Dee/Hollis/Emla Cream

[Guest guest]

Dee – did I read that you won’t get a Mamogram?

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Dee Troll

Sent: Sunday, June 15, 2008 8:47 PM

To: VulvarDisorders

Subject: Re: Hollis/Emla Cream



HI Hollis.

I've gotcha and understand now. I can't blame

you for not wanting a biopsy 'unless' there is some suspicion of vulvar cancer

with a specific spot or lesion that simply will not heal and is chronic (if so

you'd bet I'd do one in a NY Heartbeat) .. but if LS or LP is suspected many

physicians will treat 'as if' first anyway and an experienced doctor usually

can tell by the looks. (perhaps not to differentiate between LS & LP but

treatments are basically the same.... EXCEPT.. LS is external where you can see

it all.. and LP can be external 'and' 'internal' and often with a

yellowish discharge.. and if so then a steroid suppository is needed

inside the vagina to keep the vaginal vault from fusing together,

(talk about that closing up YIKES)...

Typical protocol is the strongest steroid like the topical

generic clobetasol, (since those conditions start at the basement level and

need a steroid that's the most potent to reach that level).. and with minimal

usage, but there is nothing better in the world that I've ever found that

will release those adhesions (fusing) than the 'estradiol'... or Estrace (brand

name)...

So if you've got that I sure would be using it hon... It

definitely worked for me after my 'frilly's were solidly fused like that for 3

years and it still released those adhesions, and soooo so many

others that have LS. I've collected hundreds of testimonys over the years to

it's effect and I've read so many articles that talk about it

being used for unfusing labial adhesions even in kids and in a recent Cont.

Med. Ed Class I see where they're teaching it 'finally', and it's

used topically with little or no systemic absorption.

Also have you checked around the anal area for discoloration

or that white/greyish color to the skin? (sort of like wet crinkled

cigarette paper look) It's known to go there as well, they call it

a figure 8 pattern... as it can rim the front and/or the back side.

Just know it can be controlled and that skin return to normal if it is

hon. (the good ol' E & T again) *smile*

Glad to hear the traumeel is working for you and hope if you

do try to Capsacin it helps... ...except.... I will say that IF it is LS

or LP.... anything that could cause more trauma to the tissue is really

bad news and can cause even more scar tissue (called the Koebner

phenomenon, well known with LS) .... that includes any surgery (why it is

rarely suggested for LS) or the overuse and abuse of the steroids, or

abuse of the intravaginal yeast meds and I would think esp. the Capsaicin since

that can irritate too.

In one way I wish it were LS as that can be fairly

well contained and life be normal again as far as that V pain if it is

that, I just wish all the other things going on with you could be so easily

controlled.

I too have told a doctor I'd sign a release of

liability when I first had a hard time getting my hormones without a

mammogram.... still have never had one and won't but that's just 'me'... but TG

he gave them to me. Doesn't even question me now. *grin*

Glad you're with Kellogg Spadt too... from everything

I've ever heard about her, she's great and the people seem to love her.

It's rare to not hear some negatives about almost all physicians,

but I don't think I ever have about her.

Take care hon and be sure to let us know how things go.

Hugs

Dee ~