Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Thank you all for your support...it has been wonderful to find this group. After alot of research on vulvadynia, I see alot of women recommend the low oxalate diet. Has anyone tried this....I've bought the pillows, icepacks but at this point I'm looking for anything that could help manage the pain. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 I had much success with the low oxalate diet and other things. For my success story go to: http://health.groups.yahoo.com/group/VulvarDisorders/files/SUCCESS%20STORIES/ Click on " my success " for my information. I rarely have a flare any more and when I do it goes away in an hour or so. Also I can now eat foods containing the high amounts of oxalates from time to time and if I do not do it every day I do not get a flare. Ora >Thank you all for your support...it has been wonderful to find this >group. After alot of research on vulvadynia, I see alot of women >recommend the low oxalate diet. Has anyone tried this....I've bought >the pillows, icepacks but at this point I'm looking for anything that >could help manage the pain. > > > >Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 I started the low oxalate diet as a last ditch effort. I love bread and chocolate so it was hard. I started in January 2007, and then came February, March. . . I didn't feel better and it was frustrating! But, the diet said you had to give it 3 months to a year to see results, so I stuck to it. And then came April! AH!! Relief! After all that time! It took 3 months to see results, but when I did, it was beautiful! It's July, and I can now say I'm at least 50%-75% better. I still have flare ups, which are disheartening. But they are rarer and last for shorter periods of time than before. I definately recommend the diet. It takes will power, but in my case, it was worth it. Good Luck > > Thank you all for your support...it has been wonderful to find this > group. After alot of research on vulvadynia, I see alot of women > recommend the low oxalate diet. Has anyone tried this....I've bought > the pillows, icepacks but at this point I'm looking for anything that > could help manage the pain. > > > > Jan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 I first started by eating only foods with no oxalates at all for three days. I had immediate relief but couldn't continue the no-oxalate diet because it was too restrictive and eventually I learned which foods I could eat with no pain and which ones caused me pain. Some of them cause me pain even though they don't have oxalates. I never did the calcium citrate with no Vitamin D though. I am also a bread-a-holic but now only eat french bread. I found out that so-called wheat bread is frequently just white bread with molasses added to color it and make people think they are eating whole wheat bread. Ora >I started the low oxalate diet as a last ditch effort. I love bread >and chocolate so it was hard. I started in January 2007, and then >came February, March. . . I didn't feel better and it was >frustrating! But, the diet said you had to give it 3 months to a year >to see results, so I stuck to it. And then came April! AH!! Relief! >After all that time! It took 3 months to see results, but when I did, >it was beautiful! It's July, and I can now say I'm at least 50%-75% >better. I still have flare ups, which are disheartening. But they >are rarer and last for shorter periods of time than before. I >definately recommend the diet. It takes will power, but in my case, >it was worth it. > >Good Luck > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Ora, I tried your suggestion and it works very well for flare ups! " have a jar of vaseline mixed with vicks (1/4 vicks and 3/4 vaseline) which I spread on very thinly occasionally and it gets rid of the pain for a while If I am having aflare. " Thanks >Thank you all for your support...it has been wonderful to find this >group. After alot of research on vulvadynia, I see alot of women >recommend the low oxalate diet. Has anyone tried this....I've bought >the pillows, icepacks but at this point I'm looking for anything that >could help manage the pain. > > > >Jan ------------------------------------ **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, Thanks for your cooperation! ** *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 Hi: I just noticed this message. I'm not on here all that frequently but am sure greatful y'all are here! Anyway, for me the low oxalate diet is ESSENTIAL. Any foods that are high oxalate flare me up badly! I am in the midst of a major flare-up that started June 19th when I accidentally made a bad food choice at a restaurant. One must REALLY be careful when eating out. How could I NOT know there were peppercorns in the sauce?! I thought it was just other herbs and spices. In the middle of the night I went to pee and had horrific burning, enough to put me in tears. At that point I realized what I had done. Stupid, stupid Marcia!!!! I am better but nowhere NEAR as well as I was before then. Anyway, I ramble! For me, peppercorns are the worst followed by (unfortunately), chocolate...the better the chocolate the worse the flare. Cannot touch spinach nor oats. I really have to be careful but I can definitely say that in my case (I have pudendal neuropathy), I would not be able to function without being on a low oxalate diet. Marcia Quote Link to comment Share on other sites More sharing options...
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