Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 I have had valvular pain for almost one year. It did disappear for about 2 months but when my husband and I had intercourse it can screaming back...sooo... I am willing to go anywhere in the US... who is the best at diagnosing and treating this monster???? Becky B. Houston Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 Contact the National Vulvodynia Association. They have listings of doctors all over the country. I would try to get their past newsletters so you can read who is currently writing about various versions of Vulvodynia that pertain to you. There is no one set treatement since most women seem to have various versions ie never ending yeast feeling or one sided nerve pain so you may have to do some calling and research to find the right match for you. In NYC, there are about 3 or 4 specialists but they each tend to focus on different areas ie Dr. Ledger believes that there is a imflammatory histamine response and treats women with anti histamines. Hope this helps. > > I have had valvular pain for almost one year. It did disappear for > about 2 months but when my husband and I had intercourse it can > screaming back...sooo... I am willing to go anywhere in the US... who > is the best at diagnosing and treating this monster???? > > Becky B. > Houston Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 I would think that Dr. Ken Renney in Houston would be a good place to start. You can google him and I'm sure get lots of info. You can also check out www.pudendal.info and post a question about him. More importantly, he should have the name of a good PT that can evaluate your pelvic floor. Usually good PTs are better at PF evaluation than doctors. love, Molly Re: Best Physician in US Contact the National Vulvodynia Association. They have listings of doctors all over the country. I would try to get their past newsletters so you can read who is currently writing about various versions of Vulvodynia that pertain to you. There is no one set treatement since most women seem to have various versions ie never ending yeast feeling or one sided nerve pain so you may have to do some calling and research to find the right match for you. In NYC, there are about 3 or 4 specialists but they each tend to focus on different areas ie Dr. Ledger believes that there is a imflammatory histamine response and treats women with anti histamines. Hope this helps.>> I have had valvular pain for almost one year. It did disappear for> about 2 months but when my husband and I had intercourse it can> screaming back...sooo. .. I am willing to go anywhere in the US... who> is the best at diagnosing and treating this monster????> > Becky B.> Houston Texas> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 I go to Kellogg Spadt in Philly. Will you travel there? I think she is great. Sherri -------------- Original message -------------- > Contact the National Vulvodynia Association. They have listings of > doctors all over the country. I would try to get their past > newsletters so you can read who is currently writing about various > versions of Vulvodynia that pertain to you. There is no one set > treatement since most women seem to have various versions ie never > ending yeast feeling or one sided nerve pain so you may have to do some > calling and research to find the right match for you. In NYC, there > are about 3 or 4 specialists but they each tend to focus on different > areas ie Dr. Ledger believes that there is a imflammatory histamine > response and treats women with anti histamines. > Hope this helps. > > > > > > I have had valvular pain for almost one year. It did disappear for > > about 2 months but when my husband and I had intercourse it can > > screaming back...sooo... I am willing to go anywhere in the US... who > > is the best at diagnosing and treating this monster???? > > > > Becky B. > > Houston Texas > > > > > > ------------------------------------ > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > Thanks for your cooperation! ** > > *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 Hi Becky,I'm a little slow responding...I'm not sure who to tell you to go to, or who is the best, but I sure understand getting to the point you will go anywhere to find help! Vulvar pain stinks! I say keep asking on the groups who has a vulvar doc that has really helped them (or a PT). Try the NVA, you can get a list for your area and surrounding states when you join. We have some practitioners listed in our Database on the homepage. Just scroll to the bottom of this email and you will find the link for the homepage. I hope you find relief soon. Take Care, ChellePS - What are your symptoms? I've gotten more help on the groups than I have from any one doc. tmb9717 wrote: I have had valvular pain for almost one year. It did disappear forabout 2 months but when my husband and I had intercourse it canscreaming back...sooo... I am willing to go anywhere in the US... whois the best at diagnosing and treating this monster????Becky B.Houston Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 I saw a lot of people and had the best results with Dr. in Rochester, NY. He's been treating vulvar pain since the 80's, he's compassionate and knowledgeable, and he doesn't give up. I was dumped by a couple of docs before him and he just stuck with me. i had surgery with him, but that's not the only treatment he works with. Lia I have had valvular pain for almost one year. It did disappear for > about 2 months but when my husband and I had intercourse it can > screaming back...sooo... I am willing to go anywhere in the US... who > is the best at diagnosing and treating this monster???? > > Becky B. > Houston Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2008 Report Share Posted July 26, 2008 Lia---I still see Dr. Nyirjesy in Philadelphia and had surgery with him also. I know he thinks a lot of Dr. . Sandy Quote Link to comment Share on other sites More sharing options...
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