me again...seeking PSC Partner's Volunteers

[Guest guest]

Yes, it’s me again. I was diagnosed with PSC in March, 2002, 9 months before I got married (some wedding gift huh?). I joined the Yahoo Groups list serve for PSC but I needed more. I appreciated the stories but being a competitive athlete my whole life I wanted to think BIG. I wanted a cure! Discovering PSC Partners Seeking a Cure in 2005 and attending their first conference in Denver, I could feel the excitement in the room. After the initial shock of meeting many others with PSC just like me, I realized that with our collectivized, focused enthusiasm maybe we could find a cure. Or at least provide support and education for others…knowing that researchers are working on a cure and better treatment options for the symptoms. It’s been 2.5 years now and Ricky Safer, , Lee Bria and countless others have helped

us get to this point. Now we’re asking you for some help…just your expertise and time. If you feel you could contribute to any of the below listed committees, please let me know: Database Committee IT Committee Media/PR Committee Legislative Committee Organ Donation Committee Corporate Fundraising Committee Newsletter Committee OR if you have some extra time (who does anymore?), there are some small tasks that we could really use some help on. Dike Ajiri dajiri@... PSC dx 2002 Board Member – PSC Partners Seeking a Cure

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

Hi Dike, What happened to the group that signed up for various commitees at the last PSC Conference? I thought I had signed up for Legislative committee although I'm not sure what that involves or that I have the skill required. I am available to help in any way I can and small tasks are fine. I can be reached at ctpsc@.... Looking forward to hearing from you to see what can be worked out. Regards, Reggie Belmont Dike Ajiri wrote: Yes, it’s me again. I was diagnosed with PSC in March, 2002, 9 months before I got married (some wedding gift huh?). I joined the Yahoo Groups list serve for PSC but I needed more. I appreciated the stories but being a competitive athlete my whole life I wanted to think BIG. I wanted a cure! Discovering PSC Partners Seeking a Cure in 2005 and attending their first conference in Denver, I could feel the

excitement in the room. After the initial shock of meeting many others with PSC just like me, I realized that with our collectivized, focused enthusiasm maybe we could find a cure. Or at least provide support and education for others…knowing that researchers are working on a cure and better treatment options for the symptoms. It’s been 2.5 years now and Ricky Safer, , Lee Bria and countless others have helped us get to this point. Now we’re asking you for some help…just your expertise and time. If you feel you could contribute to any of the below listed committees, please let me

know: Database Committee IT Committee Media/PR Committee Legislative Committee Organ Donation Committee Corporate Fundraising Committee Newsletter Committee OR if you have some extra time (who does anymore?), there are some

small tasks that we could really use some help on. Dike Ajiri dajiri (AT) yahoo (DOT) com PSC dx 2002 Board Member – PSC Partners Seeking a Cure Take the Internet to Go: Yahoo!Go puts the Internet in your pocket:

mail, news, photos more.

Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online.

[Guest guest]

Not

sure what I am capable of doing, but am willing to help –

Database Committee

IT Committee

Media/PR Committee

Legislative Committee

Organ Donation Committee

Corporate Fundraising Committee

Newsletter Committee

With love, Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

_

[Guest guest]

I'd like to help, too! Possibly the organ donation committee and/or

newsletter committee. How will this be worked out?

>

> Not sure what I am capable of doing, but am willing to help -

>

> Database Committee

> IT Committee

> Media/PR Committee

> Legislative Committee

> Organ Donation Committee

> Corporate Fundraising Committee

> Newsletter Committee

>

> With love, Barb in Texas - Together in the Fight, Whatever it

Takes!

> Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

>

>

> _

>

[Guest guest]

I can help out. I can help with the newletter committee and the

media/PR committee. I don't work, well i have small kids at home so

I work at home, lol, but I could also do some small tasks that need

to be done. Just let me know!

PSC 8/07

PBC 10/06 (probably)

> If you feel you could contribute to any of the below listed

committees, please let me know:

>

> Database Committee

> IT Committee

> Media/PR Committee

> Legislative Committee

> Organ Donation Committee

> Corporate Fundraising Committee

> Newsletter Committee

>

> OR if you have some extra time (who does anymore?), there are

some small tasks that we could really use some help on.

>

> Dike Ajiri

> dajiri@...

> PSC dx 2002

> Board Member – PSC Partners Seeking a Cure

>

>

>

>

>

> ---------------------------------

> Take the Internet to Go: Yahoo!Go puts the Internet in your

pocket: mail, news, photos & more.

>

[Guest guest]

I would love to be involved. I do work, but would be more then willing to help out. Perhaps Organ Donor Commitee. Gedgaudas-OstosMother of Tyler age 9 (PSC and UC)Mckenna age 5sgedgaud@... " jmhette2 " Sent by: 09/25/2007 08:12 AMPlease respond to To ccSubject Re: me again...seeking PSC Partner's VolunteersI can help out. I can help with the newletter committee and the media/PR committee. I don't work, well i have small kids at home so I work at home, lol, but I could also do some small tasks that need to be done. Just let me know!PSC 8/07PBC 10/06 (probably) > If you feel you could contribute to any of the below listed committees, please let me know:> > Database Committee> IT Committee> Media/PR Committee> Legislative Committee > Organ Donation Committee> Corporate Fundraising Committee> Newsletter Committee> > OR if you have some extra time (who does anymore?), there are some small tasks that we could really use some help on.> > Dike Ajiri> dajiri@...> PSC dx 2002> Board Member – PSC Partners Seeking a Cure> > > > > > ---------------------------------> Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos & more.>

[Guest guest]

Sikeea,Thanks for offering to help volunteer for Organ donation and the Newsletter committee. We've received a few offers of volunteer support and EACH one is appreciated. We're going to wait a few days to see the collective volunteers that we have (skills and time availability) and then go from there.Thanks,Dike Ajiri (pronouned DK Ajury)psc 2002PSC Partners Board Member

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

Let me know, too... we're very willing to do whatever we can.

Maureen

Re: me again...seeking PSC Partner's Volunteers

I can help out. I can help with the newletter committee and the

media/PR committee. I don't work, well i have small kids at home so

I work at home, lol, but I could also do some small tasks that need

to be done. Just let me know!

PSC 8/07

PBC 10/06 (probably)

> If you feel you could contribute to any of the below listed

committees, please let me know:

>

> Database Committee

> IT Committee

> Media/PR Committee

> Legislative Committee

> Organ Donation Committee

> Corporate Fundraising Committee

> Newsletter Committee

>

> OR if you have some extra time (who does anymore?), there are

some small tasks that we could really use some help on.

>

> Dike Ajiri

> dajiri@...

> PSC dx 2002

> Board Member - PSC Partners Seeking a Cure

[Guest guest]

Bud and I would be glad to help with something, being a floral designer doesn't give me much expertise in any of those fields but I am sure we could do something!

Bettyann (SC)

[Guest guest]

I am so excited to see more people coming forth to work with Partners  !!!I'm proud of all of you who are volunteering to take on this challenge !Thank you so much, LeeBud and Bettyann, I know you can help, you are smart , motivated  and generous. Dike will need some time to figure out where people can help best and then he will let everyone know.Bud and I would be glad to help with something, being a floral designer doesn't give me much expertise in any of those fields but I am sure we could do something!                          Bettyann   (SC)

[Guest guest]

Dike,

Legislative or organ donation.

Thanks for organizing the teams.

Omaha/Tarheel Tim