colon removal

[Guest guest]

I know this isn't the crohn's/colitis support group but has anybody ever had

their colon removed? I'm wondering what life is like post surgery. Any input

would be helpful.

Thanks,

Cheryl

Seattle

-------------- Original message ----------------------

> It's not shingles. Kim had that as a child (before she got chicken

> pox!) so I know what that looks like, besides this is all over his chest

> & back not just one sided. I've calmed down some now, I'll start

> worrying again IF he gets a temp. But.. he gets a temp every morning,

> so guess tomorrow I'll be back at it.

>

> Thanks , as always, you're right there to help anyone in need.

>

> With love, Barb in Texas - Together in the Fight, Whatever it Takes!

> Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

>

>

It’s

not shingles. Kim had that as a child (before she got chicken pox!) so I know what that

looks like, besides this is all over his chest & back not just one sided. I’ve calmed down some now, I’ll

start worrying again IF he gets a temp.

But…. he gets a temp every morning, so guess tomorrow I’ll

be back at it.

Thanks , as

always, you’re right there to help anyone in need.

With love, Barb in Texas - Together in the Fight,

Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in

Dallas

[Guest guest]

Cheryl,

Yes, there are, I am sure they will react

to your mail when they read it. Since I don't have UC I can't help you with

this.

Regards,

Chaim Boermeester, Israel

From:

[mailto: ] On Behalf Of cherylzahajko@...

Sent: Monday, September 03, 2007

13:33

To: ;

Cc: Barb Henshaw

Subject: colon

removal

I know this isn't the crohn's/colitis support group

but has anybody ever had their colon removed? I'm wondering what life is like

post surgery. Any input would be helpful.

Thanks,

Cheryl

Seattle

-------------- Original message ----------------------

From: " Barb Henshaw " <barbhenshaw (AT) peoplescom (DOT) net>

> It's not shingles. Kim had that as a child (before she got chicken

> pox!) so I know what that looks like, besides this is all over his chest

> & back not just one sided. I've calmed down some now, I'll start

> worrying again IF he gets a temp. But.. he gets a temp every morning,

> so guess tomorrow I'll be back at it.

>

> Thanks , as always, you're right there to help anyone in need.

>

> With love, Barb in Texas

- Together in the Fight, Whatever it Takes!

> Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

>

>

[Guest guest]

Dear Cheryl,

My " daughter " Candace was born on October 26, 2005. She and I have

shared a very special relationship ever since her birth. Her " dad "

is my wonderful surgeon, Dr. K., I owe him my life. I will tell you

now that even almost two years later, I still have moments where I

cannot believe that my whole digestive anatomy has been altered in

such a way. I scheduled my surgery 5 months before it actually took

place and that period was such a total emotional roller coaster; I

wondered if I was actually doing the right thing but I found out post-

surgery that dysplasia was present in my colon and I really had no

choice but to have the surgery. There will be times when you will

wonder if your world will ever return to normal, it will, it just

takes a lot of time and a wonderful support system. Although this

group is more focused on PSC, there are some of us who have gone

through about 90% of every digestive problem that can occur; we often

start out with GERD and go downhill from there. Trust me you are not

alone in this group. There is so much more that I can tell you but I

do not want to take up the time of others who may wish to post.

There are lots of good books about preparing for the surgery and life

after the surgery. My favorite author on this subject is

Elsagher, she offers great insight with wit.

My prayers are with you.

Take care,

Deb

>

> I know this isn't the crohn's/colitis support group but has anybody

ever had their colon removed? I'm wondering what life is like post

surgery. Any input would be helpful.

>

> Thanks,

> Cheryl

> Seattle

> -------------- Original message ----------------------

>

> > It's not shingles. Kim had that as a child (before she got

chicken

> > pox!) so I know what that looks like, besides this is all over

his chest

> > & back not just one sided. I've calmed down some now, I'll start

> > worrying again IF he gets a temp. But.. he gets a temp every

morning,

> > so guess tomorrow I'll be back at it.

> >

> > Thanks , as always, you're right there to help anyone in

need.

> >

> > With love, Barb in Texas - Together in the Fight, Whatever it

Takes!

> > Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

> >

> >

>

[Guest guest]

Dear Cheryl,

My now 24 year old son had his colon out and a j-pouch done in one

step on June 13 2005.

They told him to expect a rough 2 or 3 months and then not to expect

a full recovery for up to one year.

They were pretty accurate. July and August had some bumps in the

road, infection in his incision, fever, pain, cat scan of his abdomen

to check for what was going on, different antibiotics. It took until

mid August for his incision to fully heal. I needed to pack 3 open

areas with gauze twice a day and this really didn't help his

recovery. Perhaps he was slower to heal since he was still on 20mg of

prednisone when he had the surgery and he was weaning off it while

recovering.Then in September he was putting weight back on, using the

bathroom less frequently and going out on his own. That was the big

turn around time for him when he could appreciate how much better he

felt without his colon. Unfortunately he has pouchitis but this is

controlled with a daily antibiotic.

I think if he had it to do over he would have had it removed the year

before. Then the surgery would have been done before he was on all

the prednisone and before he had his blood clot , a UC complication.

At the time we and he felt the need to try everything possible to

save his colon.

Best of luck to you, it will be worth it.

Lee

> I know this isn't the crohn's/colitis support group but has anybody

> ever had their colon removed? I'm wondering what life is like post

> surgery. Any input would be helpful.

>

> Thanks,

> Cheryl

> Seattle

> --------------

[Guest guest]

Hi Cheryl,

I had 90% of my large intestine removed in 2000 due to multiple adenomas, a

long history of UC & colon cancer in my family. I was extremely reluctant to

have this done, as I knew it would change how my body worked. But I

understood the risks and did it. Without the colon you have about 5-8 bowel

movements a day. Immediately after surgery you need to eat a relatively soft

diet. And you need to drink a lot - dehydration can land you back in the

hospital. The purpose of the colon is to reabsorb fluids and minerals (so

you may want to salt your food some more). To put it more bluntly, you have

5-8 diarrhea like bowel movements a day. Although the stools are sometimes

semi-formed, but tend to be pretty soft.

In 2005-2006 I had the 2 step j-pouch surgery. The first surgery was pretty

rough, but it is temporary. I did have a bag for about 3 months between

surgeries. I have developed pouchitis, so I take an antibiotic every day.

Now on some days I only have about 3-4 bowel movements. It works pretty

well, and now the UC is essentially gone (too bad for the PSC though).

I would write more but I'm really suffering from fatigue right now. I've got

to lay down.

Wish you well.

Marie

>I know this isn't the crohn's/colitis support group but has anybody ever

>had their colon removed? I'm wondering what life is like post surgery.

>Any input would be helpful.

>

>Thanks,

>Cheryl

>Seattle

> -------------- Original message ----------------------

>

_________________________________________________________________

Get the device you want, with the Hotmail® you love.

http://www.windowsmobile.com/hotmailmobile?ocid=MobileHMTagline_1

[Guest guest]

My wife had her colon removed on February 1 of 2005. Her plumbing was

reconnected in July. She does not have a J-pouch though. There really

have been no complications or side effects, except for maybe that she

needs " to go " more frequently than some people.

Naperville, IL

[Guest guest]

Cheryl,

Some common problems that I've experienced or heard of include leakage after

the 2nd surgery, especially at night. This continued for me for about 9

months. When I started taking cipro for the pouchitis, it stopped. It still

happens every once in a while, but now it's rare.

-Marie

>

>I know this isn't the crohn's/colitis support group but has anybody ever

>had their colon removed? I'm wondering what life is like post surgery.

>Any input would be helpful.

>

>Thanks,

>Cheryl

>Seattle

>

_________________________________________________________________

Can you find the hidden words? Take a break and play Seekadoo!

http://club.live.com/seekadoo.aspx?icid=seek_hotmailtextlink1

[Guest guest]

Cheryl,

My daughter had her colon removed in

February of this year. She had the surgery and pull through j-pouch procedure

done in one surgery. She has had a few bumps in the road, however her life post

surgery has been 100% improved. I/we have no regrets, and as Lee said, wish we

would have done it sooner. Feel free to email me privately if you have any

questions etc.

LINDA

(Mom of Suzanne, 18; UC 1/04; PSC 3/04; jpouch 2/07)

From:

[mailto: ] On

Behalf Of cherylzahajko@...

Sent: Monday, September 03, 2007

7:33 AM

To: ;

Cc: Barb Henshaw

Subject: colon removal

I know this isn't the crohn's/colitis support group

but has anybody ever had their colon removed? I'm wondering what life is like

post surgery. Any input would be helpful.

Thanks,

Cheryl

Seattle