V V or PN? Help! I don't want unneccessary surgery!

June 11, 2008

I had a pelvic exam today and got thrown a REAL curve ball. I am

confused and don't know what to do. I DEFINITELY don't want

unnecessary surgery.

Here is what happened. I had an excrutiating pelvic exam. I went in

thinking that I was going to tell the doctor I wanted to schedule a

vestibulectomy. In late 2006 he had diagnosed me with vulvar

vestibulitis. Today he told me he believes I have pudendal

neuropathy!!OMG! I wasn't expecting that at all. I asked him why PN

and NOT VV. Well, I wasn't red where he thought I should be. I

didn't respond to pain with manipulation. And yet, it was a VERY

painful examination. It seems like my pain is very localized to the

vestibule/opening. If it were PN would that be the case?

He wanted me to come back andthen he would give me a steroid

injection in the pudendal nerve. He said I would have to come back

every 2 or 3 months and that it would be a long process. I guess I

have been so stuck on the vv diagnosis for so long that I said I

didn't want the injection, I wanted a vestibulectomy. So NOW they are

scheduling surgery for a vestibulectomy!!!!!

Some of you may remember that I was concerned because he typically

removes the Bartholin's glands when he does a vestibulectomy. He

said for me he would NOT remove them because that would make my

pudendal neuropathy worse. Could it be that I have BOTH conditions?

Does anyone here think I should have the injection? If it worked

would that mean that I DON'T have VV? Again, if a vestibulectomy

will not help me, I don't want to go through it. And why do you

think he would agree to the surgery? It's not like a patient

requesting aprescription for goodness sake! I went to the PN site

nne recommended. So much of it sounded like me that now I

really AM confused.

I need help and advice, PLEASE!!! A second opinion isn't feasible.

This doctor is a leader in the field and there isn't another doctor

for this within 100 miles.

Thanks in advance, Marcia Sorry, for some words running

together...can't seem to fix it!

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