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Yes. I usually crash the day after steroids. Sorry you're gong though it.

Amy

I'm not doing so good. I felt so darn good the first few days of taking the oral steroids and now I'm feeling crappy. I am moving like I'm walking through jello. I went out to take care of the chickens/ducks this morning but that was a mistake on my part. I am so slow. When I'm sitting down I feel better but when I stand up and walk it's such a terrible chore for me. I suppose this is an after effect of the steroids. Right?hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

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I'm not doing so good. I felt so darn good the first few days of taking the oral steroids and now I'm feeling crappy. I am moving like I'm walking through jello. I went out to take care of the chickens/ducks this morning but that was a mistake on my part. I am so slow. When I'm sitting down I feel better but when I stand up and walk it's such a terrible chore for me. I suppose this is an after effect of the steroids. Right?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance

its individual character and beauty and in no way are to be considered flaws or defects.

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Steroids can do that. Just remember: This too shall pass!love/Reb>> I'm not doing so good. I felt so darn good the first few days of taking the > oral steroids and now I'm feeling crappy. I am moving like I'm walking through > jello. I went out to take care of the chickens/ducks this morning but that was > a mistake on my part. I am so slow. When I'm sitting down I feel better but > when I stand up and walk it's such a terrible chore for me. > > > I suppose this is an after effect of the steroids. Right?> > hugs> > > Sharon> This email is a natural hand made product. The slight variations in spelling and > grammar enhance its individual character and beauty and in no way are to be > considered flaws or defects.>

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I sorry honey..

~*~Hugs~*~

~*~Akiba~*~

-- not doing so good

I'm not doing so good. I felt so darn good the first few days of taking the oral steroids and now I'm feeling crappy. I am moving like I'm walking through jello. I went out to take care of the chickens/ducks this morning but that was a mistake on my part. I am so slow. When I'm sitting down I feel better but when I stand up and walk it's such a terrible chore for me. I suppose this is an after effect of the steroids. Right?hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

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Thanks Akiba. Your empathetic reply made me cry. I guess I'm a tad emotional as well:) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, September 20, 2010 11:15:08 AMSubject: Re: not doing so good

I sorry honey..

~*~Hugs~*~

~*~Akiba~*~

-- not doing so good

I'm not doing so good. I felt so darn good the first few days of taking the oral steroids and now I'm feeling crappy. I am moving like I'm walking through jello. I went out to take care of the chickens/ducks this morning but that was a mistake on my part. I am so slow. When I'm sitting down I feel better but when I stand up and walk it's such a terrible chore for me. I suppose this is an after effect of the steroids. Right?hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

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{{{{{{{{{{{{{{{{gentle hugs}}}}}}}}}}}}}}}}}} I've heard others say that while coming off the steroids its hard on them. All that activity you did while you were feeling so good on them, you might have overdone. A couple days of taking it easy hopefully will help you feel better. The main thing is if it took care of the ON?

Hugs and Love, Jackie

May the peace of God be with you...the love of Jesus enfold you...and the Spirit of Christ fill you.

Subject: not doing so goodTo: "Group" <mserslife >Date: Monday, September 20, 2010, 11:01 AM

I'm not doing so good. I felt so darn good the first few days of taking the oral steroids and now I'm feeling crappy. I am moving like I'm walking through jello. I went out to take care of the chickens/ducks this morning but that was a mistake on my part. I am so slow. When I'm sitting down I feel better but when I stand up and walk it's such a terrible chore for me. I suppose this is an after effect of the steroids. Right?hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

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How long were you on them?.. and yeah.. I felt like crap when I

finished mine too.. I think it's called the downer part.. cause they

certainly (usually) make one feel very very good while on them...

Could use a truckload of them today.. that's for sure!

HUGS

|)onna

I'm not doing so good. I felt so darn good

the first few days of taking the oral steroids and now I'm

feeling crappy. I am moving like I'm walking through jello. I

went out to take care of the chickens/ducks this morning but

that was a mistake on my part. I am so slow. When I'm sitting

down I feel better but when I stand up and walk it's such a

terrible chore for me.

I suppose this is an after effect of the steroids. Right?

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

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We need to sit down and have a heart wrenching, drench the shirt cry

together.. must be something in the water!!!!

I've been listing all my non-accomplishments in life lately...

Woke up this morning.. and had feeling in my right hand!!! (It's not

all gone yet.. still have more than usual).. which should be a GOOD

thing.. It's not.. well it doesn't feel like it is anyway...

Reached out with that "feeling" right hand and started to rub 's

chest (cause I could actually FEEL IT.. and yes.. more than you

wanted to know).. but in his sleep, he grabbed my hand and made it

lay still.. so he could continue to sleep those last 10 minutes

before the alarm went off..

It just seems to suck to be us these past few weeks... doesn't it?

HUGS

|)onna, who right there with you on the emotional rollercoaster..

Thanks Akiba. Your empathetic reply made me

cry. I guess I'm a tad emotional as well:)

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

Akiba

To:

MSersLife

Sent: Mon,

September 20, 2010 11:15:08 AM

Subject:

Re: not doing so good

I sorry honey..

~*~Hugs~*~

~*~Akiba~*~

-------Original

Message-------

From:

Sharon

Date:

9/20/2010 2:01:15 PM

To:

Group

Subject:

not doing so good

I'm not

doing so good. I felt so darn good the

first few days of taking the oral steroids

and now I'm feeling crappy. I am moving

like I'm walking through jello. I went out

to take care of the chickens/ducks this

morning but that was a mistake on my part.

I am so slow. When I'm sitting down I feel

better but when I stand up and walk it's

such a terrible chore for me.

I suppose this is an after effect of the

steroids. Right?

hugs

Sharon

This

email is a natural hand made product.

The slight variations in spelling and

grammar enhance its individual

character and beauty and in no way are

to be considered flaws or defects.

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I feel like that all the time Sharon. I am on a lot of prednisone.

Kathleen

WI

From: Sharon

Sent: Monday, September 20, 2010 1:01 PM

To: Group

Subject: not doing so good

I'm not doing so good. I felt so darn good the first few days of taking the oral steroids and now I'm feeling crappy. I am moving like I'm walking through jello. I went out to take care of the chickens/ducks this morning but that was a mistake on my part. I am so slow. When I'm sitting down I feel better but when I stand up and walk it's such a terrible chore for me. I suppose this is an after effect of the steroids. Right?hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

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I did so well for years on Avonex, and even better on Copaxone,and then it turned out that I was allergic to the mannitol (a small-cell signalling sugar) that was in the INactive ingredients. Had to give it up. I hope that something can be done for you and forSharon, Kathleen.Love,nTo: MSersLife Sent: Mon, September 20, 2010 12:46:03 PMSubject: Re: not doing so good

I feel like that all the time Sharon. I am on a lot of prednisone.

Kathleen

WI

From: Sharon

Sent: Monday, September 20, 2010 1:01 PM

To: Group

Subject: not doing so good

I'm not doing so good. I felt so darn good the first few days of taking the oral steroids and now I'm feeling crappy. I am moving like I'm walking through jello. I went out to take care of the chickens/ducks this morning but that was a mistake on my part. I am so slow. When I'm sitting down I feel better but when I stand up and walk it's such a terrible chore for me. I suppose this is an after effect of the steroids. Right?hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

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It did take care of the ON. I just wish it would have taken care of everything else:) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, September 20, 2010 12:09:49 PMSubject: Re: not doing so good

{{{{{{{{{{{{{{{{gentle hugs}}}}}}}}}}}}}}}}}} I've heard others say that while coming off the steroids its hard on them. All that activity you did while you were feeling so good on them, you might have overdone. A couple days of taking it easy hopefully will help you feel better. The main thing is if it took care of the ON?

Hugs and Love, Jackie

May the peace of God be with you...the love of Jesus enfold you...and the Spirit of Christ fill you.

Subject: not doing so goodTo: "Group" <mserslife >Date: Monday, September 20, 2010, 11:01 AM

I'm not doing so good. I felt so darn good the first few days of taking the oral steroids and now I'm feeling crappy. I am moving like I'm walking through jello. I went out to take care of the chickens/ducks this morning but that was a mistake on my part. I am so slow. When I'm sitting down I feel better but when I stand up and walk it's such a terrible chore for me. I suppose this is an after effect of the steroids. Right?hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

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Six days. SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, September 20, 2010 12:28:04 PMSubject: Re: not doing so good

How long were you on them?.. and yeah.. I felt like crap when I

finished mine too.. I think it's called the downer part.. cause they

certainly (usually) make one feel very very good while on them...

Could use a truckload of them today.. that's for sure!

HUGS

|)onna

I'm not doing so good. I felt so darn good

the first few days of taking the oral steroids and now I'm

feeling crappy. I am moving like I'm walking through jello. I

went out to take care of the chickens/ducks this morning but

that was a mistake on my part. I am so slow. When I'm sitting

down I feel better but when I stand up and walk it's such a

terrible chore for me.

I suppose this is an after effect of the steroids. Right?

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

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Oh Sharon,I'm so sorry to read this! I am not certain if itis an after effect of the med or not. Surely, youcan call your pcp and report it, and see if he/shecan shed any light on this.Take care of yourself. Looking forward to non'jello' days for you!love, Kate not doing so goodTo: Group > I'm not doing so good. I felt so darn good the first few days > of taking the > oral steroids and now I'm feeling crappy. I am moving like I'm > walking through > jello. I went out to take care of the chickens/ducks this > morning but that was > a mistake on my part. I am so slow. When I'm sitting down I > feel better but > when I stand up and walk it's such a terrible chore for me. > > > I suppose this is an after effect of the steroids. Right?> > hugs> > > Sharon> This email is a natural hand made product. The slight variations > in spelling and > grammar enhance its individual character and beauty and in no > way are to be > considered flaws or defects.> > > Kate

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That's not a whole long time.. but I'm betting long enough to get

the "not so good" feelings when complete..

I know that when I came home from the hospital.. well heck.. back

last May.. they did the first IV infusion on Friday night.. by

Saturday morning the numbness had all but gone.. and I started to

feel like I could run a marathon (IF my legs would cooperate)...

and I continued to feel better and better for the three days of the

infusion.. even felt good for the two weeks tapering on Prednisone..

but it was after that I felt like crap..

Don't think it was actually a "reaction" to the meds, so much as the

going "back to normal" from feeling pretty darned good while on the

steroids.. and I do have to admit.. back to "normal" sucks...

reminds us once again of what we've lost..

Right now, whatever is going on.. (and I KNOW it's going to pass)

with me being able to actually feel the fingers and most of my right

hand right now.. (woke up that way yesterday morning.. and it's

still going today.)... it's going to be the pits when it goes back

to "normal" when whatever it is... goes away..

HUGS

|)onna

Six days.

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Mon,

September 20, 2010 12:28:04 PM

Subject:

Re: not doing so good

How long were you on them?.. and yeah.. I felt like crap

when I finished mine too.. I think it's called the downer

part.. cause they certainly (usually) make one feel very

very good while on them...

Could use a truckload of them today.. that's for sure!

HUGS

|)onna

I'm not doing so

good. I felt so darn good the first few days of taking

the oral steroids and now I'm feeling crappy. I am

moving like I'm walking through jello. I went out to

take care of the chickens/ducks this morning but that

was a mistake on my part. I am so slow. When I'm

sitting down I feel better but when I stand up and walk

it's such a terrible chore for me.

I suppose this is an after effect of the steroids.

Right?

hugs

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

character and beauty and in no way are to be

considered flaws or defects.

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Sharon sorry to hear this is happening. Chuck usually feels good after his steroid treatments. You are in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

-----Original Message-----From: wobbletowalk@...Sent: Mon, 20 Sep 2010 11:01:02 -0700 (PDT)To: mserslife Subject: not doing so good

I'm not doing so good. I felt so darn good the first few days of taking the oral steroids and now I'm feeling crappy. I am moving like I'm walking through jello. I went out to take care of the chickens/ducks this morning but that was a mistake on my part. I am so slow. When I'm sitting down I feel better but when I stand up and walk it's such a terrible chore for me. I suppose this is an after effect of the steroids. Right?hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

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