Update from Laurie and Kelley in Arkansas

[Guest guest]

A few months ago I posted here that my husband (Kelley ) was

turned down for a tx from the Little Rock VA. I was extremely sad and

many of you sent me comforting notes. I just wanted to share our latest

adventures because it is some what encouraging.. The VA has continued

our monthly appointments and is taking good care of our needs. Kelley

has actually improved a bit...His Meld score has dropped from 21 to 16

and today was 14. The doctors have been tweaking his bile duct to drain

better. He has gained some weight and his skin color is great. He is

puttering around his work shop some.

Today the Docs succesfully ballooned Kelley's entire bile duct and it

is totally wide open now.(no more strictures) I have the xray, but I

dont know how to post it for you to see. Everyone in the ERCP room was

patting each other on the back.They know Kelley is a miracle to even be

alive. Monday he will be 60.

We are trying to go thru the University of Arkansas Liver Transplant

Center now, but the fact that Kelley is on Plavix and has 5 heart stents

make the changes very slim for him to be listed any where.

Here is a quote from Kelley. " So far I have never felt like I was dying "

I ask him to let me know when he knows..

Thanks to all of you for this support group

Laurie

[Guest guest]

I am from Arkansas(Pine Bluff) as well. I was diagnoised with PSC in

Feb 2006. I am 46. Sorry to here about your husband but I am glad that

he is doing better. I am currently seeing a hepatologist in Memphis.

God Bless,

Clint