Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 Oh Abid...a big heartfelt hug to you! our warrior Dad! channa To: "mb12valtrex " <mb12valtrex > Sent: Sunday, December 11, 2011 10:26 PMSubject: Re: Need to Vent Sylvia, Just 1 request. I understand your heart goes out to moms who cried regarding autism. Hearts need to be provided to Dads also. Each day is so very difficult. The worst part is to worry regularly and constantly about a child's future. Abid Khan To: mb12valtrex Sent: Sunday, December 11, 2011 8:08 PMSubject: Re: Need to Vent , I cried a few times today. And on top of that couldn't even keep it together to be a decent mom to either my 3 yo autistic son or my 5 yo NT daughter. This is a painful road we're on. My heart goes out to you and all of the other moms who cried autism tears today. Sylvia Can I just say that sometimes it really sucks? (I never use that word.)That's all really.He's been doing really well. He had a fabulous day yesterday and a stellar morning this morning.Then I tried to take him to church. He had two complete meltdowns which aren't his norm anymore. The teachers are great and they handled him well, no blame there. Just that it sucks and I don't know if I will ever completely understand what is going on his brain and body or why. Which means I may never be able to help him resolve his issues for good.Couldn't help but cry on the way home while he sobbed the whole way and the rest of the family sat in silence.I just want to move far, far away with him and never have to deal with other people again.Vent over.Cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 Maybe one of us should win millions/billions of dollars and can set a small town to accommodate all of us. We will need an environmentally safe playground, park, gym, school, college, a dan doctor who accepts insurance or charges a reasonable fees, shopping center, farms with non-gmo, organic, arsenic free vegetables/grains, non-hormone fed cows, chickens, etc., health clubs for parents with babysitting available on site for children on the spectrum. Oh I think I am getting carried away. I am not working currently but as soon as I do, I will start putting aside money for that purpose as it is hard to win that kind of money is > > > > > > , > > > My son would have one better day and the next day we r dealing with meltdowns at home, school and therapy. I get a > little hope and then it seems like there is no improvement. Even parents at his speech therapy center stare at my son as he is a tall eight year old and has very little speech and while other kids with delays are trying to play with toys, he is always stimming. Every time I explain to my mil that this symptom is yeast or that symptom is clostridia, she looks at me like I am crazy and trying to give excuses for my brain damaged kid. I still sometimes wish that all of us on the forum were living in the same neighborhood and our kids had opportunity to hang out with kids on the spectrum and NT siblings without being stared at and the moms could hang out and exchange healthy recipes. I think I am going into my fantasy world again. > > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 Another story related to our kids taking their clothes off: I took Elena to the preschool open house. She took off all her clothes except for the diaper. The teacher said she'd like to take a photo of each kid. She did. It turned out the photos were for a story book the teacher made using the kids as characters. She gave each kid a copy of the book. Elena is in the book with no clothes on, except for the diaper. I guess by now they know she is the crazy one and they are not surprised. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 Hi Alberta, For some of us church is very important and the week isn't the same without it. It may work for you not to go, but it does not work for our family. When we go, we usually sit near the back so that we are not distracting others with our ASD kid. In the past, I have been able to bring her things that she could do quietly in the pew that help keep her occupied for the time we were there. Sara > > Q > Enviado desde mi BlackBerry® de Vodafone > > Re: Need to Vent > > I have to say that I have a tendency to feel antsy in churches, too. > Churches have a musty moldy-ish smell to them sometimes (and it's not > entirely impossible that there may actually be mold because many churches > are old buildings, so there may actually be a mold sensitivity going on > there), you're expected to sit still (typical kids get antsy after about 20 > minutes -- heavens, even in a place like school, which is more likely to be > geared to kids, children have trouble sitting for more than 30 minutes in > circle time -- and from an OT perspective, children especially are just > built to need movement breaks and not sit completely still), it's not > terribly exciting because some guy's up at the front who's not Elmo or > Barney or Bieber talking about stuff that you don't quite understand > -- hard for any child to understand, much less a child with autism who > thrives on visuals. > > I think The Lord wouldn't be terribly upset if you spent Sundays observing > The Creation (instead of The Creator). Creation is much more beautiful and > exhilarating, more inspiring and much more powerful. Don't feel bad if you > spend Sundays just going to soak in the beauty of gardens, having fun in > the park, going on a walk at some place that's just fun and beautiful. > These are a part of Creation, too, and are probably even more conducive > towards spiritual growth. Don't feel bad about not going to church in > place of doing something that will foster the bond between you and your > child. I am certain that anything divine would see this as more important > -- the relationship between you and your child. > > Don't feel bad for not going, not even for a moment, if there are other > ways that you can spend your Sundays that will foster a closer relationship > between you and your son. I'm not saying that a child with autism > shouldn't be in church because they might disturb others...I'm saying that > there may be other ways in the context of sprituality that may be fostered > by other means. Church isn't the be-all, end-all. We try to always do > something as a family on Sundays...create happy memories for the kids, have > fun, and grow as a family. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 Cathy, I often give my ASD kid a lot of sensory breaks before and after church which helps keep it together for the service. Don't know if you have had any luck with that with your son. I think God does view our service to our children as a ministry. Sara > > > > Very nice Alberta!  And yes and Sylvia, I have had many, many of those days too.  Sometimes I think we need to just stop and relax and laugh about the things that make us stressed (I need to learn to do this more too).  When we went to my Gramma's funeral this spring, my son too was pretty nervous the minute we walked in (lights, smell, stained glass not sure what).  We walked into a door at the front near the casket so i could come in with the stroller for my daughter.  There was a long line of people waiting to view the casket.  My son was nervously moving around and playing with his cars and his pants started to fall down so I asked him to pull them up.  He accidentally pulled them down and mooned the whole church.  I was slightly mortified but now I just laugh....I wish i could remind myself to laugh more in these moments and not get stressed about what isnt working...it was another rough day so I am going to try to wake up tomorrow > > thinking about how not to worry about the " small " stuff and find someway to laugh with the kids even when they/autism are driving me crazy:) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 My sister and I Talk about this all the time. With numbers the way they are, it's bound to happen. To: mb12valtrex Sent: Monday, December 12, 2011 2:27 PM Subject: Re: Need to Vent Maybe one of us should win millions/billions of dollars and can set a small town to accommodate all of us. We will need an environmentally safe playground, park, gym, school, college, a dan doctor who accepts insurance or charges a reasonable fees, shopping center, farms with non-gmo, organic, arsenic free vegetables/grains, non-hormone fed cows, chickens, etc., health clubs for parents with babysitting available on site for children on the spectrum. Oh I think I am getting carried away. I am not working currently but as soon as I do, I will start putting aside money for that purpose as it is hard to win that kind of money is > > > > > > , > > > My son would have one better day and the next day we r dealing with meltdowns at home, school and therapy. I get a > little hope and then it seems like there is no improvement. Even parents at his speech therapy center stare at my son as he is a tall eight year old and has very little speech and while other kids with delays are trying to play with toys, he is always stimming. Every time I explain to my mil that this symptom is yeast or that symptom is clostridia, she looks at me like I am crazy and trying to give excuses for my brain damaged kid. I still sometimes wish that all of us on the forum were living in the same neighborhood and our kids had opportunity to hang out with kids on the spectrum and NT siblings without being stared at and the moms could hang out and exchange healthy recipes. I think I am going into my fantasy world again. > > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 ok me too...I promise if i for some miracle get very rich i will set up a town like this! they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get.... To: "mb12valtrex " <mb12valtrex > Sent: Monday, December 12, 2011 10:54 PMSubject: Re: Re: Need to Vent My sister and I Talk about this all the time. With numbers the way they are, it's bound to happen. To: mb12valtrex Sent: Monday, December 12, 2011 2:27 PMSubject: Re: Need to Vent Maybe one of us should win millions/billions of dollars and can set a small town to accommodate all of us. We will need an environmentally safe playground, park, gym, school, college, a dan doctor who accepts insurance or charges a reasonable fees, shopping center, farms with non-gmo, organic, arsenic free vegetables/grains, non-hormone fed cows, chickens, etc., health clubs for parents with babysitting available on site for children on the spectrum. Oh I think I am getting carried away. I am not working currently but as soon as I do, I will start putting aside money for that purpose as it is hard to win that kind of money :)is> > >> > > , > > > My son would have one better day and the next day we r dealing with meltdowns at home, school and therapy. I get a> little hope and then it seems like there is no improvement. Even parents at his speech therapy center stare at my son as he is a tall eight year old and has very little speech and while other kids with delays are trying to play with toys, he is always stimming. Every time I explain to my mil that this symptom is yeast or that symptom is clostridia, she looks at me like I am crazy and trying to give excuses for my brain damaged kid. I still sometimes wish that all of us on the forum were living in the same neighborhood and our kids had opportunity to hang out with kids on the spectrum and NT siblings without being stared at and the moms could hang out and exchange healthy recipes. I think I am going into my fantasy world again.> > > is> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 beautiful dream. count me and my kids in. starting to save money now.tunde  ok me too...I promise if i for some miracle get very rich i will set up a town like this! they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get....  To: " mb12valtrex " <mb12valtrex > Sent: Monday, December 12, 2011 10:54 PMSubject: Re: Re: Need to Vent  My sister and I Talk about this all the time.  With numbers the way they are, it's bound to happen. To: mb12valtrex Sent: Monday, December 12, 2011 2:27 PM Subject: Re: Need to Vent  Maybe one of us should win millions/billions of dollars and can set a small town to accommodate all of us. We will need an environmentally safe playground, park, gym, school, college, a dan doctor who accepts insurance or charges a reasonable fees, shopping center, farms with non-gmo, organic, arsenic free vegetables/grains, non-hormone fed cows, chickens, etc., health clubs for parents with babysitting available on site for children on the spectrum. Oh I think I am getting carried away. I am not working currently but as soon as I do, I will start putting aside money for that purpose as it is hard to win that kind of money is > > >> > > , > > > My son would have one better day and the next day we r dealing with meltdowns at home, school and therapy. I get a> little hope and then it seems like there is no improvement. Even parents at his speech therapy center stare at my son as he is a tall eight year old and has very little speech and while other kids with delays are trying to play with toys, he is always stimming. Every time I explain to my mil that this symptom is yeast or that symptom is clostridia, she looks at me like I am crazy and trying to give excuses for my brain damaged kid. I still sometimes wish that all of us on the forum were living in the same neighborhood and our kids had opportunity to hang out with kids on the spectrum and NT siblings without being stared at and the moms could hang out and exchange healthy recipes. I think I am going into my fantasy world again.> > > is> >> -- " Our lives begin to end the day we become silent about things that matter. " MLK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Hi Channa and everyone, Been following your great discussion about a town for our families. Love this idea. I did a quick google search and there are towns for sale in the US like this one in California called Harmony..love the name. Also some old camps for sale would make a nice retreat for autism families and kids. California Town for Sale, Population Not Included http://www.nytimes.com/1997/01/01/us/california-town-for-sale-population-not-included.html This camp in Arizona is for sale. Can accomodate 160 Arizona Camp for Sale Camp Wamatochick, a beautiful 80 acre camp located in the Prescott National Forest, 1.5 hours north of Phoenix, Arizona is available for sale. The camp, which operated through summer 2010, sits on U.S. Forest Service land and the Forest Service is willing to assign the lease. CampFire of AZ is looking to sell the camp in order to focus on its social service work in downtown Phoenix and is seeking a buyer to carrying on the camping tradition at this magnificent property. Iimprovements, all in excellent condition, include a new, $1 million dining hall & kitchen and housing for 160 much of which is winterized. Additional details can be found at http://campfireaz.org/camp/camp-wamatochick.cfm Fantastic opportunity for the right person or group. http://campfireaz.org/camp/camp-wamatochick.cfm http://www.thecampprofessionals.com/ Subject: Re: Re: Need to VentTo: "mb12valtrex " <mb12valtrex >Date: Tuesday, December 13, 2011, 11:09 AM ok me too...I promise if i for some miracle get very rich i will set up a town like this! they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get.... To: "mb12valtrex " <mb12valtrex > Sent: Monday, December 12, 2011 10:54 PMSubject: Re: Re: Need to Vent My sister and I Talk about this all the time. With numbers the way they are, it's bound to happen. To: mb12valtrex Sent: Monday, December 12, 2011 2:27 PMSubject: Re: Need to Vent Maybe one of us should win millions/billions of dollars and can set a small town to accommodate all of us. We will need an environmentally safe playground, park, gym, school, college, a dan doctor who accepts insurance or charges a reasonable fees, shopping center, farms with non-gmo, organic, arsenic free vegetables/grains, non-hormone fed cows, chickens, etc., health clubs for parents with babysitting available on site for children on the spectrum. Oh I think I am getting carried away. I am not working currently but as soon as I do, I will start putting aside money for that purpose as it is hard to win that kind of money :)is> > >> > > , > > > My son would have one better day and the next day we r dealing with meltdowns at home, school and therapy. I get a> little hope and then it seems like there is no improvement. Even parents at his speech therapy center stare at my son as he is a tall eight year old and has very little speech and while other kids with delays are trying to play with toys, he is always stimming. Every time I explain to my mil that this symptom is yeast or that symptom is clostridia, she looks at me like I am crazy and trying to give excuses for my brain damaged kid. I still sometimes wish that all of us on the forum were living in the same neighborhood and our kids had opportunity to hang out with kids on the spectrum and NT siblings without being stared at and the moms could hang out and exchange healthy recipes. I think I am going into my fantasy world again.> > > is> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 it just sucks because for a lot of people relocating may be difficult if they have jobs and such,,,,but just knowing that they have this as an option would be so great and they could come for retreats..... money wont be an issue for the poor becuase we will have scholarships! again strict policy of no haters...this will be a place of acceptance no matter what your status,religion,race or gender preference...how cool is that! they wont be any clicks as i wont allow it. we will all be one click. To: mb12valtrex Sent: Tuesday, December 13, 2011 11:58 AMSubject: Re: Re: Need to Vent Hi Channa and everyone, Been following your great discussion about a town for our families. Love this idea. I did a quick google search and there are towns for sale in the US like this one in California called Harmony..love the name. Also some old camps for sale would make a nice retreat for autism families and kids. California Town for Sale, Population Not Included http://www.nytimes.com/1997/01/01/us/california-town-for-sale-population-not-included.html This camp in Arizona is for sale. Can accomodate 160 Arizona Camp for Sale Camp Wamatochick, a beautiful 80 acre camp located in the Prescott National Forest, 1.5 hours north of Phoenix, Arizona is available for sale. The camp, which operated through summer 2010, sits on U.S. Forest Service land and the Forest Service is willing to assign the lease. CampFire of AZ is looking to sell the camp in order to focus on its social service work in downtown Phoenix and is seeking a buyer to carrying on the camping tradition at this magnificent property. Iimprovements, all in excellent condition, include a new, $1 million dining hall & kitchen and housing for 160 much of which is winterized. Additional details can be found at http://campfireaz.org/camp/camp-wamatochick.cfm Fantastic opportunity for the right person or group. http://campfireaz.org/camp/camp-wamatochick.cfm http://www.thecampprofessionals.com/ Subject: Re: Re: Need to VentTo: "mb12valtrex " <mb12valtrex >Date: Tuesday, December 13, 2011, 11:09 AM ok me too...I promise if i for some miracle get very rich i will set up a town like this! they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get.... To: "mb12valtrex " <mb12valtrex > Sent: Monday, December 12, 2011 10:54 PMSubject: Re: Re: Need to Vent My sister and I Talk about this all the time. With numbers the way they are, it's bound to happen. To: mb12valtrex Sent: Monday, December 12, 2011 2:27 PMSubject: Re: Need to Vent Maybe one of us should win millions/billions of dollars and can set a small town to accommodate all of us. We will need an environmentally safe playground, park, gym, school, college, a dan doctor who accepts insurance or charges a reasonable fees, shopping center, farms with non-gmo, organic, arsenic free vegetables/grains, non-hormone fed cows, chickens, etc., health clubs for parents with babysitting available on site for children on the spectrum. Oh I think I am getting carried away. I am not working currently but as soon as I do, I will start putting aside money for that purpose as it is hard to win that kind of money :)is> > >> > > , > > > My son would have one better day and the next day we r dealing with meltdowns at home, school and therapy. I get a> little hope and then it seems like there is no improvement. Even parents at his speech therapy center stare at my son as he is a tall eight year old and has very little speech and while other kids with delays are trying to play with toys, he is always stimming. Every time I explain to my mil that this symptom is yeast or that symptom is clostridia, she looks at me like I am crazy and trying to give excuses for my brain damaged kid. I still sometimes wish that all of us on the forum were living in the same neighborhood and our kids had opportunity to hang out with kids on the spectrum and NT siblings without being stared at and the moms could hang out and exchange healthy recipes. I think I am going into my fantasy world again.> > > is> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I think a retreat would be a good option so people can have a place to getaway that is friendly and supportive w/o having to permanently relocate, leave jobs etc...realistically that would be difficult for most families I think. As far as money, some foundations have lots of cash and this would be a very worthy cause...also could register the community as a 105©3 non profit so no taxes. Subject: Re: Re: Need to VentTo: "mb12valtrex " <mb12valtrex >Date: Tuesday, December 13, 2011, 11:09 AM ok me too...I promise if i for some miracle get very rich i will set up a town like this! they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get.... To: "mb12valtrex " <mb12valtrex > Sent: Monday, December 12, 2011 10:54 PMSubject: Re: Re: Need to Vent My sister and I Talk about this all the time. With numbers the way they are, it's bound to happen. To: mb12valtrex Sent: Monday, December 12, 2011 2:27 PMSubject: Re: Need to Vent Maybe one of us should win millions/billions of dollars and can set a small town to accommodate all of us. We will need an environmentally safe playground, park, gym, school, college, a dan doctor who accepts insurance or charges a reasonable fees, shopping center, farms with non-gmo, organic, arsenic free vegetables/grains, non-hormone fed cows, chickens, etc., health clubs for parents with babysitting available on site for children on the spectrum. Oh I think I am getting carried away. I am not working currently but as soon as I do, I will start putting aside money for that purpose as it is hard to win that kind of money is > > > > > > , > > > My son would have one better day and the next day we r dealing with meltdowns at home, school and therapy. I get a > little hope and then it seems like there is no improvement. Even parents at his speech therapy center stare at my son as he is a tall eight year old and has very little speech and while other kids with delays are trying to play with toys, he is always stimming. Every time I explain to my mil that this symptom is yeast or that symptom is clostridia, she looks at me like I am crazy and trying to give excuses for my brain damaged kid. I still sometimes wish that all of us on the forum were living in the same neighborhood and our kids had opportunity to hang out with kids on the spectrum and NT siblings without being stared at and the moms could hang out and exchange healthy recipes. I think I am going into my fantasy world again. > > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 if anyone is considering relocating....look at Seattle and jobs at Microsoft. other than lack of sun, we have a good thing going here. both of my neighbors have kids on the spectrum. We have a really wonderfully supportive and inclusive neighborhood. One of my neighbors child is also SCD and the dad is always trying new recipes and bringing over SCD legal treats. There's a school designed for kids on the spectrum, the academy for precision learning that is completely subsided by the microsoft ABA benefit. Right now microsoft covers unlimited ABA at 100% (our health plan changes in 2013 and there will be a deductible) and all of our prescriptions at 100%. There's a ND DAN down the hill from us that takes insurance. There's also Dr. Green in Oregon (who we see) and dr. Klinghardt in Bellevue. There's a couple groups, TACA and FEATWA who support the community and have regular meetings. The University of Washington has a developemental preschool, EEU, that is awesome for little kids on the spectrum. We have year round farmers markets and lots of gluten free or special diet bakeries. we still face a daily uphill battle but it is made a lot easier by not feeling like outsiders. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Sounds great compared to isolation we now live in we havealready relocated to get aba for our son ireland is truly in dark ages when dealing with autismLet your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Tue, 13 Dec 2011 18:19:01 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: Need to Vent if anyone is considering relocating....look at Seattle and jobs at Microsoft. other than lack of sun, we have a good thing going here. both of my neighbors have kids on the spectrum. We have a really wonderfully supportive and inclusive neighborhood. One of my neighbors child is also SCD and the dad is always trying new recipes and bringing over SCD legal treats. There's a school designed for kids on the spectrum, the academy for precision learning that is completely subsided by the microsoft ABA benefit. Right now microsoft covers unlimited ABA at 100% (our health plan changes in 2013 and there will be a deductible) and all of our prescriptions at 100%. There's a ND DAN down the hill from us that takes insurance. There's also Dr. Green in Oregon (who we see) and dr. Klinghardt in Bellevue. There's a couple groups, TACA and FEATWA who support the community and have regular meetings. The University of Washington has a developemental preschool, EEU, that is awesome for little kids on the spectrum. We have year round farmers markets and lots of gluten free or special diet bakeries. we still face a daily uphill battle but it is made a lot easier by not feeling like outsiders. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I'd be willing to bet we start to see apartment complexes go up catering to people on the spectrum. The same way we see elderly housing and housing for the handicapped. At the very least, ASD people will probably migrate toward one another into certain neighborhoods and form communities of their own. Then you will see public transportation and surrounding businesses catering to their needs and offering products/services they require and desire. They would most likely hire them, as well. The numbers are staggering. Eventually, cities and states will have to address the Autistic'srole in the community. There's really no way around it. Let's face it, us parents aren't going to live forever.-Tammy To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, December 13, 2011 11:09 AM Subject: Re: Re: Need to Vent ok me too...I promise if i for some miracle get very rich i will set up a town like this! they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get.... To: "mb12valtrex " <mb12valtrex > Sent: Monday, December 12, 2011 10:54 PMSubject: Re: Re: Need to Vent My sister and I Talk about this all the time. With numbers the way they are, it's bound to happen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Wow, Mardella, that sounds really awesome! My hubby works for Microsoft and makes several trips to Seattle every year. He's told me how beautiful it is and I'll finally be taking our asd son and going with him on his next trip there in a few months. I plan on looking around with my little boy during the day while my husband is in meetings while we're there b/c we would like to move somewhere else. We live in land now. Thanks for your post, I'm excited to check it out. My husband and I watched a video about that school you mentioned for asd kids in Bellevue, it looked amazing. He's working w/ a team of other Microsoft employees to come up with software and programs for autistic kids like they use at the school, especially for non-verbal kids like our son. Btw, my husband says nearly every time he visits Seattle it's sunny, but that's pretty rare, right? I get a touch of seasonal affective disorder every winter...Soraya if anyone is considering relocating....look at Seattle and jobs at Microsoft. other than lack of sun, we have a good thing going here. both of my neighbors have kids on the spectrum. We have a really wonderfully supportive and inclusive neighborhood. One of my neighbors child is also SCD and the dad is always trying new recipes and bringing over SCD legal treats. There's a school designed for kids on the spectrum, the academy for precision learning that is completely subsided by the microsoft ABA benefit. Right now microsoft covers unlimited ABA at 100% (our health plan changes in 2013 and there will be a deductible) and all of our prescriptions at 100%. There's a ND DAN down the hill from us that takes insurance. There's also Dr. Green in Oregon (who we see) and dr. Klinghardt in Bellevue. There's a couple groups, TACA and FEATWA who support the community and have regular meetings. The University of Washington has a developemental preschool, EEU, that is awesome for little kids on the spectrum. We have year round farmers markets and lots of gluten free or special diet bakeries. we still face a daily uphill battle but it is made a lot easier by not feeling like outsiders. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 i think the bottom line is we need to keep reaching out to each other....i have a friend i met online who lives in california...she invited me to go live out there so she could be a support network for me....super awesome kind of her as she doesnt even know me but from emails.... but i think the community we have goin here with this amazing group is a huge start.....i never seen this kind of love in any other group and i am on a lot of them.... channa To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, December 13, 2011 2:12 PMSubject: Re: Re: Need to Vent I'd be willing to bet we start to see apartment complexes go up catering to people on the spectrum. The same way we see elderly housing and housing for the handicapped. At the very least, ASD people will probably migrate toward one another into certain neighborhoods and form communities of their own. Then you will see public transportation and surrounding businesses catering to their needs and offering products/services they require and desire. They would most likely hire them, as well. The numbers are staggering. Eventually, cities and states will have to address the Autistic's role in the community. There's really no way around it. Let's face it, us parents aren't going to live forever. -Tammy To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, December 13, 2011 11:09 AMSubject: Re: Re: Need to Vent ok me too...I promise if i for some miracle get very rich i will set up a town like this! they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get.... To: "mb12valtrex " <mb12valtrex > Sent: Monday, December 12, 2011 10:54 PMSubject: Re: Re: Need to Vent My sister and I Talk about this all the time. With numbers the way they are, it's bound to happen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Mardella, when I first posted about my fantasy world, I did'nt realize that so many parents have similar thoughts and my fantasy world could actually become a reality. I love what u r describing about Seattle and I would love to move there but I have noticed that my son becomes very foggy in rain and we were thinking it could be from all the mold around us. R u or other parents dealing with mold issues in their kids? I personally don't really need sun but I am not sure how my son would do in Seattle. Let me know what u think about mold. Thanks everyone for supporting the idea of our own neighborhood:). Maybe this dream will come true. is > > if anyone is considering relocating....look at Seattle and jobs at Microsoft. > > other than lack of sun, we have a good thing going here. both of my neighbors have kids on the spectrum. We have a really wonderfully supportive and inclusive neighborhood. One of my neighbors child is also SCD and the dad is always trying new recipes and bringing over SCD legal treats. There's a school designed for kids on the spectrum, the academy for precision learning that is completely subsided by the microsoft ABA benefit. Right now microsoft covers unlimited ABA at 100% (our health plan changes in 2013 and there will be a deductible) and all of our prescriptions at 100%. There's a ND DAN down the hill from us that takes insurance. There's also Dr. Green in Oregon (who we see) and dr. Klinghardt in Bellevue. There's a couple groups, TACA and FEATWA who support the community and have regular meetings. The University of Washington has a developemental preschool, EEU, that is awesome for little kids on the spectrum. We have year round farmers markets and lots of gluten free or special diet bakeries. > > we still fa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Tammy, this is what scares me most that what if something happens to me or my husband? Who will take care of my kid? I agree we need to start working on our own community asap. I will start thinking of some ideas and start saving some money by cutting expensis. is > > I'd be willing to bet we start to see apartment complexes go up catering to people on the spectrum. The same way we see elderly housing and housing for the handicapped.  At the very least, ASD people will probably migrate toward one another into certain neighborhoods and form communities of their own. Then you will see public transportation and surrounding businesses catering to their needs and offering products/services they require and desire.  They would most likely hire them, as well. The numbers are staggering.  Eventually, cities and states will have to address the Autistic's > role in the community.  There's really no way around it.  Let's face it, us parents aren't going to live forever. > > > -Tammy > > ________________________________ > > To: " mb12valtrex " <mb12valtrex > > Sent: Tuesday, December 13, 2011 11:09 AM > Subject: Re: Re: Need to Vent > > >  > ok me too...I promise if i for some miracle get very rich i will set up a town like this! > they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get.... >  > > > To: " mb12valtrex " <mb12valtrex > > Sent: Monday, December 12, 2011 10:54 PM > Subject: Re: Re: Need to Vent > > >  > My sister and I Talk about this all the time.  With numbers the way they are, it's bound to happen. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I have been hearing talk of this alot of Facebook lately as well.Maybe its in the works...we can only hope right?Melinda To: mb12valtrex Sent: Tuesday, December 13, 2011 10:58 AM Subject: Re: Re: Need to Vent Hi Channa and everyone, Been following your great discussion about a town for our families. Love this idea. I did a quick google search and there are towns for sale in the US like this one in California called Harmony..love the name. Also some old camps for sale would make a nice retreat for autism families and kids. California Town for Sale, Population Not Included http://www.nytimes.com/1997/01/01/us/california-town-for-sale-population-not-included.html This camp in Arizona is for sale. Can accomodate 160 Arizona Camp for Sale Camp Wamatochick, a beautiful 80 acre camp located in the Prescott National Forest, 1.5 hours north of Phoenix, Arizona is available for sale. The camp, which operated through summer 2010, sits on U.S. Forest Service land and the Forest Service is willing to assign the lease. CampFire of AZ is looking to sell the camp in order to focus on its social service work in downtown Phoenix and is seeking a buyer to carrying on the camping tradition at this magnificent property. Iimprovements, all in excellent condition, include a new, $1 million dining hall & kitchen and housing for 160 much of which is winterized. Additional details can be found at http://campfireaz.org/camp/camp-wamatochick.cfm Fantastic opportunity for the right person or group. http://campfireaz.org/camp/camp-wamatochick.cfm http://www.thecampprofessionals.com/ Subject: Re: Re: Need to VentTo: "mb12valtrex " <mb12valtrex >Date: Tuesday, December 13, 2011, 11:09 AM ok me too...I promise if i for some miracle get very rich i will set up a town like this! they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get.... To: "mb12valtrex " <mb12valtrex > Sent: Monday, December 12, 2011 10:54 PMSubject: Re: Re: Need to Vent My sister and I Talk about this all the time. With numbers the way they are, it's bound to happen. To: mb12valtrex Sent: Monday, December 12, 2011 2:27 PMSubject: Re: Need to Vent Maybe one of us should win millions/billions of dollars and can set a small town to accommodate all of us. We will need an environmentally safe playground, park, gym, school, college, a dan doctor who accepts insurance or charges a reasonable fees, shopping center, farms with non-gmo, organic, arsenic free vegetables/grains, non-hormone fed cows, chickens, etc., health clubs for parents with babysitting available on site for children on the spectrum. Oh I think I am getting carried away. I am not working currently but as soon as I do, I will start putting aside money for that purpose as it is hard to win that kind of money :)is> > >> > > , > > > My son would have one better day and the next day we r dealing with meltdowns at home, school and therapy. I get a> little hope and then it seems like there is no improvement. Even parents at his speech therapy center stare at my son as he is a tall eight year old and has very little speech and while other kids with delays are trying to play with toys, he is always stimming. Every time I explain to my mil that this symptom is yeast or that symptom is clostridia, she looks at me like I am crazy and trying to give excuses for my brain damaged kid. I still sometimes wish that all of us on the forum were living in the same neighborhood and our kids had opportunity to hang out with kids on the spectrum and NT siblings without being stared at and the moms could hang out and exchange healthy recipes. I think I am going into my fantasy world again.> > > is> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 That is so wonderful to hear.I have been wanting to relocate there for some time but hubby has a civil service job (fire dept) that he doesnt want to leave.Our homeopath is in Oregon.It seems to me that Portland/Seattle areas have alot of things that I desire in life-more progressive way of thinking,etc.I am so bored here in the South and the majority of people are very close minded about many things.Thanks for sharing thats very encouraging. Melinda To: mb12valtrex Sent: Tuesday, December 13, 2011 12:19 PM Subject: Re: Need to Vent if anyone is considering relocating....look at Seattle and jobs at Microsoft. other than lack of sun, we have a good thing going here. both of my neighbors have kids on the spectrum. We have a really wonderfully supportive and inclusive neighborhood. One of my neighbors child is also SCD and the dad is always trying new recipes and bringing over SCD legal treats. There's a school designed for kids on the spectrum, the academy for precision learning that is completely subsided by the microsoft ABA benefit. Right now microsoft covers unlimited ABA at 100% (our health plan changes in 2013 and there will be a deductible) and all of our prescriptions at 100%. There's a ND DAN down the hill from us that takes insurance. There's also Dr. Green in Oregon (who we see) and dr. Klinghardt in Bellevue. There's a couple groups, TACA and FEATWA who support the community and have regular meetings. The University of Washington has a developemental preschool, EEU, that is awesome for little kids on the spectrum. We have year round farmers markets and lots of gluten free or special diet bakeries. we still face a daily uphill battle but it is made a lot easier by not feeling like outsiders. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I know you can buy 200 acres in El Paso for $16,000. I wonder if you could get similar deals in the N.W. Ultimately, that is where I'd love to be. Washington-Oregon....around there somewhere. I dream of a ranch with grass fed cattle. Horses to enjoy...fresh fruits and vegetables at our disposal....fresh water... windmills and solar power....home-based schooling. A simple way of life. Ooooooooh! Just the thought! To: mb12valtrex Sent: Tuesday, December 13, 2011 6:24 PM Subject: Re: Need to Vent Tammy, this is what scares me most that what if something happens to me or my husband? Who will take care of my kid? I agree we need to start working on our own community asap. I will start thinking of some ideas and start saving some money by cutting expensis. is > > I'd be willing to bet we start to see apartment complexes go up catering to people on the spectrum. The same way we see elderly housing and housing for the handicapped. At the very least, ASD people will probably migrate toward one another into certain neighborhoods and form communities of their own. Then you will see public transportation and surrounding businesses catering to their needs and offering products/services they require and desire. They would most likely hire them, as well. The numbers are staggering. Eventually, cities and states will have to address the Autistic's > role in the community. There's really no way around it. Let's face it, us parents aren't going to live forever. > > > -Tammy > > ________________________________ > > To: "mb12valtrex " <mb12valtrex > > Sent: Tuesday, December 13, 2011 11:09 AM > Subject: Re: Re: Need to Vent > > > > ok me too...I promise if i for some miracle get very rich i will set up a town like this! > they will have to sign agreement to never be a backstabber or hater, or they will be kicked out per channas town rules. all kidding aside can you imagine the comfort so many people would get.... > > > > To: "mb12valtrex " <mb12valtrex > > Sent: Monday, December 12, 2011 10:54 PM > Subject: Re: Re: Need to Vent > > > > My sister and I Talk about this all the time. With numbers the way they are, it's bound to happen. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I don't think Oregon is as anti-vax friendly as some of the western states. I think Colorado may be more hippy than Oregon anymore but I don't know for sure.  I know you can buy 200 acres in El Paso for $16,000. I wonder if you could get similar deals in the N.W. Ultimately, that is where I'd love to be. Washington-Oregon....around there somewhere. I dream of a ranch with grass fed cattle. Horses to enjoy...fresh fruits and vegetables at our disposal....fresh water... windmills and solar power....home-based schooling.  A simple way of life. Ooooooooh! Just the thought! -- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565 --------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565 ------Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 home schooling = I don't have to give a $*% & $ if they're anti-vacc or not.At this point, Maine is the most viable option, anyway. But a girl can dream ; ) To: mb12valtrex Sent: Tuesday, December 13, 2011 8:11 PM Subject: Re: Re: Need to Vent I don't think Oregon is as anti-vax friendly as some of the western states. I think Colorado may be more hippy than Oregon anymore but I don't know for sure.- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565 --------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565 ------Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 In all seriousness, there is no need to do this. Does your area have a " challenger " -type sports league? If not, it's not too tough to do. All you need is a group of dedicated parents and someplace to go. You can search for this on FB: Toledo Area Challenged Athletes League (T.A.C.A.L.) My town is not very large, but we have a lot of supports through our area Autism Society, autism charter schools, health care/therapy providers, service providers, etc. There is a lot of opportunity for social interaction (for parents, too!) and no one - no one - cares if your kid has a melt down or tries to hit you. > > ok me too...I promise if i for some miracle get very rich i will set up a town like this!... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 oh no. not where I live....i been trying to seek out support groups .......all that stuff...for years went to one support group an hour a way...but none of them did biomed...and it met once a month ....people dont seem to want to make an effort the ones I met...are you kidding I am the adult that would get in your face and be like .."lets be friends" but dont meet to many other parents who are like that. the one i went to was in a more fluent neighborhood... all this big plastic smile crap...ohhhh...HIIIIIIIIIIII!!!!!..........but no one seemed to want to really connect. oy vey. what can you do. I got you guys. To: mb12valtrex Sent: Tuesday, December 13, 2011 8:32 PMSubject: Re: Need to Vent In all seriousness, there is no need to do this.Does your area have a "challenger"-type sports league? If not, it's not too tough to do. All you need is a group of dedicated parents and someplace to go.You can search for this on FB:Toledo Area Challenged Athletes League (T.A.C.A.L.)My town is not very large, but we have a lot of supports through our area Autism Society, autism charter schools, health care/therapy providers, service providers, etc. There is a lot of opportunity for social interaction (for parents, too!) and no one - no one - cares if your kid has a melt down or tries to hit you.>> ok me too...I promise if i for some miracle get very rich i will set up a town like this!... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.