Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Hello All, For those who have had a PTC, are there typical bile drainage volumes that you came to expect? I'm in the range of 2800 ml per day, when I read that typical bile outputs for a healthy person is in the range of 400-800 ml per day. Although that's the first full day of having this drain. I'm wondering if that amount will reduce with time. Are there negative effects to draining too much bile? Thanks ... Micahel - 45 PSC, Crohns 2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Although possibly unpleasant, you may be interested in reading message 47169 and threads (reproduced below). Arne - RE: Steve,Tim,BarbUK,Ron Before I made the decision to, I didn’t know you could either. And my Doctors certainly didn’t know you could. But, as I said, the alternative was having an NG tube hanging out of my nose and “looped over my ear†(my Doctor’s exact words for what to do with the tube when I was done emptying the bile into the tube), and I just didn’t want to do that. I figured that if it was ok to get it into my stomach through an NG tube, than it shouldn’t be any problem getting it there by drinking it, and that there had to be a way to make it palatable enough to drink it. Turned out not to be half as bad as some of the stuff I got fed during Fraternity pledging. Getting the bile back into my system was the only way to keep me alive long enough for them to figure out how to reconnect the liver to the jejeunum, so yes, it did what it was supposed to. As for the possibility that you might have to do it some day…I don’t think that has a high probability. I’ve never heard of anyone else doing it, and it only worked in my case because by the time they diagnosed my PSC, although the Common Bile Duct was completely occluded, about half of the liver was still unaffected. Not my preferred after dinner beverage, either, but you do what you gotta do. Steve R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 >Whoa....before you start drinking your bile...bile is excreted into the duodenum and is never in the stomach. It is pretty corrosive stuff. - your case sounds eerily similar to my brothers. His CBD was completely obstructed and had a PTC for 5 months. His bile output was large and although I can't give you an exact amount, he emptied his bag 4-5 times a day even once at night. I would guess he was in the range of 2000 ml/day. Biggest risk with heavy bile drainage is dehydration. In a well person, the liquid in the bile is reabsorbed in the intestines and the remaining solids are excreted in feces (the dark color). You need to replace that volume of liquid that you are empting out of your bag each day by drinking more. As I recall even though your duct seemed obstructed you were still getting bile to your intestines as you could tell by the color. I would imagine you will reach the point where all is going into the bag. You then might experience some problems digesting fat and they will be seen in your stool. People can go on indefinitely with a PTC and all their bile draining to the bag and still live an active life. By the way, when they did surgery to get the CCA out of my brother, they found none. What looks like CCA and acts like CCA is not always CCA, sometimes it is just PSC. I am hoping for the same results for you!!!! Judy > > Hello All, > > For those who have had a PTC, are there typical bile drainage volumes > that you came to expect? > > I'm in the range of 2800 ml per day, when I read that typical bile > outputs for a healthy person is in the range of 400-800 ml per day. > Although that's the first full day of having this drain. I'm wondering > if that amount will reduce with time. > > Are there negative effects to draining too much bile? > > > > Thanks ... > > > > Micahel - 45 > > PSC, Crohns 2000 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Judy, Thanks for sharing your brothers story. I'll start to increase my water and Gatorade intake just for the fluids. As far as the PTC drain, it just hurts when I breathe deep or burp or hiccup or laugh. It feels like a knife going in my side. I hope to get rid of this ASAP. I know that means the CBD has to be open or the bile needs to be going into the gut somehow, like Roux En Y (HJ). Regarding the CCA; I like happy endings like your brothers. Thanks for the hope. Please pray for a diagnosis of no cancer in me. Thanks Judy ... - 45 PSC, Crohns 2000 > >Whoa....before you start drinking your bile...bile is excreted into > the duodenum and is never in the stomach. It is pretty corrosive > stuff. > > - your case sounds eerily similar to my brothers. His CBD > was completely obstructed and had a PTC for 5 months. His bile > output was large and although I can't give you an exact amount, he > emptied his bag 4-5 times a day even once at night. I would guess he > was in the range of 2000 ml/day. > > Biggest risk with heavy bile drainage is dehydration. In a well > person, the liquid in the bile is reabsorbed in the intestines and > the remaining solids are excreted in feces (the dark color). You > need to replace that volume of liquid that you are empting out of > your bag each day by drinking more. > > As I recall even though your duct seemed obstructed you were still > getting bile to your intestines as you could tell by the color. I > would imagine you will reach the point where all is going into the > bag. You then might experience some problems digesting fat and they > will be seen in your stool. > > People can go on indefinitely with a PTC and all their bile draining > to the bag and still live an active life. > > By the way, when they did surgery to get the CCA out of my brother, > they found none. What looks like CCA and acts like CCA is not always > CCA, sometimes it is just PSC. I am hoping for the same results for > you!!!! > > Judy > > > > Hello All, > > > > For those who have had a PTC, are there typical bile drainage > volumes > > that you came to expect? > > > > I'm in the range of 2800 ml per day, when I read that typical bile > > outputs for a healthy person is in the range of 400-800 ml per day. > > Although that's the first full day of having this drain. I'm > wondering > > if that amount will reduce with time. > > > > Are there negative effects to draining too much bile? > > > > > > > > Thanks ... > > > > > > > > Micahel - 45 > > > > PSC, Crohns 2000 > > > Quote Link to comment Share on other sites More sharing options...
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