Judy/: damage from steroid and ketoconazole creams

[Guest guest]

Judy, I had trigger point injections all around the vagina and

in the perineum area. I would point to a specific spot and she would push the

needle in. Although the whole area hurts really bad, so it didn’t make

much difference where she put the injections. I have to say they really helped

for a month. I was suppose to go back for follow up injections, but I had to

reschedule and it took awhile to get another appointment. Now, I am in really

bad shape again. The doctor told me I would have to come back at regular monthly

intervals and she was right. Believe me, I don’t have the appointment for

another three weeks to get more, but I have not going to let that happen again.

My advice is if that is where you are going to get the injections is to follow

up with them once a month for at least six months. I am even considering Botox

in that area because I have read very good results. To deaden the pain signals,

you just have to keep repeating the injections. If you have any pain meds or

Valium, it doesn’t hurt to take them before the injections as they can be

painful and the meds help quite a lot. It sounds like you could see a pain

management doctor also, to make you life more bearable, as this is a tough

condition to get under control. I can’t walk either so I know what you

are going through. Hang in there; it will get better if you work at it. Also

get some numbing cream – that helps a lot. Ask your doctor for a prescription

for Lidocaine 5%, and there is another one, that I can’t remember the

name of, but I posted it a week or so back, that is suppose to completely make

the whole area numb.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of jselbridge

Sent: Friday, May 23, 2008 6:16 PM

To: VulvarDisorders

Subject: Re: damage from steroid and ketoconazole creams

-Hi, I was reading through some of the past

posts and these stories

sound very very similiar to me. I have written before but these put

it exactly! Has anyone been able to actually clear up the raw

burning skin? I haven't been able to use anything on the skin

because it seems to make it worse. I am on 600mg Lyrica, 100mg

Tramadol and an antidepressant. I am scheduled for a nerve block on

June 6th. I am going to the doctors and doing exactly what they say,

but I still have this awful red, raw, burning skin. I can't even get

out of the house to walk at all. I have tried to do this, but I end

up in so much pain while out that I just

can't.

On the other hand I have two daughters, one who is going to the

Junior Pronm next week, who would like to have her mother to help. I

have a wonderful husband of twenty years who helps a lot, but

sometimes they need their mother. I am missing out on so much I just

want to cry all the time. This problem came up last November so

everyone has had to adjust. I just feel like I may never get help

and I don't know what to do next. I suppose this nerve block could

help, but nothing has so far. So I have a difficult time believing

it right now. I have written these rants before, but I have just had

it with the pain lately. thanks for listening to this all. Judy--

In VulvarDisorders ,

" lulubuns " wrote:

>

> Hi Alina, this sounds similar to my story, regarding allergic

> reactions to everything. I was allergic to antifungal creams,

> bacterial vaginosis creams, cortisone creams, and all the

alternative

> medicine stuff (like vaginal acidophilus, boric acid etc.).

Basically

> I was one big allergic mess all swollen up and burning for 7

months. I

> believe this is what caused my vulvar vestibulitis. All I can say

is:

> don't use anything on the tissue. Since you are allergic to

everything

> all the creams will just make it worse. I cannot use any topical

> medicine. Underwear is very irritating, I do not wear underwear

> (except when I have my period, then I have to suffer through the

> chafing). Also do not rub yourself dry after showering, either air

> dry or use a hair dryer set on low and hold it far away (this is

what

> I do). That is all I can suggest for now, please try not to put

> anything on the skin. If you think it's vulvodynia you need to find

a

> doctor who specializes in it, most gynecologists don't know anything

> about it! I hope you feel better.

>

> >

> > Hello,

> >

> > My name is Alina and here is my story.

> > I had an allergic vulvitis last year that was treated with

cortisone

> cream, but I was left burning on the top of

> > my vulva and itching on my right labia. I calmed that down with

some

> plant gel.

> > Then last December I got a yeast infection and I was told to use

> Nizoral cream for itching. The problem is I applied it on the labia

> majora for two weeks and it burned my tissue. I went to many doctors

> because the damage was not really visible, but I was burning and in

> pain where I had applied it.

> > Then I applied cortizone cream and was give some estrogen vaginal

> pessaries that burned like hell and I had to stop using them.

> > Then I went to another derm and he said I had contact dermatitis

> from all the creams and prescribed another cortizone cream that I

> applied for three weeks and this one really burned my tissues. I was

> all red and inflamed and burning even more. I went back and he

claimed

> I had nothing serious and sent me home and said I should heal by

> myself in 3 months. Well 3 months are gone, the tissue looks much

> better, the burning is pretty much gone, but I am still in pain, I

> cannot stand underwear, my pubes sting, menstrual pads chafe,

> sometimes my discharge stings.

> > Even a little rubbing means pain and stinging and I get red.

> >

> > I went back to this derm and now he said that I still have an

> irritation and asked me why I did not seek medical help. He

prescribed

> a nappy rash cream for 1 month and I have to go back for followup.

> > The gynecologist cannot see any irritation and thinks I have

> vulvodynia and keeps sending me to the shrink to sort my

" issues "

> because he thinks they are triggered by some psychological trauma.

> > I am going to another derm on Tuesday, but I am at a loss here.

How

> do I repair those damaged tissues?

> > The thing is, in the morning they look really good but are still

> painful. After using the towel or even rubbing with underwear they

> turn red and sting.

> > I am now trying cautiously the nappy rash cream on one corner of

the

> labia majora and on the other one the Cicalfate repair cream from

Avene.

> > I also have emu oil, that soothed me last night when I was

stinging

> kinda bad.

> > My mom also thinks my vulva skin looks normal, but I know how it

> used to look, and it is not normal.

> >

> >

> > If you have any suggestions, I would sure like to hear them.

> > Thanks a lot,

> > Alina

> >

> >

> >

>

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