Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Hello gvsu89, I'm from Louisville, KY. I'm sorry but I'm not very familiar with the Michigan area for hospitals that are good with this disease. I'm sure with the wealth of knowledge in this group someone will make a recommendation. I want to welcome you to the group and say that I'm sorry that your husband has these terrible diseases. Stay hopeful, advances in medicine are happening all the time and this group talks it up when it affects PSC or IBD. The team of doctors I'm seeing just recommended me to Mayo Clinic in Rochester, MN. They appear to be the tops in the field for what we have. I'll be going there on Monday for a week of testing. I'll chime in on how it went later in the week. May God bless y'all - 45 PSC, Crohns 2000 > > Hi all, this is my first post in this group! I'm so glad that there's > a group out there for people with PSC or those that are close to > someone with this mystifying disease. > > My husband (who is only 22) was diagnosed with UC and PSC this past > March. Needless to say, it is devastating to find out that the person > that you've been married to for only less than a year already has > discovered that they have two fairly serious diseases. We are anxious > to move forward with his treatment (currently he's on Urso and Asacol), > and we would like to know if anyone has recommendations for specialists > in the Midwest. Currenly we have heard good things about the > University of Chicago, but we are looking for other options to explore > too. We live in Lansing, Michigan. > > Thanks for any insight! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 I live in Tecumseh, Michigan and go to the University of Michigan in Ann Arbor. It is only 40 minutes drive for me. Also Henry Ford in Detroit is another possibility. I have thought about going to the Cleveland Clinic if I am not happy with U of M.gvsu89 wrote: Hi all, this is my first post in this group! I'm so glad that there's a group out there for people with PSC or those that are close to someone with this mystifying disease.My husband (who is only 22) was diagnosed with UC and PSC this past March. Needless to say, it is devastating to find out that the person that you've been married to for only less than a year already has discovered that they have two fairly serious diseases. We are anxious to move forward with his treatment (currently he's on Urso and Asacol), and we would like to know if anyone has recommendations for specialists in the Midwest. Currenly we have heard good things about the University of Chicago, but we are looking for other options to explore too. We live in Lansing, Michigan.Thanks for any insight! Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 My husband was diagnosed with PSC in March of 06. We saw Dr.Gordon at Henry Ford Hospital in Detroit. He is a Hematologist. He is excellent. I donated 60% of my liver on 10/16/06/ Dr. Aouljoud was my surgeon. He is the head of transplant. He is wonderful and I would highly recommend him as well. Please let me know if you have any other questions. > > > > > > > Hi all, this is my first post in this group!We live in Lansing, > Michigan. > > > > Thanks for any insight! > > > > > > __________ NOD32 2531 (20070915) Information __________ > > This message was checked by NOD32 antivirus system. > http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Welcome to our group.We lived in Ann Arbor and saw a GI specialist , Dr. Grace Elta at UM for the UC/PSC and then went to Mayo , Rochester for our second opinion and ERCP.You might want to consider seeing a specialist at UM or Henry Ford and then getting any testing like an ERCP done at Mayo.That is if you don't already have an expert in Lansing since I don't know what is there.For more information visit our sister sites:www.psc-literature.org/www.pscpartners.orgGood luck and well wishes,LeeHi all, this is my first post in this group! I'm so glad that there's a group out there for people with PSC or those that are close to someone with this mystifying disease. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 My brother uses U of M in Ann Arbor. If you go on their website they have a Liver Disease Clinic. http://www2.med.umich.edu/departments/gastroenterology/index.cfm? fuseaction=gi.clinicInfo & service_id=164 & um_unit_id= & clin_dept=Internal %20Medicine & search_clinicname= It was our first time at U of M and we thought because of its size and prestige we would have long waits. We found them very efficient and appointments were prompt and it was easy to get your next procedure scheduled a few days instead of weeks later. There was good communication between groups (liver specialists, interventional radiology, surgeons, etc) and we found the nurses from the floor nurses to the procedure areas nurses kind and competent. Judy > > Hi all, this is my first post in this group! I'm so glad that there's > a group out there for people with PSC or those that are close to > someone with this mystifying disease. > > My husband (who is only 22) was diagnosed with UC and PSC this past > March. Needless to say, it is devastating to find out that the person > that you've been married to for only less than a year already has > discovered that they have two fairly serious diseases. We are anxious > to move forward with his treatment (currently he's on Urso and Asacol), > and we would like to know if anyone has recommendations for specialists > in the Midwest. Currenly we have heard good things about the > University of Chicago, but we are looking for other options to explore > too. We live in Lansing, Michigan. > > Thanks for any insight! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 I would suggest the Univ of Michigna also. I have been going there since 1992. They have very good doctors. I would suggest that you see a liver specialist. I did see Dr. Elta, who is a GI, and she was very good, but I think that he would be best served by a liver specialist. I would also consider getting a second opinion for the Mayo Clinic. I have had two liver transplants from the UofM and have been very happy with them. PSC 1989, TX1 1997, TX2 2004 we would like to know if anyone has recommendations for specialists > in the Midwest. Currenly we have heard good things about the > University of Chicago, but we are looking for other options to explore > too. We live in Lansing, Michigan. > Quote Link to comment Share on other sites More sharing options...
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