Re: : A hypothesis on UC/PSC - OT

[Guest guest]

>> Thanks for your kind words. I know that you probably

>> only meant this in jest,

I most certainly was NOT jesting! No one (not even the youngest of

investigators)spends as much time searching, reading and/or studying

PSC. You & I'm sure Judy too, live & breath PSC, as many of us do.

Anyone smart enough, who has the right tools, can learn to be a

researcher, but it's going to take a person with real passion and the

eye of the tiger, to find a cure - you have both of those in spades.

I also disagree that any idea might be counterproductive. Necessity

is the mother of all inventions - every treatment or cure came about

because someone somewhere said " I wonder. "

Has anyone stepped up to help you pay for your web sites? If not,

please let us know so we can contribute to their upkeep.

Keep up the good work, we do appreciate it, more than you know.

With love, Barb in Texas

Son Ken (33) UC 91 PSC 99

Tx 6/21 & 6/30 @ Baylor in Dallas

[Guest guest]

Barb,

It was this year, 2007. that Ken had his transplants, but I do agree with what you said about !

Ian (51) PSC 89

On 9/12/07, barbhenshaw@... <barbhenshaw@...

> wrote:

>> Thanks for your kind words. I know that you probably >> only meant this in jest,I most certainly was NOT jesting! No one (not even the youngest of investigators)spends as much time searching, reading and/or studying PSC. You & I'm sure Judy too, live & breath PSC, as many of us do. Anyone smart enough, who has the right tools, can learn to be a researcher, but it's going to take a person with real passion and the eye of the tiger, to find a cure - you have both of those in spades.I also disagree that any idea might be counterproductive. Necessity is the mother of all inventions - every treatment or cure came about because someone somewhere said " I wonder. " Has anyone stepped up to help you pay for your web sites? If not, please let us know so we can contribute to their upkeep.Keep up the good work, we do appreciate it, more than you know.

With love, Barb in TexasSon Ken (33) UC 91 PSC 99Tx 6/21 & 6/30 @ Baylor in Dallas -- Ian Cribb P.Eng.

[Guest guest]

My mistake, I saw the 6 and I though you were getting the wrong year!

Ian

Barb,

It was this year, 2007. that Ken had his transplants, but I do agree with what you said about !

Ian (51) PSC 89

On 9/12/07, barbhenshaw@...

<barbhenshaw@... > wrote:

>> Thanks for your kind words. I know that you probably >> only meant this in jest,I most certainly was NOT jesting! No one (not even the youngest of investigators)spends as much time searching, reading and/or studying PSC. You & I'm sure Judy too, live & breath PSC, as many of us do. Anyone smart enough, who has the right tools, can learn to be a researcher, but it's going to take a person with real passion and the eye of the tiger, to find a cure - you have both of those in spades.I also disagree that any idea might be counterproductive. Necessity is the mother of all inventions - every treatment or cure came about because someone somewhere said " I wonder. " Has anyone stepped up to help you pay for your web sites? If not, please let us know so we can contribute to their upkeep.Keep up the good work, we do appreciate it, more than you know. With love, Barb in TexasSon Ken (33) UC 91 PSC 99Tx 6/21 & 6/30 @ Baylor in Dallas

-- Ian Cribb P.Eng. -- Ian Cribb P.Eng.

[Guest guest]

Hi Barb;

Thanks again for the kind words, and your concern about the funding of

the web sites. As I mentioned yesterday, Ricky and I just applied for

and received a $9,000 grant from Cordis Corporation to pay for the web

sites for the next 3 years. So we are pretty well positioned for their

upkeep for the foseeable future.

I hope that Ken is showing signs of improvement after the CMV diagnosis

amd treatment. Let me say that he's a pretty tough guy to have come

through this ordeal ... and has has some really strong parents too!

Best regards,

Dave R.

> Has anyone stepped up to help you pay for your web sites? If not,

> please let us know so we can contribute to their upkeep.