secondary schlerosing cholangitis

[Guest guest]

It's been a long time since I posted but I have a quick question.

Does anyone know how you can discern whether or not a person has

primary or secondary schlerosing cholangitis. Also, is there a real

difference in the prognosis? I have been harboring the belief that

this is what our son has since he seriously overexposed himself to

insecticide on numerous, and may I add foolish, occasions. He was

obsessed with ridding our home of wasps nests and no matter what we

told him he persevered. He went through more cans of spray than I now

care to think about. Any input would be appreciated.

My best to all.

Joan, mom of 20, psc2004-normal lfts and asymptomatic

[Guest guest]

I am also curious about secondary sclerosing cholangitis.

My GI thinks that's what I have based on 2 facts. My colonoscopy had

normal results and I had bile duct stones, which he believes caused

the damage. I am not convinced, but he said my ducts, which clearly

show beading, may never get worse.

Unless I start experiencing PSC symptoms, I may never know. (He

claims all my digestive problems are a result of not having a

gallbladder, and dismissed my other complaints.)

Regardless, my ducts are very narrow, and I believe alcohol could

still increase risk for CCA. My doctor did not say I should not

drink, only that I shouldn't get " falling down drunk. " At this

point, nothing he says surprises me...

Lori in Alaska

PSC June '07 - call me a realist

> Does anyone know how you can discern whether or not a person has

> primary or secondary schlerosing cholangitis. Also, is there a real

> difference in the prognosis?

[Guest guest]

For those interested in secondary sclerosing cholangitis and how it

differs from primary scleroising cholangitis, can I recommend reading

this article:

Abdalian R, Heathcote EJ 2006 Sclerosing cholangitis: a focus on

secondary causes. Hepatology 44: 1063-1074.

I will post the full text of the article into the " files/Research "

folder shortly.

Dave R.

>

> I am also curious about secondary sclerosing cholangitis.

>

> > Does anyone know how you can discern whether or not a person has

> > primary or secondary schlerosing cholangitis. Also, is there a real

> > difference in the prognosis?