Wanting to start a family

[Guest guest]

I have been living with UC, and PSC for almost 15 years. I haven't

had a transplant, and am pretty much in remission. I have been doing

well for the past 4 or 5 years. I am currently taking Asacol,

Actigall, Flagyl (going on 6 years), folic acid, multi vitamin, and

prednisone. I am only going to be on the prednisone for 6 weeks, to

clear a little irritation they saw in my last colonoscopy. What my

husband and I want to know is can I safely have a baby, on these

meds. My liver doctor has said I shouldn't be on the Flagyl while

pregnant, and I have read the same thing. But my OB said I would be

fine taking it and the prednisone. She even said flagyl was ok for

long term use. My GI dr said he has never heard of anyone being on it

as long as I have (My last GI Dr prescribed it for me). Who should I

trust? Have any of you been on these meds while pregnant? I would

really appreciate any info you can give me. Thanks!!!

[Guest guest]

While unusual to be on flagyl continuously that long, it's not unheard of. I was on a continuous dose of flagyl for about three years to treat chronic pouchitis. It seemed to be the only thing that would settle down my digestive tract. I started exhibiting signs of neuropathy, however, so I talked to my doctor and we agreed to discontinue its use. I'd rather deal with chronic diarrhea than lose the use of my arms! So, now I use it only as needed (several times a year when the symptoms become unbearable) and alternate it with cipro. I understand that long-term use of antibiotics can lessen their effectiveness. For me, using the drugs only when things are REALLY bad has increased their effectiveness; I get relief within a day of beginning a new course. And it's a glorious relief at that! I was only dealing with UC when I had my babies. I discontinued use of most of my meds at the

time, and I actually never felt better than I did during my pregnancies. My GI doc told me to beware of flare-up immediately post-partum, but it didn't happen. Do your research to find out what passes through the placenta, and what drugs might be contraindicated for breastfeeding. We're incredibly fortunate to have access to lots of information these days. Good luck to you! Debbie in Seattle UC 1972, j-pouch 1991, chronic pouchitis, PSC confirmed 2005

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