New Member

[Guest guest]

Hi everyone I am a new member and I thought it was time I introduced

myself (I have been loitering behind the scenes for a few weeks!)

My name is and I am aged 36 from the UK, I was finally

diagnosed with PSC this month. I am happily married to my wonderful

husband who has always taken very good care of me and I have a 5

year old black Labrador called who follows me around

faithfully and always cheers me up when I am having a bad day!

The first thing I wanted to say is what a fantastic group this is.

Not only do you all offer each other much needed emotional support

but the technical/medical guidance provided is first class. I am

very happy to have found you all.

My road to diagnosis has been an ongoing quest to find the truth for

the last 20 years as unfortunately I have been ill since I had

glandular fever (mono) at 17, my trigger for all my health problems I

believe.

It would take up too much of your time to explain my history now, but

I'm sure the details will emerge as I make new friends.

I will just summarise for now. After glandular fever (mono)in 1988 I

had a few gynaecological issues and had recurrent endometriosis for

the next 12 years or so which resulted in many operations & finally

total hysterectomy in 2004.

During this time I also had various joint problems, post viral

illnesses, colitis, and was also diagnosed with osteopenia when I was

29. I also experienced lots of head scratching from many specialists

and was told how unique I was countless times!(ok they might have

said abnormal!) (I know many of you have experienced this as well).

We all just find this funny now

Following hysterectomy I was a new woman for 14 months! Until I hit

the liver disease phase as I call it. Then gallbladder packed up &

was removed, then gastroparesis, esophagitis & gastritis came next.

Then finally also diagnosed with PSC. Phew I think that's it!

Finally had some good news last week that confirmed I didn't have UC

or Crohns. I am counting my blessings on that one.

I have spent the last few weeks reading all info on the internet

including the PSC literature site, Mayo clinic etc, so still

processing. I have also found it invaluable reading the past posts

from this group.

I am trying to stay positive and keep everything in perspective and

this group has really helped me to do this, so thank you.

I also love all your inspiring quotes/mottos, some are even pinned on

my fridge right now.

I look forward to getting to know you all. Sorry for the long post I

think I got a bit carried away!

Best wishes