Dee/ Difference between Vulvadynia and Vestibulitia

[Guest guest]

Dee, I was wondering what you felt the difference is between

Vulvodynia and Vestibulitis?

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Dee Troll

Sent: Friday, May 23, 2008 5:19 PM

To: VulvarDisorders

Subject: Atropine & Traumeel Info

<What

is the Atropine and Traumeel for exactly? Kristy>

HI Kristy...

Here's a recipe from Pete (sent by Chelle before) and

it has the Atropine in it.

0.25% Atropine Sulfate USP, 10% Ketoconazole USP and 10% Biotin

USP as a combination in a cocoa butter base vaginal suppository – insert one to

two suppositories vaginally per day x 14 days, then repeat one month later.

Using the Atrophine helps to decrease any possible

hyper-irritability of the pelvic floor muscles which can lead to painful

spasms.

Here's another bit of info. and I see that Petes recipe

above is the same one that worked for this woman.

Case Report of Treatment Resistant Vulvodynia

Abstract

''Vulvodynia is a painful vulvar

medical condition with many proposed etiologies and treatments. We describe two

compounded pharmaceutical treatments of an elderly female with treatment

resistant vulvodynia.

The first treatment consisted of 4%

cromolyn sodium, 2% Lidocaine USP, 4% Amitriptyline HCl USP, 0.25% Atropine

Sulfate USP, and 2% Ketoconazole USP in a polyethylene glycol base. It merely

increased the patient's discomfort.

The second treatment consisted of

0.25% Atropine Sulfate USP, 10% Ketoconazole USP and 10% Biotin USP as a

combination in a cocoa butter base. It resulted in the full remission of the

vulvodynia.''

To read more on that article (it's long) go here.

http://www.personalconsult.com/articles/vulvodynia.html

And here's some info on the Traumeel..

Here are two links just for information. Apparently

available OTC, ointment or gel. I've also seen it spelled two ways,

traumel or traumeel.

(and available as injections too I think)

1.

''Traumeel...Nothing like it in the world!''

Anti-inflammatory. Analgesic

http://www.nutritiondynamics.com/featured_product/

2.

Bruising and pain disappear quickly with Traumeel!http://www.naturedoc.com/products/traumeel.html

Ingredients: 50 grams of ointment or gel contains: 0.75

grams each of Arnica montana 3X, Calendula officinalis 1X, Hamamelis

virginiana 1X; 0.50 grams each of Aconitum napellus 3X, Belladonna

3X; 0.25 grams each of Bellis perennis 1X, Chamomilla 1X, Echinacea

angustifolia 1X, Echinacea purpurea 1X; Millefolium 1X

0.15 gram; Hepar sulphuris calcareum 8X 0.125 gram; Mercurius

solubilis 8X 0.06 gram; Symphytum officinale 4X 0.05 gram and Hypericum

perforatum 6X 0.045 gram in a hydrophilic base.

Hope that helps

Dee ~

[Guest guest]

<Dee, I was wondering what you felt the difference is between

Vulvodynia and Vestibulitis?nne>

HI nne..

From the way I understand it, Vulvodynia is not the name of a disease, where Vestibulitis is. Vulvodynia is a syndrome with a collection of various symptoms that could include persistent pain or burning and itching of the vulva, and many things can fall under that umbrella of vulvodynia when they don't know the cause of it so it's the generic term.

For instance, Lichen sclerosis, Lichen planus, Vestibulitis, Dysesthetic Vulvodynia, Dermatitis, Psoriasis of the vulva, etc., etc., can all initially be under the umbrella of vulvodynia but once a definitive diagnosis is made (differentiating them) they technically aren't called vulvodynia any longer.

Often a physician will tell a patient she has 'vulvodynia' but it's because he doesn't know exactly what is wrong, so she may have any of the above symptoms or more and she goes away thinking she has a real name for her condition.. when literally 'vulvodynia' simply means a ''vulva in pain'', or a ''painful vulva''.

For instance, Vulvar Vestibulitis Syndrome (VVS) is typically a painful response to touch or pressure around the vaginal opening where Dysesthetic Vulvodynia (DV) is generalized, unprovoked pain, so in both you now have a diagnosis and a name.

In VVS, women feel sharp stabbing pain when touched at specific spots at the vaginal opening where the major vestibular glands are located. When the gynecologist pokes around with a Q-tip, there's very localized point tenderness.

DV is supposedly far less common than VVS. The pain is a spontaneous burning sensation, sometimes all over the vulva and even down the legs. DV may have more of a hormonal component. (says Glazer) So one would not continue to say they have vulvodynia or LS, LP, etc.etc. once a firm diagnosis is made.

But then I had 4 or 5 different diagnosis's from different doctors *sigh* (two different ones in one day) and no one could agree on anything, though that was 10 yrs ago and I think (or hope) they are more up on things today.

I hope that made sense hon and my thoughts on it.

Hugs

Dee

[Guest guest]

<< From the way I understand it, Vulvodynia is not the name of a

disease, where Vestibulitis is. Vulvodynia is a syndrome with a

collection of various symptoms that could include persistent pain or

burning and itching of the vulva,...>>

Hi there,

I just wanted to try clarify a bit further as I feel that this

description is still rather unclear and perhaps not that accurate.

" Vulvodynia is the term used to describe women who experience the

sensation of vulval burning and soreness in the absence of any obvious

skin condition or infection. " and " There is no evidence of any skin

condition, skin swabs and biopsy findings are normal and there are no

open areas or sores " . So while Vulvodynia does mean painful vulva and

while we know that various conditions can cause a painful vulva, it

specifically refers to a condition of pain once other factors are

excluded. (bearing in mind one can have more than 1 vulval condition)

If one refers to the International Society for the Study of

Vulvovaginal Disease (ISSVD) look under 'Vulvar Pain' on this page and

read their excellent leaflet: http://www.issvd.org/patienteducation.asp

You will see that Vestibulodynia is like a subset of Vulvodynia and we

are being encouraged to use the new terminology: " The current names

for these two major vulvar pain conditions are localized vulvodynia

and generalized vulvodynia. You may have heard these called

vestibulitis and vulvodynia in the past. "

I see them as part of the same syndrome; many women present with

elements of both, or they start with provoked pain and end up with

unprovoked, continuous pain. Apart from the surgical option, where I

think one needs to have specific provoked pain that is very localised

for it to be an option, I feel the treatment options are about the

same for both - certainly one with either provoked or unprovoked

vulvodynia could think about trying treatments for both.

My 2 cents worth...

Kay