Re: Fatigue

[Guest guest]

I never know if my fatigue is due to the PSC or to the pain

medications I take. I've discovered that I need at least 10 hours of

sleep each night and at least 2 full days of rest to handle a week of

work. When I had doctors that were dismissive of my symptoms, I

found a new doctor.

My current hepatologist recently suggested I reduce my workweek, so

I'm taking off a day each week. If I were an hourly worker, it

wouldn't be a problem. But I work in a salaried position, and I've

had to offload some of my assignments to accommodate the reduced

hours on the job. I'm feeling somewhat uncomfortable because when I

was recruited 3 years ago, I negotiated a pay rate that puts me at

the top of our payscale. So, now I'm earning more than everbody else

but working less - and feeling guilty about it. I " came out " at a

recent staff meeting just in order to mitigate some of the resentment

that I was sensing.

My job puts me in touch with hundreds of workers; I've counseled

workers who were hostile towards coworkers receiving ADA

accommodations or taking time off under FMLA. It's really something,

however, to be experiencing that resentment first-hand. I'm lucky to

have supportive supervisors - so far.

Debbie in Seattle

UC 1972, J Pouch 1991, Chronic Pouchitis, PSC diagnosed 2005

[Guest guest]

My job puts me in touch with hundreds of workers; I've counseled

workers who were hostile towards coworkers receiving ADA

accommodations or taking time off under FMLA. It's really something,

however, to be experiencing that resentment first-hand. I'm lucky to

have supportive supervisors - so far.

****

I'm not feeling comfortable either using FMLA. I used it recently on an

intermittant basis to take care of my mother, and now I'm dealing with

fatigue. My CT scan wasn't great (cirrohsis of the liver was seen) but the

blood tests are normal - my doctor feels that it will be difficult to get

disability. And I'm worried about my job. I don't think my boss is very

sympathetic. My coworkers seem to be okay so far. I look healthy, so that is

a problem.

-Marie

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