New to group and vulvadynia....

[Guest guest]

Hi, Get yourself a pillow with the vaginal/perinum area cut out

of it. This is a little different than a donut whole cushion. You want one that

has a “U” shaped area cut out of it – that type of cushion. I

don’t know if you can purchase one locally, you might have to order it on

online. Then get a gel bubble ice pack, you can freeze it (the gel ones last a

long time), and stuff it in the center of the cushion. You could sit on it all

day, and it will really help any pain or itching. In the short term, you might

try an antihistamine, but be careful if it makes you sleepy, that you don’t

take it and drive. Also, in our files, Dee, the owner of this group, has put

together a whole list of remedies that help with burning, stinging, etc. It is

an amazing what she has put together that is helpful. You can access the files

from the home page. And when you see the doctor, ask her if she will give you a

prescription for some Lidocaine gel. It works great for that area. There are

many other creams, gels, etc. – everyone has their favorites. Sometimes

you have to try several before you find one that you like. If you have either

of the “Lichen’s”, the doctor may suggest something different

for that. After your doctors’ visit you can tell us what she said and

answer any other questions you might have. Good luck – you will be

fine.

nne

[Guest guest]

Hi dotbus123

I am 59 and have been suffering from iching, burning and pain during intercourse in addition to my husband not able to penetrate. I was diagnosed with Lichen Planus about 4 years ago and that cleared up with steroid treatment. I wish I could find a treatment that doesn't require steroids as it has thinned the skin so much when I do have sex the skin tears. My diagnosis now is vulvadynia with vaginismus. This helps cover pretty much all of my complaints. It's quite frustrating to not know what's wrong but it is reassuring to know I'm not the only one out there with something different.

Good luck

Reply-To: VulvarDisorders To: VulvarDisorders Subject: Re: New to group and vulvadynia....Date: Sun, 6 Jul 2008 20:09:11 -0700 (PDT)

sorry to hear about your pain...you are not alone. I can most definatley relate to your pain and frustration. Have you done any research on lichen planus or lichen sclerosis? The info thats out there is a bit scary especially the pictures, but unfortunalty you have to take charge of your health b/c many docs dont have a clue. I was diagnosed with Lichen planus a little over a year ago and am happy to say I feel cured! (there is none)

If i were you I would stay away from any invasive procedures and treatment plans like steroids (topical and or oral) and try the most concervative options. Does cold ice compacts help with your pain relief...it did wonders for me.

Stay positive ( I know its hard) and dont give up.

Good luck and feel free to email me direct.

/ Florida

From: dotbus123 <dotbus123 (AT) yahoo (DOT) com>Subject: New to group and vulvadynia....To: VulvarDisorders Date: Sunday, July 6, 2008, 9:08 PM

I am a sixty year old women who has been experience vulva pain for about 2 months now. I can't sit at all without having extreme sensitivty and burning (it doesn't help that my job requires me to sit most of the day). Most days I am in tears by noon. I have seen my gyn three times who after having no answers sent me to a dermotologist who had no answers who sent me to a urologist who had no answers (with a total of 4 biopsies). Needless to say I was beyond myself until I started doing research on my own and discovered there is a whole community of women who have the same problem.My question is that I finally found a vulva/viagna specialist in NYC who will see me in two weeks. What questions should I be asking her and what should I expect. After reading up on this, it doesn't sound too hopeful...I am very thankful for finding this group.