When should you worry about symptoms?

[Guest guest]

My hepa told me that people can get infections in the bile ducts and

some other stuff (ascities, cancer, etc) but he didn't tell me what

types of things to look out for. Probably because I'm really early

still but I don't know.

I'm wondering because I feel like crap, lol. What's new huh? But

really, my RUQ pain is worse than it usually is and the darvocet

just isn't cutting it. And tummy's really bloated (not tender

though) and I'm so nauseous (more than usual).

So I'm not sure if this is normal or not, or if I'm just getting a

stomach bug, but the URQ pain you wouldn't get with a stomach bug,

right? I don't think I have a fever or anything.

Anyway....sorry that got long. What do I need to look out for???

Thanks!

PSC 8/07

PBC 10/06 (probably)

[Guest guest]

Could be sludgy bile - are you getting enough liquids? Thickened bile is more

difficult to pass through our (already) narrowed ducts.

I've been told to get myself to the ER if I have fever, chills with dark

(cola-colored) urine, pale stools, URQ pain (although mine was always central).

Not much fun, for sure. Some people also report vomiting with their cholangitis

episodes.

Something to ask your hep next time - keep a list, or you'll forget (of course,

that may not be a problem for someone as young as you!).

Arne

---- jmhette2 wrote:

=============

....but he didn't tell me what types of things to look out for...

[Guest guest]

>

> My hepa told me that people can get infections in the bile ducts

What do I need to look out for???

>

> Thanks!

>

>

> PSC 8/07

> PBC 10/06 (probably)

>

Hi

Its a hard question,

I had a bile duct infection a couple of years ago and knew almost

straight away, the clinchers were dark urinue, light coloured bowel

motions, not thinking straight, RUQ pain and nausea. Got a

pescription of Cipflox and felt better very quickly.

HHHAAAA a couple of weeks ago I felt like you, fatigued - just a bit

more than usual, darker urine and lighter coloured bowel motions -

just a bit, RUQ pain - but not really bad, nausea - perhaps a bit

worse than usual. I think I was thinking reasonably clearly and I

was making sure I drank lots of water. Then out of the blue I

started shaking.....took my temperature which was up very slightly,

hmmm I thought the PSC group would say go immediately to the

emergency Dept... which is about an hour away, by then I was

vomiting, had bad RUQ pain, a temp of 39.7C (103F) and much to my

embarrasment fainting on the floor with an emergency team descending

on me. Was taken in immediately (ith my folder of blood test

results/letters etc - it was good as the staff knew immediately how

to spell PSC - grin). Spent the next 6 days on IV Meropenem and

Metronidazole in hosptial. The inital LFT blood tests they took

showed not much difference to what they are usually, in fact they

went down. At home now feeling better, but I am amazed how quickly

the infection took hold. I am getting my strength back slowly.

Thinking back I would not have gone to the Doctor, as there seemed to

be no particular symptom that would justify (even in my eyes)

pescribing an antibiotic. I am going to discuss the lead up to the

attack with my Doctor when I go back for a follow up appointment and

see what he says.

Sorry I haven't answered your question. But I think after my minor

drama I would go and ask for some antibiotics.

Hope this helps.

from the bottom of the world in New Zealand

[Guest guest]

Thanks you guys. Now I have a fever, lol. Jinxed myself. I woke up

at 1 amd and my fever is 103.2. Crap....I have 4 kids and hubby's

away on business. guess it'll have to wait till morning.

THank again. THis board is wonderful!

PSC 8/07

PBC 10/06 (probably)

[Guest guest]

,

Get someone in to watch the kids and get to the hospital. I'm praying for you.

Ian

Thanks you guys. Now I have a fever, lol. Jinxed myself. I woke up at 1 amd and my fever is 103.2. Crap....I have 4 kids and hubby's away on business. guess it'll have to wait till morning.THank again. THis board is wonderful!

PSC 8/07PBC 10/06 (probably) -- Ian Cribb P.Eng.

[Guest guest]

Hi ,

I've tried twice to respond to your posting and kept loosing my internet

connection. Sorry.

I can't help alot with symptoms but checking for fever (sounds like you

have one), checking the color of stools, urine, and the whites of your

eyes, and staying hydrated are all things we can do without the help of

doctors.

It sounds like now is the time for you to see yours!

I understand the 4 kids part, we have 4 kids also. Can you get help

from family, friends or church to watch the kids while you care for

yourself?

Please don't delay. I'll pray for you and your family also.

- 45

PSC, Crohns 2000

>

> Thanks you guys. Now I have a fever, lol. Jinxed myself. I woke up

> at 1 amd and my fever is 103.2. Crap....I have 4 kids and hubby's

> away on business. guess it'll have to wait till morning.

>

> THank again. THis board is wonderful!

>

>

> PSC 8/07

> PBC 10/06 (probably)

>

[Guest guest]

>

> Thanks you guys. Now I have a fever, lol. Jinxed myself. I woke up

> at 1 amd and my fever is 103.2. Crap....I have 4 kids and hubby's

> away on business. guess it'll have to wait till morning.

>

> THank again. THis board is wonderful!

>

>

> PSC 8/07

> PBC 10/06 (probably)

>

Hi

Just checking if you got over the infection OK?

Best wishes

[Guest guest]

THanks for checking on me. :-)

I went to the ER and was told I had a stomach virus that was going

around but after 4 days I still had the fever and stuff so went to my

PCP and talked to her. My LFTs were still okay but she prescribed

cipro just to cover our bases. I am feeling better. Cipro itself

makes me sick but I'm getting better. Still feel yucky. Not sure if

it was cholangitis but it was something and I don't want to take any

chances.

Thanks!

24 from NE

PSC 8/07

PBC 10/06 (probably)