Chelle/Vestibulodynia

[Guest guest]

Chelle, I found out today that the names have been changed

permanently. Vestibulitis and Vulvodynia are gone and the new name which we

should refer all vulvar conditions is what you quoted - Vestibulodynia

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Chelle

Sent: Thursday, June 05, 2008 12:20 PM

To: VulvarDisorders

Subject: Re: support for partner

Hi ,

I don't have any info on any books about relationships and vestibulitis, but I

do have an article I'll resend. It's Christin Veasley's story. She

is a director of the NVA. http://www.nva.org -- The article shares

the difficulty she and her boyfriend had when getting married and dealing with

vestibulitis/vestibulodynia.

Also, check out our files or links on the homepage, I'm pretty sure Dee (the

owner) recently included some info on some stats.

Hang in there, Chelle

veronica_sheila wrote:

Does anyone know if there are any good books or websites out

there that give advice to boyfriends and husbands about how to deal with their

partner having vestibulitis?

[Guest guest]

Hey nne, I'll try to give my take on this whole name thing...*grin* -- From what I understand, the only term that has changed is vestibulitis, and the ISSVD (International Society for the Study of Vulvovaginal Diseases) officially did change it to vestibulodynia a few or so years back. http://issvd.org/As we know, the term vulvodynia is a just a catch all phrase that means, "vulvar pain". There are women on the group that do suffer from generalized vulvodynia -- which is constant vulvar pain that can be located 'anywhere' on the vulva -- but it is not confined only to the vestibule. Now if a woman has vestibulitis/vestibulodynia the pain is 'confined' to the vestibule only. Unfortunately, 'some' have both types of pain (generalized vulvodynia 'and' vestibulodynia). So, as far as I know the term Vulvodynia is still used to describe vulvar pain. I wish the ISSVD would be more concerned

about treatments! I'll resend a good article written by E. -- where she writes about vestibulodynia.~Chellemillburytimes wrote: Chelle, I found out today that the names have been changed permanently. Vestibulitis and Vulvodynia are gone and the new name which we should refer all vulvar conditions is what you quoted - Vestibulodynia nne From:

VulvarDisorders [mailto:VulvarDisorders ] On Behalf Of Chelle Sent: Thursday, June 05, 2008 12:20 PM To: VulvarDisorders Subject: Re: support for partner Hi , I don't have any info on any books about relationships and vestibulitis, but I do have an article I'll resend. It's Christin Veasley's story. She is a director of the NVA. http://www.nva.org -- The article shares the difficulty she and her boyfriend had when getting married and dealing with vestibulitis/vestibulodynia. Also, check out our files or links on the homepage, I'm pretty sure Dee (the owner) recently included some info on some stats. Hang in there, Chelle veronica_sheila

wrote: Does anyone know if there are any good books or websites out there that give advice to boyfriends and husbands about how to deal with their partner having vestibulitis?

[Guest guest]

<< Chelle, I found out today that the names have been changed

permanently. Vestibulitis and Vulvodynia are gone and the new name

which we should refer all vulvar conditions is what you quoted -

Vestibulodynia>>

Hello,

As per my last post on terminology, post # 71392, I wrote, quoting

from the ISSVD:

" " The current names for these two major vulvar pain conditions are

localized vulvodynia and generalized vulvodynia. You may have heard

these called vestibulitis and vulvodynia in the past. "

So no, vulvodynia is not an old term, but dysaethetic vulvodynia and

vestibulitis are old terms.

It's important that the terminology reflects the reality of the

condition and as they never knew much about vulvodynia, and are

learning all the time, it's inevitable that the names will change to

accommodate this. Once a woman wrote in to a magazine doctor asking

about vestibulitis and received an answer about vestibulitis - of the

EAR! I do hope she didn't try any of the recommended treatments! So

you see, the name of a condition is very important.

Well, that's how I understand all this.....

Kay

[Guest guest]

The way I understand it (and it seems that many doctors and patients have their

own interpretation) is that Vulvodynia is a blanket term for pain in the vulvar

area.

Vestibulitis was formerly used for problems in the vestibule but since it

signified an infection (the " itis " suffix) they changed it to vestibulodynia.

But still the doctors do not agree and like to be creative in their

descriptions.

Ora

On Sat, 07 Jun 2008 20:44:38 -0000, " mrswoodwoose " mrswoodwoose@...>

wrote:

>

>

><< Chelle, I found out today that the names have been changed

>permanently. Vestibulitis and Vulvodynia are gone and the new name

>which we should refer all vulvar conditions is what you quoted -

>Vestibulodynia>>

>

>Hello,

>

>As per my last post on terminology, post # 71392, I wrote, quoting

>from the ISSVD:

>

> " " The current names for these two major vulvar pain conditions are

>localized vulvodynia and generalized vulvodynia. You may have heard

>these called vestibulitis and vulvodynia in the past. "

>

>So no, vulvodynia is not an old term, but dysaethetic vulvodynia and

>vestibulitis are old terms.

>

>It's important that the terminology reflects the reality of the

>condition and as they never knew much about vulvodynia, and are

>learning all the time, it's inevitable that the names will change to

>accommodate this. Once a woman wrote in to a magazine doctor asking

>about vestibulitis and received an answer about vestibulitis - of the

>EAR! I do hope she didn't try any of the recommended treatments! So

>you see, the name of a condition is very important.

>

>Well, that's how I understand all this.....

>

>Kay

>