Re: Nightline and PSC- jaundice color

[Guest guest]

I didn't want

> to go out the last few months because I almost was looking greenish.

,

I think this line is interesting. I have always wondered why Noah

carries around this green tinge... and I didn't know if it was

bilirubin, or bile or what?! I still don't. But he never gets that

yellow, orange color, but is like an olive green.

He is not listed or anything yet. No liver imaging since May '05.

I'll be curious to see how he progresses.

[Guest guest]

> . My jaundice was a lot worse then

> you could see on TV. I actually had a few people (strangers) ask if I

> had a liver problem, even a year before my transplant. I didn't want

> to go out the last few months because I almost was looking greenish.

> Dziemian in Worcester,MA PSC 92, UC 93, TX 07

Hi

thanks for your message, I will keep a look out for your TV programme,

sometimes they are shown in New Zealand. So glad everything has turned

out well

A question: Were you upset when strangers approached you to ask if you

had a liver problem? There was one occasion I was in the same cafe as

a young lady with quite a yellow 'glow' She was with a group of

friends and I had no intention of barging in and asking if she had a

liver disease, but have since wondered if she was on her own, or with

one other person I should have gone over and asked about her health, as

she may have had PSC? Your comments would be appreciated.

from the bottom of the world in New Zealand

[Guest guest]

Absolutely, the times it happened I would be working and it would

come out the blue. In one of the last few weeks at my part time job I

was helping this teenage kid with fitting some equipment and I asked

the father a question and he kind of stared at me. Then he said " Hey

you look yellow, Do you have something wrong with your liver? " . I

said yes and finished helping his son. I felt like saying it was none

of his business. Its one thing if someone showed concern and asked if

you were feeling alright or a friend asking you. But someone you

don't know and acts like a jerk. I wouldn't walk up to someone who

had no hair and didn't look well and ask if they had Cancer. I felt

bad enough about how I looked and felt. I didn't need somebody I

didn't even know remind me that I was sick.

I certainly didn't keep it a secret, but I didn't tell everyone

either.

Dziemian in Worcester,MA PSC 92, UC 93, TX 07

>

>

> > . My jaundice was a lot worse then

> > you could see on TV. I actually had a few people (strangers) ask

if I

> > had a liver problem, even a year before my transplant. I didn't

want

> > to go out the last few months because I almost was looking

greenish.

> > Dziemian in Worcester,MA PSC 92, UC 93, TX 07

>

>

> Hi

> thanks for your message, I will keep a look out for your TV

programme,

> sometimes they are shown in New Zealand. So glad everything has

turned

> out well

> A question: Were you upset when strangers approached you to ask if

you

> had a liver problem? There was one occasion I was in the same

cafe as

> a young lady with quite a yellow 'glow' She was with a group of

> friends and I had no intention of barging in and asking if she had

a

> liver disease, but have since wondered if she was on her own, or

with

> one other person I should have gone over and asked about her

health, as

> she may have had PSC? Your comments would be appreciated.

>

> from the bottom of the world in New Zealand

>