducts, and where the gland is located, a light cotton swab touch will elicit an unusual response, pain way out of proportion to te touch. In addition, even slight pressure such as spreading the labia will cause discomfort, and since the skin remains chronically inflamed, many of the patients will have skin that splits and tears very easily, " he said. The etiology of vulvar vestibulitis remains unknown, but Dr. Baggish said that he believes it is caused by a chemical sensitivity that may be induced by a variety of agents, including contact with topical anrifungals, iodine preparatory solutions, topical or laser treatments for human papillomavirus, lubricating agents, or chlorine agents that are present in feminine hygiene products or swimming pools. He performs surgery only on those patients who have undergone a 3- to 4-month trial of conservative therapy, although he noted that only 15% of his patients have had relief of symptoms with this treatment. Conservative treatment involves no topical applications, abstention from intercourse for a total of 6 weeks, postvoid irrigation with distilled water to negate the possible irritation of high urinary oxylate, and low-dose Elavil to interrupt pain signals. Dr. Baggish cautioned that excision of the Bartholin's glands is a surgically challenging procedure that can take more than an hour per gland and requires intraoperative visualization with a microscope to ensure accuracy. He suggests that physicians who are not familiar with this technique should consider referring their patients to a specialist to avoid potential serious complications, such as significant blood loss, wound infection, entry into the urethra or rectum, or scar formation. COPYRIGHT 2001 International Medical News Group COPYRIGHT 2002 Gale Group ******************************* I will certainly discuss the procedure THOROUGHLY with him before I consider it. I actually know someone who had one of her glands removed and said she was back to work in 2 days. I think she is an exception though! She didn't have a vestibulectomy though, she had a cyst on the gland. I am trying to hold off til the end of summer. I will keep everyone informed. Hugs to all! Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 HI Marsha... awhhh Hon how confusing all this must be as to whether or not to do that kind of a surgery. *sigh* I can imagine how up in the air I'd feel if I were in pain and nothing has helped and a doctor almost guarantees me that surgery will work that I'd be considering it as well. It is more involved if the bartholin glands are fully removed as well, I can see that. Just curious, do you have any signs of the Bartholin glands being infected or swollen at all right now? Forgive me hon I forgot if you told us. It's just my opinion here but I have to say that right now after reading that article I sure can't agree with his statement where he says that in ''virtually every case of vestibulitis'' it stems from dysfunctional mucus glands and most often it's the Bartholin glands. I'd have to see a lot more research to believe that's true in 'virtually every case'? I'm sorry hon I simply can't see that. I'm not saying he's not a good doctor, I've no idea, and he's up there in title from the little I've gathered, and I'm sure it's what he truly believes so it's just my uneducated opinion. If it were me? I think I'd ask for him to put me in touch with at least 5 previous patients that I could talk to to see their experiences. If it's needed of course it makes sense, if they're diseased yes... but if you remove the glands and the tissue over them.. I'm thinking then what is left 'to' hurt? So it's easy to claim a high success rate. From that point of view it makes sense. But to ''me'' it's like cutting off your finger, so of course your finger no longer hurts, (but it's because it's gone). If that is the answer to all this V pain with vestibulitis, my goodness I'd tell everyone, ''don't waste your time trying anything else just go immediately and get the surgery.'' I did see a good article that he wrote about post surgery & the unsuspected nerve damage and the things that can go wrong afterwards...even mentions those retractors or the position of the body during the surgery, it's at: http://findarticles.com/p/articles/mi_m0CYD/is_18_36/ai_79586717?tag=rel.res1 That ''Trendelenburg position' he mentions in there as suggested to 'not' use, means where the patient is flat on their back with the feet raised higher than the head during the surgery and there is a 'gait' also called the Trendelenburg 'gait' one can be left with as a result from surgery done with that position. It's definitely all very interesting. If you find out anything else hon be sure to let us know. He may just have something there but like I said it seems to 'me' that the removal of the bartholin glands in his vestibulitis patients as a cure to be extreme. (but I could be wrong) I can imagine the questions I'd have, but just know we're behind you 100% whatever the decision is. BIG hugs Dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2008 Report Share Posted May 18, 2008 Why would the doctor want to remove the glands in addition to doing the vestibulectomy? Did he/she explain to you the point of removing the glands? I am only asking because I have had vulvar vestibulitis for 7 years, recently had a successful partial vestibulectomy that completely took away my pain with intercourse, and never once has my doctor mentioned the Bartholin's Glands. They were not removed during my surgery, and we never discussed them. I am sure that I'm partial, but my doc is great, knowledgeable, and extremely thorough, so I think he would have mentioned them to me. For a regular vestibulectomy, the recovery time is about 2-3 weeks out of work (in my experience), with additional discomfort for about 6-8 weeks post surgery, but it's not horrible. Most of it can be controlled with advil, ice, and if you need, percocet or another narcotic, which i took for about a week or so after the procedure. it is well worth the discomfort if your doctor thinks you are a good candidate! amy:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2008 Report Share Posted May 19, 2008 Hi Amy, Dee, nne, and all: Thanks to everyone for their input. I haven't personally discussed this procedure with my doctor since I have only seen him twice and not for over a year! It's just that in doing my research it SEEMS that this is the procedure of vestibulectomy that he uses. The article I posted IS 7 years old. Perhaps he has changed his philosophy and doesn't just shotgun ALL vestibulectomies to include the removal of the Bartholin's Glands. Having said that however, it seems to me that he is pretty sure of himself in his belief that this procedure is the best way to a pain- free outcome. Maybe when I am ready to discuss the procedure with him I will find out otherwise. I was just throwing this out there to all of you to find out if any of you had had this particular procedure. I agree that it IS a radical and MAJOR surgical procedure. I sure wouldn't want to have anything " extra " done if it wasn't absolutely necessary. I am grateful to all of you for your opinions and for " listening " . I must admit that it is hard not to think of all of this constantly. I am sitting here in pain and so tired of it after 2 years. I know some of you have gone through it much longer. I don't think I can wait TOO much longer without having surgery since I've tried and failed with all of the medications. I still have to wait until at least the end of the summer due to obligations and responsibilities. You know how that goes. Oh and Dee, you asked if I was having any swelling or issues with the glands and I would have to say, " Not that I know of. " My vestibulitis is the result of a traumatic injury so I don't know if the glands are at all a contributing factor. I will DEFINITELY keep all posted as to when I go for a consultation and what the doctor has to say. Needless to say, I will tell you when the surgery will be. I will be needing everyones' prayers at tha point. Hugs to all. Marcia Quote Link to comment Share on other sites More sharing options...
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