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My boyfriend and i were fooling around last night...and for a second

just for a second his penis ended up jabbing me at the entrance of my

vagina and it hurt so much tears immediately sprang to my eyes. I

think i'd feel better about this whole thing if even the slightest

touch at the vestibule did not make me want to scream out in pain. :-/

I would use lidocaine but it burns so much. Also is it even available

over the counter/

Has anyone found relief by doing self physical therapy? Using

dialators to stretch out the muscles and moving up dilators as the

muscles get more stretched out? I'm also thinking of trying emu oil.

My doctor keeps telling me to use the estrogen lidocaine cream but i

can't seem to make myself do it. I also haven't been physical therapy

since February because i got so depressed about the whole thing. I

guess i just need validation that this is something that can get better.

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When I read your post, I felt compelled to reply because I can relate to what your going through. My advice is to go back to Physical Therapy, do self PT on yourself daily (use vaginal dilators..I use them myself) and do exercises such as the pelvic drop. I swear by Emu oil (www.laidinmt.com where I buy it) and I like it so much I had the pharmacist at Bellevue compound it in Estradiol. I use Emu oil as a lubricant and it doesn't irritate me at all. I have a script for Lidocaine for the use of painful intercourse but I haven't built up the courage to try it yet. The area of pain for me is the 6 o'clock area, my hymen is very sensitive. I have vulvar vestibulitis syndrome, dyspaurenia, pelvic floor dysfunction and atopic dermatitis (eczema). I have pain on contact, which makes intercourse painful and discomfortable to say the least. What is your diagnosis, symptoms, and what meds/treatments have you tried or had success with?

**

Stay Positive and Open-Minded

Ouch

My boyfriend and i were fooling around last night...and for a second

just for a second his penis ended up jabbing me at the entrance of my

vagina and it hurt so much tears immediately sprang to my eyes. I

think i'd feel better about this whole thing if even the slightest

touch at the vestibule did not make me want to scream out in pain. :-/

I would use lidocaine but it burns so much. Also is it even available

over the counter/

Has anyone found relief by doing self physical therapy? Using

dialators to stretch out the muscles and moving up dilators as the

muscles get more stretched out? I'm also thinking of trying emu oil.

My doctor keeps telling me to use the estrogen lidocaine cream but i

can't seem to make myself do it. I also haven't been physical therapy

since February because i got so depressed about the whole thing. I

guess i just need validation that this is something that can get better.

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HI Starry...;)

If "I" were you, I'd definitely be listening to my doctor with him telling you to use the Estrace estrogen cream topically. That is what restores the health to that skin and gives it back it's tone and resiliency, it's stretchability so to speak. It's food & nourishment only for that part of your body and rarely systemic unless it's overused in case you were concerned about that or I'm wondering why you've been reluctant.

I sure feel for you though and have had that happen myself, it's like trying to break a damn when it doesn't hit just right it's like hitting your head on a brick wall as you go thru the ceiling. *Ouch*is right! Of course I've heard him scream too when that happens and he thought he broke his willy. LOL

Hugs hon and hope you're feeling better today.

Dee ;)

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Starry,

Are you still wearing underware? That was what caused my

vestibulitis. Within a week of not wearing underware the vestibule

was completely painfree. I know that is not everyone's solution, but

it was the nerves being compressed for me and once that was taken

away, it was fine. I have to do skin rolling at the perineum and

hymen before sex as those are still very tight and painful from my

daughter's birth, but once my husband does the skin rolling, I am

fine for sex. I went to Rhonda K. 3 times and am just doing

everything at home. I have/had no insurance and so we could only

afford 3 visits out of pocket, but it was so worth it and now our

lives are total different.

I wish that one day you will have that pleasure!

in IL

>

> My boyfriend and i were fooling around last night...and for a second

> just for a second his penis ended up jabbing me at the entrance of

my

> vagina and it hurt so much tears immediately sprang to my eyes. I

> think i'd feel better about this whole thing if even the slightest

> touch at the vestibule did not make me want to scream out in

pain. :-/

> I would use lidocaine but it burns so much. Also is it even

available

> over the counter/

>

> Has anyone found relief by doing self physical therapy? Using

> dialators to stretch out the muscles and moving up dilators as the

> muscles get more stretched out? I'm also thinking of trying emu oil.

>

> My doctor keeps telling me to use the estrogen lidocaine cream but i

> can't seem to make myself do it. I also haven't been physical

therapy

> since February because i got so depressed about the whole thing. I

> guess i just need validation that this is something that can get

better.

>

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Physical therapy and dilators did make me better. It can work but it

takes a long time and you have to work at it, you have to do it at home

and not just with the PT. Lidocaine has to be Rx'ed, I think...

Melinda

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Hi. Before my surgery I could not put ANY chemical on my vestibule. I

tried Estrace and it burned for 3 days. Burned like THROUGH THE ROOF.

I could not tolerate lidocaine in any way shape or form.

Chemicals were the worst. I had these terrible nerve endings.

I understand completely. I don't know what to tell you to do, except

this: don't force yourself to put any chemicals on those painful spots

no matter what anyone says.

I know what you are going through.

>

> I would use lidocaine but it burns so much. Also is it even available

> over the counter/

>

> Has anyone found relief by doing self physical therapy? Using

> dialators to stretch out the muscles and moving up dilators as the

> muscles get more stretched out? I'm also thinking of trying emu oil.

>

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Hi ,

Thank you for the emu oil recommendation. My diagnosis is vulvar

vestibulitis, vaginismus, and vaginal pruitis (i'm not sure if i'm

spelling that right). I have dealt with itching and general irritation

of the external vulva for years. Currently i am applying

hydrocortisone cream at night and taking doxapin at night to help with

the itching and to break the itch scratch cycle. These both help but i

have trouble keeing up with it.

My vestubilitis pain is at the bottom portion of the vestibule towards

the left side. I am currently prescribed a lidocaine/estrogen compound

for it but i have been having trouble keeping up with this as well. I

was also told to go to PT but i haven't gone since february so now i

have to get another referral.

Thank you for your reply!

>

>

> When I read your post, I felt compelled to reply because I can

relate to what your going through. My advice is to go back to Physical

Therapy, do self PT on yourself daily (use vaginal dilators..I use

them myself) and do exercises such as the pelvic drop. I swear by Emu

oil (www.laidinmt.com where I buy it)?and I like it so much I had the

pharmacist at Bellevue compound it in Estradiol. I use Emu oil as a

lubricant and it doesn't irritate me at all. I have a script for

Lidocaine for the use of painful intercourse but I

haven't?built?up?the courage to try it yet. The area of pain for me is

the 6 o'clock area, my hymen is very sensitive. I have vulvar

vestibulitis syndrome,?dyspaurenia, pelvic floor dysfunction and

atopic?dermatitis (eczema). I have pain on contact, which makes

intercourse painful and discomfortable to say the least. What is your

diagnosis, symptoms, and what meds/treatments have you tried or had

success with?

>

> **

> Stay Positive and Open-Minded

>

>

> Ouch

>

>

>

>

>

>

> My boyfriend and i were fooling around last night...and for a second

> just for a second his penis ended up jabbing me at the entrance of my

> vagina and it hurt so much tears immediately sprang to my eyes. I

> think i'd feel better about this whole thing if even the slightest

> touch at the vestibule did not make me want to scream out in pain. :-/

> I would use lidocaine but it burns so much. Also is it even available

> over the counter/

>

> Has anyone found relief by doing self physical therapy? Using

> dialators to stretch out the muscles and moving up dilators as the

> muscles get more stretched out? I'm also thinking of trying emu oil.

>

> My doctor keeps telling me to use the estrogen lidocaine cream but i

> can't seem to make myself do it. I also haven't been physical therapy

> since February because i got so depressed about the whole thing. I

> guess i just need validation that this is something that can get better.

>

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Hi Dee,

You are always so helpful in your replies, thank you. I haven't been

reluctant to use the estrogen compound as much as i've been

unmotivated. I KNOW the way to get better is to continue with

treatment but i've just been so depressed about it i can't seem to

motivate myself to do any of it. I am going to attempt using it again

though because i definitely remember the pain diminishing slightly

when i used it very regularly.

I don't understand why that area hurt so much though when that

happened last night because usually...i'm aware that something is

about to try and enter me and i feel that i tense up my muscles more

which leads to more pain. But this was still just as painful as it

would have been had i known. :-/

I am feeling better today, thank you.

-- In VulvarDisorders , " Dee Troll " wrote:

>

> HI Starry...;)

>

> If " I " were you, I'd definitely be listening to my doctor with him

telling you to use the Estrace estrogen cream topically. That is what

restores the health to that skin and gives it back it's tone and

resiliency, it's stretchability so to speak. It's food & nourishment

only for that part of your body and rarely systemic unless it's

overused in case you were concerned about that or I'm wondering why

you've been reluctant.

>

> I sure feel for you though and have had that happen myself, it's

like trying to break a damn when it doesn't hit just right it's like

hitting your head on a brick wall as you go thru the ceiling. *Ouch*is

right! Of course I've heard him scream too when that happens and he

thought he broke his willy. LOL

>

> Hugs hon and hope you're feeling better today.

> Dee ;)

>

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Thank you that helps a lot to hear.

>

> Physical therapy and dilators did make me better. It can work but it

> takes a long time and you have to work at it, you have to do it at home

> and not just with the PT. Lidocaine has to be Rx'ed, I think...

> Melinda

>

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Guest guest

That's terrible, i've never heard of estrace burning for three days

straight. That just sounds absolutely awful. What surgery did you have?

> >

>

> > I would use lidocaine but it burns so much. Also is it even available

> > over the counter/

> >

> > Has anyone found relief by doing self physical therapy? Using

> > dialators to stretch out the muscles and moving up dilators as the

> > muscles get more stretched out? I'm also thinking of trying emu oil.

> >

>

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Guest guest

I had " Vestibulectomy " . My surgeon removed a piece of skin in the

shape of a doughnut and then patched it together with less sensitive

skin. Now I can use Estrace.

The thing is, if something causes pain, it just keeps on hurting

because I have issues with my nerves and muscles, that the pain keeps

on going for days.

>

> That's terrible, i've never heard of estrace burning for three days

> straight. That just sounds absolutely awful. What surgery did you have?

>

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Yes, Lidocaine has to be prescribed – get the 5%, the 3%

doesn’t help at all. Right now I am trying to get some Elma cream. It is

sold in England and Canada over the counter, but I have been looking online for

it and haven’t had any luck. If anyone has purchased it, I would

appreciate it if they emailed the details on where they got it. Elma cream

completely deadens the area where it is applied – so much so that you

have to be careful not even to rub yourself too much as you won’t feel a

thing and could cause damage.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of starrydust182

Sent: Wednesday, May 21, 2008 2:12 AM

To: VulvarDisorders

Subject: Re: Ouch

Thank you that helps a lot to hear.

>

> Physical therapy and dilators did make me better. It can work but it

> takes a long time and you have to work at it, you have to do it at home

> and not just with the PT. Lidocaine has to be Rx'ed, I think...

> Melinda

>

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Guest guest

Your very welcome! Hope you have a pain free day.

Ouch

>

>

>

>

>

>

> My boyfriend and i were fooling around last night...and for a second

> just for a second his penis ended up jabbing me at the entrance of my

> vagina and it hurt so much tears immediately sprang to my eyes. I

> think i'd feel better about this whole thing if even the slightest

> touch at the vestibule did not make me want to scream out in pain. :-/

> I would use lidocaine but it burns so much. Also is it even available

> over the counter/

>

> Has anyone found relief by doing self physical therapy? Using

> dialators to stretch out the muscles and moving up dilators as the

> muscles get more stretched out? I'm also thinking of trying emu oil.

>

> My doctor keeps telling me to use the estrogen lidocaine cream but i

> can't seem to make myself do it. I also haven't been physical therapy

> since February because i got so depressed about the whole thing. I

> guess i just need validation that this is something that can get better.

>

Stay informed, get connected and more with AOL on your phone.

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I think the reason you haven't found Elma cream is because it is

actually called Emla cream. I haven't used it personally but I know

they can use it on kids before starting an IV or giving shots, you

just have to let it absorb for about 20 min. I just looked it up and

the first thing that came up was www.westcoastskin.com for

$31.50/tube. Hope that helps.

> >

> > Physical therapy and dilators did make me better. It can work but it

> > takes a long time and you have to work at it, you have to do it at

home

> > and not just with the PT. Lidocaine has to be Rx'ed, I think...

> > Melinda

> >

>

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I was to my doc yesterday who finally prescribed testosterone after I

heard it from several of you for so long. She said the base of the

compound is very important. She seemed to think that a vaseline base

is most tolerable but many of these treatments come with an alcohol

base which will irritate us for sure. She ordered 2% testosterone and

said if it was too strong (i.e. started giving me dirty dreams as one

of her 75yr old patients complained of, LOL), I could dilute it in

more vaseline. Just a thought.

> >

>

> > I would use lidocaine but it burns so much. Also is it even available

> > over the counter/

> >

> > Has anyone found relief by doing self physical therapy? Using

> > dialators to stretch out the muscles and moving up dilators as the

> > muscles get more stretched out? I'm also thinking of trying emu oil.

> >

>

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Hi, I ordered some today from them -A 30 gram

tube, with shipping (first class) cost $36.00. This is coming from Canada, but

does not require a prescription. Their telephone number is 1-

nne

From: VulvarDisorders

[mailto:VulvarDisorders ] On Behalf Of snailsgal

Sent: Wednesday, May 21, 2008 8:37 PM

To: VulvarDisorders

Subject: Re: Ouch

I think the reason you haven't found Elma cream

is because it is

actually called Emla cream. I haven't used it personally but I know

they can use it on kids before starting an IV or giving shots, you

just have to let it absorb for about 20 min. I just looked it up and

the first thing that came up was www.westcoastskin.com for

$31.50/tube. Hope that helps.

> >

> > Physical therapy and dilators did make me better. It can work but it

> > takes a long time and you have to work at it, you have to do it at

home

> > and not just with the PT. Lidocaine has to be Rx'ed, I think...

> > Melinda

> >

>

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This is also available by prescription from your doctor. If I

had waited until I saw Dr. Boardman next month it would have cost me $10 – but I

couldn’t wait that long.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of millburytimes

Sent: Wednesday, May 21, 2008 9:32 PM

To: VulvarDisorders

Subject: RE: Re: Ouch

Hi, I

ordered some today from them -A 30 gram tube, with shipping (first class) cost

$36.00. This is coming from Canada, but does not require a prescription. Their

telephone number is 1-

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of snailsgal

Sent: Wednesday, May 21, 2008 8:37 PM

To: VulvarDisorders

Subject: Re: Ouch

I think the reason you haven't found Elma cream is because it is

actually called Emla cream. I haven't used it personally but I know

they can use it on kids before starting an IV or giving shots, you

just have to let it absorb for about 20 min. I just looked it up and

the first thing that came up was www.westcoastskin.com for

$31.50/tube. Hope that helps.

> >

> > Physical therapy and dilators did make me better. It can work but it

> > takes a long time and you have to work at it, you have to do it at

home

> > and not just with the PT. Lidocaine has to be Rx'ed, I think...

> > Melinda

> >

>

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