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Just a report on the nerve block I had June 6. It was actually a

ganglion nerve block and was just anesthetic (no steroid). Later that

day, I did not feel as well as I did when I went in, and I had more

pain the next two days. Then by the fourth day afterwards I felt like

I couldn't breath and my heart was racing. My husband took me to my

doctor's office as soon as it opened and my blood pressure was

143/100. I felt nauseous and was in a cold sweat. My doctor said I

was having a reaction to the Lyrica in such high doses and probably the

nerve block also. So she gave me a presciption for a smaller dose of

Lyrica which got rid of that problem.

I do not like the reaction to the nerve block though. My low back

and legs feel weaker and there is discomfort there too now. The vulvar

inflammation has not improved and the pain hasn't improved any either.

I have another nerve block scheduled on July 8. I don't think I want

to do this at all. This same pain doctor said if this nerve site

didn't work then there were others he would try, but I don't know. Has

anyone at all had significant and prolonged relief/improvement from any

of these nerve blocks?

I was also on the prednisone which did give me some initial improvement

in the red, burning skin. The second round of prednisone did not

continue the improvement, but I haven't gone backwards either since

ending the prednisone. So, I am improved, meaning I can walk around a

little more, but I still have enough skin irritation that I can't walk

around too much or resume activities in any significant way. I am

worried also about the constant sitting and inactivity. That has got

to create more problems. I guess you can't let your mind wander too

much. This stuff is enough to deal with for now.

I still need to try the estradiol. Now that I am off the prednisone

maybe my doctor will prescribe it. Have you heard of anyone who wasn't

able to use E in this form? My skin has been so sensitive and I hate

to go backwards. Maybe I should just try it on a small area first?

Have you heard of some people who haven't been able to use Estadiol?

Thanks, Judy

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Hi Judy, Sorry to hear you are having such a rough time! *sigh* I had a racing heartbeat after my last block, too, but my doc did indeed use the steroid (and we know that was the cause). It's not uncommon for a block to make things 'worse' for awhile and then it can turn around and help. I didn't have any injection pain, or worsening of my pain, but I ended up with other side effects due to the steroids. *yuck* If you try the Estradiol cream, I'd just make sure to have it compounded, and remove the inert ingredients. Those are usually the ones that cause women problems - not the E. itself. I think many of us are very sensitive in the vulvar area. How can we not be? *sigh* I hope you find some relief soon. Keep a positive mind-set and keep reminding yourself that you

will get well. It's hard to fight those crazy emotions that work so hard to bring us down. But it's worth it to 'think on good things'! Keep us posted... ~Chelle

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