Help newly diagnosed with PSC don't know where to turn

[Guest guest]

4 weeks ago I was diagnosed with crohns disease and went for a cat scan

enterography and the doc called on Saturday and told me I have PSC. He

wants to do an ERCP. I am really upset. My 13 year old daughter

suffered for 4 years with leukemia and we couldnt' find a bone marrow

donor suitable enough. She is doing well due to additional chemo. Now

the PSC diagnosis. I live in New York (Long Island) but want to make

sure I am on the right path of treatment. Is there a facility and doc

that sees the most of this or the guru in the field? What meds help?

I don't have elevations yet in my enzymes. Not sure what to do next.

The stess is very difficult to handle!

Thanks

Chris