PSC BROCHURES

[Guest guest]

Ken

is finally home now. Other than

cleaning the house, laundry piled sky high, dogs that need baths and

“just a little” medical paperwork to be done, I have nothing to do. So please, read the message below &

give me lots of reasons to go to the post office! By the way…when all was said &

done, Ken

& I had met 6 people with PSC at Baylor, 6!! I put our brochures in with other

pamphlets in the liver clinic and I added about 12 of our green bracelets in

the slot and by the next day they were all gone.

Hello everyone,

I’m sure by now everyone has read the terrific

brochure PSC Partners has published titled Living with Primary

Sclerosing Cholangitis (PSC).

In case you haven’t, you can find it here: http://www.pscpartners.org/ Our goal is to

have these brochures readily available to all patients.

We hope you will help us by placing an order (they are

free of charge!) and taking them to;

your GI or Hepatoligist’s office the next time you

go in for a visit. If you are post

transplant, we’d love for you to take a few copies to your liver clinic

too.

We have a few guidelines for quantity ordering, but if

you need more, please just let me know how you plan to pass them out and

I’ll do my best to make sure you get them. Please note, these brochures are

expensive to print, so we ask that you do not use them for your personal fund raising.

However, you can freely print your own brochures by using the web link

above. You can also reorder more

for your doctors office at any time.

The “guidelines” are as follows:

Office of a single GI or

Hepatologist: 10

PCP/internist/family

doctor's office: 5

Liver group with several GIs/Hepatoligist’s: 20

Transplant center: 25-30

Thank you so much for your help,

this is such an important project!

We all remember what it was like to get the

diagnosis, how scared we were and how franticly we searched for any

kind of information. Imagine now,

how different things would have been if you were able to pick up one of these

brochures and have so much information right at your finger tips. Passing out these brochures will help

someone else in their time of need.

To place an order, e-mail your name, address and quantity ordering to:

pscbrochures@... Please allow 2-3 weeks for

mailing.

Thank you so much,

Barb in Texas

[Guest guest]

Barb,

That’s amazing that you met 6 PSCers while at Baylor. Thank you

for taking the time at Baylor and now that you are home to hand out our

brochures. I don’t know where you find the time to think of all of us after

all that you have been through. Thank you so much!!! Enjoy being home again

and congratulations.

Ricky

PSC 2003

From:

[mailto: ] On Behalf

Of Barb Henshaw

Sent: Monday, September 24, 2007 10:08 AM

To:

Subject: PSC BROCHURES

Ken is finally home now. Other than

cleaning the house, laundry piled sky high, dogs that need baths and “just a

little” medical paperwork to be done, I have nothing to do. So please,

read the message below & give me lots of reasons to go to the post

office!

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[Guest guest]

Dear Barb,

It is so great that you are back home ! Thank you so much for doing

this. You are a true soldier fresh from the battlefield and you

should be resting !!

Like that's gonna happen. Mom's always find the reserves they need.

Because your life was so crazy I asked Ricky for a few extra

brochures. I didn't want to bother you.

Finally I am adjusting to living in a new place and I am taking 6

brochures to a pediatric GI here in FL this week.

I just wanted you to know that I'm on the case and spreading the word

in FL.!

She happens to be the wife of my new ophthalmologist. Yep, even he

had to hear all about Partners, at least he was interested because of

his wife.

Take care of yourself and keep the TLC going to Ken. I'm still

sending him well wishes.

Thank you so very much Barb.

Lee

To the rest of the troops , if Barb is back at it already then anyone

who hasn't helped by getting brochures into their Dr's office should

jump in to help !

We can all help make it easier for the next patient diagnosed to get

the information they need.