A surprise side effect of radiation?

[Guest guest]

just finished radiation therapy for CCA in preparation for LTx. His dr was

surprised to

find that all of the strictures in the radiated area were gone. His bile ducts

look normal.

Has this happened to anyone else?

(basket case),

(wife of , psc 1995, CCA 5-07)

[Guest guest]

& ,

No I haven't heard of this one before, but I do believe in miracles and some things cannot be explained any other ways. Praise the Lord!! Does this mean doesn't need the transplant?

Ian (51) PSC 89

just finished radiation therapy for CCA in preparation for LTx. His dr was surprised to find that all of the strictures in the radiated area were gone. His bile ducts look normal.Has this happened to anyone else? (basket case),(wife of , psc 1995, CCA 5-07) -- Ian Cribb P.Eng.

[Guest guest]

and ,

That is such good news! I only hope my dad receives similar news next

week. He also has CCA and has just completed his first round of

chemotherapy - his CT scan is due tomorrow, results expected next

Wednesday. He lives in England, but has been in touch with Dr

Schwartz (Uni of Utah) with a view to coming to the USA for

chemoradiation - it's just riduculous that in Britain they refuse to

give radiation for CCA!!

Hope you both continue to do well,

e

[Guest guest]

Ian,

It is a miracle. Family and friends have fasted and prayed on our behalf these

last few

months. Praising the Lord is definitely in process.

There is still evidence of the PSC in the outer areas of the liver where the

radiation was not as

concentrated. There is no way to know if there is cholangiocarcinoma in those

areas. CCa is

so deadly we are not taking any chances. It is such a miracle they found it at

stage 0.

Thru the CCa protocol at the University of Utah hospital, has been gifted

a meld of 22

even though his natural MELD is less than 2. He has made it thru chemo and

radiation and

will have the staging surgery tomorrow to ensure that the CCa has not spread

anywhere else.

If all goes well, he will be put on active status on the transplant list where

the anticipated wait

is less than 3 months.

It has been the most difficult summer of our lives but we have never felt so

blessed and

watched over. Heaven help us thru this next week.

Franson,

(basket case, wife of , psc 1995, CCa 5-2007)