Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 My husband has psc, and is undergoing the evaluation process for transplant. He has terrible pain in his legs and feet. I (softly) massage them, but it doesn't seem to help much. Does anyone know of anything that makes this pain more bearable? Thanks! vafirths wife Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 -----Original Message----- He has terrible pain in his legs and feet. Does anyone know of anything that makes this pain more bearable? Your husband should talk to his doctor about his leg pain. You never know if something is part of a larger medical picture or not, so mentioning it to the doctor is only prudent. There are a few things he can do in the meantime. When he sits, he should keep his legs elevated whenever possible. If he hasn’t already, he should cut way back on salt. Fluid build up in the legs and feet (even if you can’t see it) hurts. Several people have reported that drinking Tonic water helps leg cramps. Now a days, the amount of quinine isn’t the same concentration as it used to be, but surely wouldn’t hurt him to try it. HTH With love, Barb in Texas - Together in the Fight, Whatever it Takes! Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 _,_._,___ My husband has psc, and is undergoing the evaluation process for transplant. He has terrible pain in his legs and feet My brother sometimes experiences this, extreme pain in his calves, knees and feet. We asked his doc about it, he said that it was symptom that PSC patients experience, and they were not sure of the connections. In my brothers case, he has found HOT soaking baths help, and elevating his legs while laying down. he also has an rx for pain medication for when he experiences episodes. We have noticed that the joint pains happen allot when he is also experiencing some edema as well. Hope you find something that helps... in Texas Brother, Dusitn, 31, UC & PSC-- Some of my crazy lil' blogs & website....www.ancestralroots.blogspot.com www.savedusty.blogspot.comwww.mycrazylilworld.blogspot.comwww.mtmcreationsonline.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 When our son was first diagnosed they started looking at his joints and asked him at every appointment about it. PSC is autoimmune and so is rheumatoid arthritis so that is what they were looking for. Good luck.Marti Crumbliss wrote: _,_._,___ My husband has psc, and is undergoing the evaluation process for transplant. He has terrible pain in his legs and feet My brother sometimes experiences this, extreme pain in his calves, knees and feet. We asked his doc about it, he said that it was symptom that PSC patients experience, and they were not sure of the connections. In my brothers case, he has found HOT soaking baths help, and elevating his legs while laying down. he also has an rx for pain medication for when he experiences episodes. We have noticed that the joint pains happen allot when he is also experiencing some edema as well. Hope you find something that helps... in Texas Brother, Dusitn, 31, UC & PSC-- Some of my crazy lil' blogs & website....www.ancestralroots.blogspot.com www.savedusty.blogspot.comwww.mycrazylilworld.blogspot.comwww.mtmcreationsonline.com Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 I would definitely see a rheumatologist. I suffered for nearly a year with severe pain in the joints of my knees and ankles. It was particularly bad in the evenings when I was tired. In fact, it was tough just to get up off the sofa. I was attributing it all to the normal PSC progression, but eventually I talked myself into seeing if we could do something to relieve the pain. The rheumatologist did some testing and found symptoms of rheumatoid arthritis, and after some heated battles with the insurance company, got approval for Remicade infusions. That was two months ago. As of today, my joints are nearly pain free, and I'm feeling better than I have in a long time. Remicade is a costly solution, but if it works, it's worth the time and trouble of the infusions. Tom PSC 1999 > > My husband has psc, and is undergoing the evaluation process for > transplant. He has terrible pain in his legs and feet. I (softly) > massage them, but it doesn't seem to help much. Does anyone know of > anything that makes this pain more bearable? > > Thanks! > vafirths wife > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 I was talking to a doctor friend of mine and he said Alpha Lopic Acid might help. He said people with diabetes use it for circulation to their legs and legs problems. Might be worth a try. Shirin, Arman, Niki & Mateenarman_shirin@... Re: pain in legs and feet I would definitely see a rheumatologist. I suffered for nearly a yearwith severe pain in the joints of my knees and ankles. It wasparticularly bad in the evenings when I was tired. In fact, it wastough just to get up off the sofa. I was attributing it all to thenormal PSC progression, but eventually I talked myself into seeing ifwe could do something to relieve the pain.The rheumatologist did some testing and found symptoms of rheumatoidarthritis, and after some heated battles with the insurance company,got approval for Remicade infusions. That was two months ago. As oftoday, my joints are nearly pain free, and I'm feeling better than Ihave in a long time.Remicade is a costly solution, but if it works, it's worth the timeand trouble of the infusions.TomPSC 1999>> My husband has psc, and is undergoing the evaluation process for > transplant. He has terrible pain in his legs and feet. I (softly) > massage them, but it doesn't seem to help much. Does anyone know of > anything that makes this pain more bearable?> > Thanks!> vafirths wife> Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 I would ask the hepatologist first if it's okay to use this. Or is this by prescription? But thanks for the information. I'll look into it. -Marie > >Reply-To: >To: >Subject: Re: Re: pain in legs and feet >Date: Tue, 25 Sep 2007 09:15:56 -0700 (PDT) > >I was talking to a doctor friend of mine and he said Alpha Lopic Acid might >help. He said people with diabetes use it for circulation to their legs and >legs problems. Might be worth a try. > > > >Shirin, Arman, Niki & Mateen >arman_shirin@... > > > > Re: pain in legs and feet > >I would definitely see a rheumatologist. I suffered for nearly a year >with severe pain in the joints of my knees and ankles. It was >particularly bad in the evenings when I was tired. In fact, it was >tough just to get up off the sofa. I was attributing it all to the >normal PSC progression, but eventually I talked myself into seeing if >we could do something to relieve the pain. > >The rheumatologist did some testing and found symptoms of rheumatoid >arthritis, and after some heated battles with the insurance company, >got approval for Remicade infusions. That was two months ago. As of >today, my joints are nearly pain free, and I'm feeling better than I >have in a long time. > >Remicade is a costly solution, but if it works, it's worth the time >and trouble of the infusions. > >Tom >PSC 1999 > > > > > > My husband has psc, and is undergoing the evaluation process for > > transplant. He has terrible pain in his legs and feet. I (softly) > > massage them, but it doesn't seem to help much. Does anyone know of > > anything that makes this pain more bearable? > > > > Thanks! > > vafirths wife > > > > > > > > >_______________________________________________________________________________\ _____ >Yahoo! oneSearch: Finally, mobile search >that gives answers, not web links. >http://mobile.yahoo.com/mobileweb/onesearch?refer=1ONXIC _________________________________________________________________ It’s the Windows Live™ Hotmail® you love — on your phone! http://www.microsoft.com/windowsmobile/mobilehotmail/default.mspx?WT.mc_ID=Mobil\ eHMTagline2 Quote Link to comment Share on other sites More sharing options...
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