New to group and vulvadynia....

[Guest guest]

I am a sixty year old women who has been experience vulva pain for

about 2 months now. I can't sit at all without having extreme

sensitivty and burning (it doesn't help that my job requires me to sit

most of the day). Most days I am in tears by noon. I have seen my gyn

three times who after having no answers sent me to a dermotologist who

had no answers who sent me to a urologist who had no answers (with a

total of 4 biopsies). Needless to say I was beyond myself until I

started doing research on my own and discovered there is a whole

community of women who have the same problem.

My question is that I finally found a vulva/viagna specialist in NYC

who will see me in two weeks. What questions should I be asking her

and what should I expect. After reading up on this, it doesn't sound

too hopeful...

I am very thankful for finding this group.

[Guest guest]

sorry to hear about your pain...you are not alone. I can most definatley relate to your pain and frustration. Have you done any research on lichen planus or lichen sclerosis? The info thats out there is a bit scary especially the pictures, but unfortunalty you have to take charge of your health b/c many docs dont have a clue. I was diagnosed with Lichen planus a little over a year ago and am happy to say I feel cured! (there is none)

If i were you I would stay away from any invasive procedures and treatment plans like steroids (topical and or oral) and try the most concervative options. Does cold ice compacts help with your pain relief...it did wonders for me.

Stay positive ( I know its hard) and dont give up.

Good luck and feel free to email me direct.

/ Florida

Subject: New to group and vulvadynia....To: VulvarDisorders Date: Sunday, July 6, 2008, 9:08 PM

I am a sixty year old women who has been experience vulva pain for about 2 months now. I can't sit at all without having extreme sensitivty and burning (it doesn't help that my job requires me to sit most of the day). Most days I am in tears by noon. I have seen my gyn three times who after having no answers sent me to a dermotologist who had no answers who sent me to a urologist who had no answers (with a total of 4 biopsies). Needless to say I was beyond myself until I started doing research on my own and discovered there is a whole community of women who have the same problem.My question is that I finally found a vulva/viagna specialist in NYC who will see me in two weeks. What questions should I be asking her and what should I expect. After reading up on this, it doesn't sound too hopeful...I am very thankful for finding this group.