Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Hi everyone, I've meant to post for a very long time. I hope the information I have can help at least a few of you: I spent 9 years in misdiagnosis hell. I was painfully dilating to treat vaginismus, but that wasn't my primary problem. It wasn't until I went to medical school that I figured myself out. Here is what you need to know: There is a very significant difference between primary and secondary dyspareunia. If you have ALWAYS had pain at the introitus on contact, you might have what I had: primary vulvar vestibuliltis, not caused by an infection, associated with a hyperproliferation of nerves. No amount of dilating, lidocaine, or amitriptyline helped me. Dr. T. Goldstein did. I had a vulvar vestibulectomy, and like 93% of women with my specific diagnosis, I'm now fine. I lost my virginity at 29. And if there's anything I can do to make another woman's road shorter and less painful than mine was - please let me know. I'm now a doctor, but this isn't my specialty. That said, I'm happy to explain a lot of medicine, and I'm happy to share what I know. Lots of luck to everyone, D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Dear D, I thought the differences were between primary and secondary vvs. I didn't know there were also distinctions between primary and secondary dysperunia as well. What are the differences/distinctions if you don't mind me asking? Thanks, ~~ cured Hi everyone,There is a very significant difference between primary and secondary dyspareunia. If you have ALWAYS had pain at the introitus on contact, you might have what I had: primary vulvar vestibuliltis, not caused by an infection, associated with a hyperproliferation of nerves. No amount of dilating, lidocaine, or amitriptyline helped me. Dr. T. Goldstein did. I had a vulvar vestibulectomy, and like 93% of women with my specific diagnosis, I'm now fine. I lost my virginity at 29. And if there's anything I can do to make another woman's road shorter and less painful than mine was - please let me know.D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 I am glad you are doing so well but would like to comment on that figure of 93% satisfaction for the results of surgery. There have been various success rates reported, at least one as low as 54%. The 93% was the highest and two different rates were reported from two different sources for the same study. One reported 75% success and the other 93% " satisfied " . Ora > >Hi everyone, > > I had a vulvar vestibulectomy, and >like 93% of women with my specific diagnosis, I'm now fine. >Lots of luck to everyone, >D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 I think, based on my research, satisfaction rates have to do with surgical pre-screening and whether it was primary or secondar vestibulitis. With primary the results are incredibly high-in the 90s depending on the study. With secondary the results seem to be much lower. Lindsey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hi D,Thanks for posting about your success story. So glad to hear that you are completely better. Encouraging. I hope you will stick around for awhile - maybe to help others. Take Care,Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 So if you dont wear underwear, doesn't your jeans or pants irritate you? Or do you just wear skirts? BlueeberriGet fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 PS-thanks for sharing your success story! I wish you luck in the future! Lindsey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hi D, Congrats on feeling good. I have primary vvs and mine was cured just by stopping the wearing of underware. I know that people get surgery and I wanted to try anything before that. My 3 treatment was to go to PT and I saw Rhonda K. and found that my nerves were all messed up. Within 1 week of not wearing underware my pain was 100% gone. Did you try PT before surgery? in IL > > Hi everyone, > > I've meant to post for a very long time. I hope the information I > have can help at least a few of you: > > I spent 9 years in misdiagnosis hell. I was painfully dilating to > treat vaginismus, but that wasn't my primary problem. It wasn't > until I went to medical school that I figured myself out. Here is > what you need to know: > > There is a very significant difference between primary and secondary > dyspareunia. If you have ALWAYS had pain at the introitus on > contact, you might have what I had: primary vulvar vestibuliltis, not > caused by an infection, associated with a hyperproliferation of > nerves. No amount of dilating, lidocaine, or amitriptyline helped > me. Dr. T. Goldstein did. I had a vulvar vestibulectomy, and > like 93% of women with my specific diagnosis, I'm now fine. I lost > my virginity at 29. And if there's anything I can do to make another > woman's road shorter and less painful than mine was - please let me > know. > > I'm now a doctor, but this isn't my specialty. That said, I'm happy > to explain a lot of medicine, and I'm happy to share what I know. > > Lots of luck to everyone, > D > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 oh if the underwear issue were the answer for all those who have posted here....hugs, ML Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 I had secondary vestibulitis brought on after childbirth, had a vestibulectomy after trying to get a diagnosis and MANY failed treatments for almost 6 yrs and the surgery cured me about 99%! If anyone needs to talk about their situation or surgery feel free to contact me as well > > >Hi everyone, > > > > I had a vulvar vestibulectomy, and > >like 93% of women with my specific diagnosis, I'm now fine. > >Lots of luck to everyone, > >D > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 I wish that it would be. I know that I have a simple solution and I am incredibly grateful for that. I only had contact pain though, so it was not as complicated of an issue as so many. > > oh if the underwear issue were the answer for all those who have posted > here....hugs, ML > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 No, most of the time they don't. I try to wear them a little big or wear just cotton or nylon pants/shorts. I save my jean shorts for when I go out with people. I have a couple pairs of boy shorts (don't care for that kind) to wear as needed. I only had contact pain though...so only sex and exams. > > So if you dont wear underwear, doesn't your jeans or pants irritate you? Or > do you just wear skirts? > > Blueeberri > > > > **************Get fantasy football with free live scoring. Sign up for > FanHouse Fantasy Football today. > (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Hi D, According to what you wrote, It reminds me the sympthoms i have. My doctor said that i have VVS and according to what you write here, if i understand correctly, you succeeded to find treatment. Am i right? She said that according to the very tenced pelvic flour muscles, i have a pain.(Actually all this thing appeared as the result of my boyfriend request to see sexologist - i am always have pains and no comfort feeling at all). If you have any recomendations, i would love to here. Now she sent me to make Phisio therapy of pelvic flour to learn to controll those muscles. IT is strange to me as i am also a dancer (ballet) who usually hold the muscles all thogether and know how to controll them. Anyway any advises can be great. thanks a lot have a nice week Yulya > > Hi everyone, > > I've meant to post for a very long time. I hope the information I > have can help at least a few of you: > > I spent 9 years in misdiagnosis hell. I was painfully dilating to > treat vaginismus, but that wasn't my primary problem. It wasn't > until I went to medical school that I figured myself out. Here is > what you need to know: > > There is a very significant difference between primary and secondary > dyspareunia. If you have ALWAYS had pain at the introitus on > contact, you might have what I had: primary vulvar vestibuliltis, not > caused by an infection, associated with a hyperproliferation of > nerves. No amount of dilating, lidocaine, or amitriptyline helped > me. Dr. T. Goldstein did. I had a vulvar vestibulectomy, and > like 93% of women with my specific diagnosis, I'm now fine. I lost > my virginity at 29. And if there's anything I can do to make another > woman's road shorter and less painful than mine was - please let me > know. > > I'm now a doctor, but this isn't my specialty. That said, I'm happy > to explain a lot of medicine, and I'm happy to share what I know. > > Lots of luck to everyone, > D > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 What I found helpful that I learned here is this " dont let anything stress you out to much " so I pick and choose what I am going to let " get to me " hugs, ML -----Hi D, According to what you wrote, It reminds me the sympthoms i have. My doctor said that i have VVS and according to what you write here, if i understand correctly, you succeeded to find treatment. Am i right? She said that according to the very tenced pelvic flour muscles, i have a pain.(Actually all this thing appeared as the result of my boyfriend request to see sexologist - i am always have pains and no comfort feeling at all). ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Hi , I wish it could be simple to "don't let anything stress me", Withmy work day it is just impossible but thanks for the advise anyway. I am glad that someone else is ok now. thanks Yulya RE: Re: cured What I found helpful that I learned here is this "dont let anything stressyou out to much" so I pick and choose what I am going to let "get to me"hugs, ML-----Hi D,According to what you wrote, It reminds me the sympthoms i have. Mydoctor said that i have VVS and according to what you write here, ifi understand correctly, you succeeded to find treatment. Am i right?She said that according to the very tenced pelvic flour muscles, ihave a pain.(Actually all this thing appeared as the result of myboyfriend request to see sexologist - i am always have pains and nocomfort feeling at all).------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Hi , I wish it could be simple to " don't let anything stress me " , Withmy work day it is just impossible but thanks for the advise anyway. I am glad that someone else is ok now. thanks Yulya > > What I found helpful that I learned here is this " dont let anything stress > you out to much " so I pick and choose what I am going to let " get to me " > hugs, ML > > > -----Hi D, > According to what you wrote, It reminds me the sympthoms i have. My > doctor said that i have VVS and according to what you write here, if > i understand correctly, you succeeded to find treatment. Am i right? > She said that according to the very tenced pelvic flour muscles, i > have a pain.(Actually all this thing appeared as the result of my > boyfriend request to see sexologist - i am always have pains and no > comfort feeling at all). > > > ------------------------------------ > Quote Link to comment Share on other sites More sharing options...
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