Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Hi, I don't visit this site much, but I was diagnosed with PSC in 2000. Up till about 5 or 6 months ago I had on and off symptoms (itching, fatigue) but for the last several months I've been very healthy and no symptoms. This came after I decided to see if an all organic diet would help. So far, it seems to me like it definitely has. For the last couple of months, I've felt great, and its been easy to forget that I have a chronic disease. This leads me to wonder this: maybe this disease is related more to what we eat than we think. The fact of the matter is this: very little is known about the causes of this disease. On an article I looked up, it said this: " Researchers do not know what causes PSC. Among the theories under investigation are the possible role of bacteria, viruses, and immune system problems. " This is definetly not conclusive, and leaves me to harbor this attitude: there is nobody who knows what this disease is all about. For myself, I have my own theory of what might have caused my particular case (I say " my particular case " because maybe there are differnet causes for different people- who knows?) of PSC. A genetic predisposition facilitated by the large amount of genetically altered (unnatural) substances that I consumed throughout my life. In this scenario, maybe I'll have a chance to turn back this disease. This is just a theory, and it may be wishful thinking, but so far, I can't find any findings to disprove it. This is more of a rant than anything. PSC, 2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 That is very interesting. I hope that you continue to do well. My uncle is an internal medicine specialist and he's always saying that vitamins help and that pretty much everyone needs to cut gluten from their diet and all the processed foods. So I think that you may be on to something. I need to learn how to eat better. Good luck and thanks for sharing! PSC 8/07 PBC 10/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 I don't doubt your theory at all, . We were totally organic eaters until a few months ago when we kind of fell off the band wagon and got back into some old habits. We used to eat a lot of foods that were fermented/canned in the old ways (live foods, kind of probiotics) and did not allow any processed sugar in our home. But it got really expensive and we went through a hard time so we stopped. A few months later is when my daughter got sick. I also think it is a mix of genetic predisposition - but that is just a slightly informed opinion based on what I have read from other people and our experience. Mom of Pearl Ann, age 3, PSC/Crohns 8/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Perhaps you would consider sharing with the group the mainstays of your current diet in case others would like to try it as well. Glad you have found something that works well to keep you feeling well. Hettinger Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 , I totaly agree with you. What we eat is a BIG factor. I take Aloe Vera juice 2x a day. Not the cheap stuff you find at Walmart but good stuff and I have noticed a HUGE different. Buying organic stuff is expensive but again I think the cost of medicine when you get sick and the hospital stay, not to mention the non money factor of feeling bad I think it averages out. My rational is this.... Everything you eat goes to the liver so if you eat stuff that has lots of hormons and other junk, your liver has to work harder to process it. If you eat things that don't have much other than the actual food, then your body processes the food and doesn't have to worry about processing the chemicals. Just my 2 cents... Armanarman_shirin@... a still mysterious disease and a personal theory Hi,I don't visit this site much, but I was diagnosed with PSC in 2000. Up till about 5 or 6 months ago I had on and off symptoms (itching, fatigue) but for the last several months I've been very healthy and no symptoms. This came after I decided to see if an all organic diet would help. So far, it seems to me like it definitely has. For the last couple of months, I've felt great, and its been easy to forget that I have a chronic disease. This leads me to wonder this: maybe this disease is related more to what we eat than we think. The fact of the matter is this: very little is known about the causes of this disease. On an article I looked up, it said this: "Researchers do not know what causes PSC. Among the theories under investigation are the possible role of bacteria, viruses, and immune system problems." This is definetly not conclusive, and leaves me to harbor this attitude: there is nobody who knows what this disease is all about. For myself, I have my own theory of what might have caused my particular case (I say "my particular case" because maybe there are differnet causes for different people- who knows?) of PSC. A genetic predisposition facilitated by the large amount of genetically altered (unnatural) substances that I consumed throughout my life. In this scenario, maybe I'll have a chance to turn back this disease. This is just a theory, and it may be wishful thinking, but so far, I can't find any findings to disprove it.This is more of a rant than anything. PSC, 2000 Check out the hottest 2008 models today at Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Hey I think there's a lot to be said for diet and its impact on a whole host of diseases (not just PSC). While I've not made the total switch to an all organic diet, I've been more careful with what I eat and gone " back to basics " over the past year. So that means I use real garlic instead of garlic powder when cooking. Yes, it's not as convenient, but then if it means feeling better, I'm all for it. Following a gluten-free diet has also made a difference even though I tested negative for gluten sensitivity via blood tests but positive via food intolerance testing [go figure]. On a side note, I didn't realize how much I ate bread until I attempted cutting out gluten. Some of the alternative " bread " products would be put to better use soaking up oil spills or as a door stop than for human consumption. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 Hi , I totally agree with you about the role of diet with PSC. I was diagnosed with a lot of food allergies (soy, nuts, gluten, in 2003-4) and found those things very common in my diet at the time. I have since cut out those things and basically shop at the health food store (still reading ingredients and watching my diet). I have had a huge turn around since changing my diet. Before I was sick all the time and was still having a lot of problems with my j-pouch (post UC tx, 2002) and since then have not been completely symptom free, but definitely a lot better. Well good luck to you and thanks for sharing! Jarad, 27 PSC dx 1996 UC dx 1999 Jpouch 2002-3 Food Allergies 2003-4 Osteoporosis 2006 Back surgery 2007 > > Hi, > I don't visit this site much, but I was diagnosed with PSC in 2000. Up > till about 5 or 6 months ago I had on and off symptoms (itching, > fatigue) but for the last several months I've been very healthy and no > symptoms. This came after I decided to see if an all organic diet would > help. So far, it seems to me like it definitely has. For the last > couple of months, I've felt great, and its been easy to forget that I > have a chronic disease. > This leads me to wonder this: maybe this disease is related more to > what we eat than we think. The fact of the matter is this: very little > is known about the causes of this disease. On an article I looked up, > it said this: " Researchers do not know what causes PSC. Among the > theories under investigation are the possible role of bacteria, > viruses, and immune system problems. " This is definetly not conclusive, > and leaves me to harbor this attitude: there is nobody who knows what > this disease is all about. > For myself, I have my own theory of what might have caused my > particular case (I say " my particular case " because maybe there are > differnet causes for different people- who knows?) of PSC. A genetic > predisposition facilitated by the large amount of genetically altered > (unnatural) substances that I consumed throughout my life. In this > scenario, maybe I'll have a chance to turn back this disease. This is > just a theory, and it may be wishful thinking, but so far, I can't find > any findings to disprove it. > > This is more of a rant than anything. > > > PSC, 2000 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 I need to do good allergy tests. Does a regular allergy doctor do the testing or is it a special doctor? Sorry for the ignorance. What kind of test is it? blood? skin? Thanks. Armanarman_shirin@... Re: a still mysterious disease and a personal theory Hi ,I totally agree with you about the role of diet with PSC.I was diagnosed with a lot of food allergies (soy, nuts, gluten, in 2003-4) and found those things very common in my diet at the time. I have since cut out those things and basically shop at the health food store (still reading ingredients and watching my diet). I have had a huge turn around since changing my diet. Before I was sick all the time and was still having a lot of problems with my j-pouch (post UC tx, 2002) and since then have not been completely symptom free, but definitely a lot better. Well good luck to you and thanks for sharing!Jarad, 27PSC dx 1996UC dx 1999Jpouch 2002-3Food Allergies 2003-4Osteoporosis 2006Back surgery 2007>> Hi,> I don't visit this site much, but I was diagnosed with PSC in 2000. Up > till about 5 or 6 months ago I had on and off symptoms (itching, > fatigue) but for the last several months I've been very healthy and no > symptoms. This came after I decided to see if an all organic diet would > help. So far, it seems to me like it definitely has. For the last > couple of months, I've felt great, and its been easy to forget that I > have a chronic disease. > This leads me to wonder this: maybe this disease is related more to > what we eat than we think. The fact of the matter is this: very little > is known about the causes of this disease. On an article I looked up, > it said this: "Researchers do not know what causes PSC. Among the > theories under investigation are the possible role of bacteria, > viruses, and immune system problems." This is definetly not conclusive, > and leaves me to harbor this attitude: there is nobody who knows what > this disease is all about. > For myself, I have my own theory of what might have caused my > particular case (I say "my particular case" because maybe there are > differnet causes for different people- who knows?) of PSC. A genetic > predisposition facilitated by the large amount of genetically altered > (unnatural) substances that I consumed throughout my life. In this > scenario, maybe I'll have a chance to turn back this disease. This is > just a theory, and it may be wishful thinking, but so far, I can't find > any findings to disprove it.> > This is more of a rant than anything. > > > PSC, 2000> Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 The staples of my natural (to clarify, I eat all natural, not always organic) diet are rice, beans, vegetables and whole wheat and whole grain breads. I believe, though, that what is most important for me, given that I'm getting all the essentials, is what I don't eat (avoiding processed foods). I also eat a vegetarian diet, for one, because natural meat is expensive, and two, I'm afraid of the effects on my mind that the byproducts of animal protein will have (ex. hepatic encephalopathy). This is a very rigid, inconvenient diet, but I've been motivated to keep it up because I've been feeling great. > > Perhaps you would consider sharing with the group the mainstays of your current diet in case others would like to try it as well. > > Glad you have found something that works well to keep you feeling well. > > Hettinger > > > --------------------------------- > Got a little couch potato? > Check out fun summer activities for kids. > Quote Link to comment Share on other sites More sharing options...
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