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Any doctor recommendations at Mayo -MN?

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I am newly diagnosed and want to get a second opinion on everything for

my peace of mind. I am considering goint ot Mayo Clinic and was hoping

someone might know who is the PSC specialist there? This disease makes

me so tired. Any meds for the exhaustion??? I stopped all coffee and

soda and am trying to drink lots of water. Just so tired..

Thanks

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I see that you found the message board that I was talking about, I

wasn't sure that I could mention the name on the other board. This

board has been a great source of information for me, I hope that it

will be for you too. I know that it's easy for me to say but trust me

from someone that has been there, try not to think the worst. As you

will see on this board people really can lead " normal " (whatever that

is LOL) lives with this disease. Also keep in mind that just like on

the Crohns board, most of us tend to post most often when things aren't

going quite as well as we would like.

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I don't go to Mayo but I think the MN one is where Dr. Lindor

is. I know he is a PBC guru of sorts and I think he treats PSC as

well. You can call and ask to speak with someone in his office.

Good luck!

PSC 8/07

PBC 10/06

>

> I am newly diagnosed and want to get a second opinion on everything

for

> my peace of mind. I am considering goint ot Mayo Clinic and was

hoping

> someone might know who is the PSC specialist there? This disease

makes

> me so tired. Any meds for the exhaustion??? I stopped all coffee

and

> soda and am trying to drink lots of water. Just so tired..

>

> Thanks

>

>

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Hi --

I see Dr. Gores at Mayo. He specializes in PSC, and I'm going

out there for my semi-annual visit the first week of November.

You're right that the fatigue can be debilitating. I find that green

tea (either with or without caffeine), along with plenty of water,

helps keep me going. My fatigue is worst when I'm not constantly

pushing fluids. It's a pain to have a water bottle with me all the

time, but at least I can still work and feel somewhat productive.

Hope this helps.

Tom

PSC 1999

>

> I am newly diagnosed and want to get a second opinion on everything

for

> my peace of mind. I am considering goint ot Mayo Clinic and was

hoping

> someone might know who is the PSC specialist there? This disease

makes

> me so tired. Any meds for the exhaustion??? I stopped all coffee and

> soda and am trying to drink lots of water. Just so tired..

>

> Thanks

>

>

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