Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 Dear Sharon, No, I didn't think anything (bad) of your advice because depression is not something that should go untreated. You were kind to offer advice! As for this site; I get anxious too about reoccurance of thyca. I have been in a sort of denial about thyca since i had my TT and RAI and scans. I was kinda thinking I didn't have to think about thyca! But it's good to be in touch with people in the same boat; so to speak... and to glean information here. Love, Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 Hi Teri - I'm sorry - I did not mean to be patronizing! I obviously did not know where you were coming from and understand now that you needed an ear more than you needed advice! I just hate the thought of someone suffering from depression and not getting help. Hopefully things will start looking up for you soon. I, too, am happy that school is starting - after a long summer. I agree that exercise is a good thing. Getting back into a regular routine will help me a lot and I imagine will help things for you too! Just to let you know where I'm coming from - I've suffered for years from clinical depressions. I was on Prozac but it suddenly seemed to stop working for me and now I'm on Effexor - which seems to do the trick. As far as Thyca - I had a lobectomy back in 1992 for a papillary carcinoma (Stage 2) and am currently on suppression therapy. Reading this forum is helpful, but it also causes me to worry about recurrence a lot! Peace - Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 I could not agree more. It is most important to share your feelings with a person who can not only validate them, but help you assess when you need to take the next step and talk to either a physician or mental health professional. a Mom of Ben Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi Carla, I can certainly understand your depression and anxiety. I'm sorry your family is not more supportive. That coupled with the pain is an enormous amount to bear. Pain is just so flipping debilitating. I hope your new meds help a bit. Cy Depression > Thank you, Pierre! > Your post is somewhat I have been feeling the past couple of > weeks. I have been feeling a lot of anixety and depression. That is > why you haven't seen me post that much. I am just so tired of the > pain. I know worse is yet to come, according to what my new > Nephrologist told me. But she said to just relax and just take it > one day at a time. Because she saids I still have a long ways to go. > But the fatigue, Kidney spasms and infections is enough for me to > handle. I did get some medications for this. > It is just not fair! I just have too much on my plate. All my > life I have lived with a disability, now I have IgA with high blood > pressure. Gee whiz! Enough is enough. Then top it off no family > support. My family is very " normal " persue. They don't have to watch > anything. They just look at me and said " I will get over it. " > Hello....I have to live with this the rest of my life. I have heard > over and over that don't let this get to you. Well, how can it not. > Since all this with the water gain and all, I lost being able to > walk. I can just take little steps before I am screaming in pain. I > mean I am trying to be thankful and not let this kidney disease get > to me, but I am just tired of all of it. I am finally going back to > counseling. I just need to get a grip on this before it takes over > and I am not ready to let that happen. > I do know I have many blessings and I am very thankful of them, > but I am just tired, that is all. Well, Thank you everyone for > letting me vent. Take Care and have a great Friday or the weekend in > some places. > Carla S. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported > by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 I've only been dealing with this pain for about a month and a half and I find myself falling into a depression waking up and being in pain all day. Some days are better then others but most days I am dealing with major flare ups. I look through these boards and see women who have had this for years and I find myself crying thinking of having to live like this. I am trying changing my diet, finally finding a doctor who isn't ignoring my symptoms, but to tell you the truth, I am not seeing much hope. Everyone seems to have a different solution, but we all seem to be grabbing at anything to make the pain disappear. Has anyone else been struggling with depression...I find myself crying daily and that just isn't me....I have always been such an upbeat person. I've had pain before (back surgeries, etc.), but this pain is constant and grinding. I guess I'm just looking for hope.... Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 I can very much relate to how you feel. Incredibly, I have other issues that I have not been able to solve that I have had just as long as VV (which is much more under control) that I feel more desperate about. With VV, there is a list of about 10 things to try and retry because sometimes the timing is wrong and after a time you do learn what helps or not and can piece together some sorta pattern and unfortunately we each tend to have different versions of VV so different things work, but the list is not endless. I tell anyone who has pain issues the same thing. You are on a journey, a horrible one, but one none the less. As you walk along the road there are numerous rocks to turn over. One by one you will need to turn each one over and sometimes there is a breadcrumb underneath that will lead you to the next thing to try. The first thing to get under control is your pain. Being in pain clouds your brain so if your dr is afraid to prescribe the usual list of meds women try, find a neurologist or pain dr who is experienced to help. Luckily, for VV there are great resources ie National Vulvodynia Association to help find people who are interested in helping you. With my other issues, it seems every Dr I go to barely engages thier brain to think of what to do for me or they give up when I don't magically respond to what they think I should do. I wish for you that you soon feel like you are on a path to controlling the VV and that your better days out number your bad ones. VulvarDisorders , " dotbus123 " wrote: > > I've only been dealing with this pain for about a month and a half and > I find myself falling into a depression waking up and being in pain all > day. Some days are better then others but most days I am dealing with > major flare ups. I look through these boards and see women who have > had this for years and I find myself crying thinking of having to live > like this. I am trying changing my diet, finally finding a doctor who > isn't ignoring my symptoms, but to tell you the truth, I am not seeing > much hope. Everyone seems to have a different solution, but we all > seem to be grabbing at anything to make the pain disappear. Has anyone > else been struggling with depression...I find myself crying daily and > that just isn't me....I have always been such an upbeat person. I've > had pain before (back surgeries, etc.), but this pain is constant and > grinding. > > I guess I'm just looking for hope.... > > Jan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Jan: Depression with chronic pain is common. Have you asked for an antidepressant? There are some good ones there with minimal side effects. Hang on. You are going to find your way thru the pain. You are going to improve. The first part is absolutely the worst part. Once you are on your way with a good doctor...I found females especially nurse practioners in the specialists office, to be an excellent source of help and hope. As well as everyone on this list. It will pass. It takes time. Deciding not to stress too much about anything really helped me. love, ML Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 I remember a month into this. It was HARD, aside from the constant pain, I was scared to death it would never go away. It will subside, it may likely flare up again too. We are all each different. I have no idea why this has happened to me and I am still a bit loss, but coping. This will get better for you. I wish a Dr. had prescribed lidocaine for topical burning. It would have helped those first few months. For some people this really does go away. Many women have one or two occasions when this happens, you are just reading from a group who have been coping and need help in doing so. I wish you luck and painless days. -Lena Depression I've only been dealing with this pain for about a month and a half and I find myself falling into a depression waking up and being in pain all day. Some days are better then others but most days I am dealing with major flare ups. I look through these boards and see women who have had this for years and I find myself crying thinking of having to live like this. I am trying changing my diet, finally finding a doctor who isn't ignoring my symptoms, but to tell you the truth, I am not seeing much hope. Everyone seems to have a different solution, but we all seem to be grabbing at anything to make the pain disappear. Has anyone else been struggling with depression.. .I find myself crying daily and that just isn't me....I have always been such an upbeat person. I've had pain before (back surgeries, etc.), but this pain is constant and grinding. I guess I'm just looking for hope....Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2008 Report Share Posted July 26, 2008 Lena and Jan: I was so BAD in the beginning, the lidocaine relief lasted only briefly..... I also can say it does get better. HOPE HOPE HOPE...we give each other HOPE. ml Quote Link to comment Share on other sites More sharing options...
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