Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 I'd been meaning to increase our riboflavin and Toni suggested that we should try using R5P instead of riboflavin. Our OAT also indicated Maia needed more riboflavin for detoxification. We have a small amount of R5P in our b-complex, but the OAT indicated that we needed ten times more riboflavin than what was in the b-complex. I'd been adding just riboflavin because I was el broko and I couldn't afford to just order a bottle of R5P. So after I got paid for a bunch of jobs I did and the checks cleared, my first order of business (as it always is after I get some checks) is to order supplements. Wow. Wow. Wow! The riboflavin didn't do much, positive or negative. But when I switched the riboflavin we're padding onto our b-complex with R5P, holy moley... In the last few days, I've been spelling out words with letter cards and Maia is trying to sound them out. (Keep in mind, Maia is 4 and no one has actively tried teaching her how to read yet because her ABA program is working on letter identification). I was trying to teach her how to use a search engine because I thought it would help with motivating her for letter identification. Her ABA program has been working on A to E. So I spelled out words of interest to her " Elmo " " jump " " song " " Barney " " Hi 5 " so she could see how they looked as she enters them into the search engine. As we read off the letters, she began to independently sound out the word. Slowly, and then saying the word that it said...without me saying it! I couldn't believe what I was seeing! I started spelling out all words that I knew were accessible to her in terms of articulation ( " down " " up " " sit " ) and she was able to sound out all of them but needed help with the word " down " . I'd always suspected she could sight read words (by attaching words to meanings), as she was always able to pick out what she wanted from drop down menus. But to sound out words and try to say them (and when I say " try " , I mean that articulation is still not very clear -- takes her a lot of effort to form each syllable)...that's totally new! I was over the moon! But the other thing that's been happening -- sentences. No super complex sentences or questions but just " I want a turn " (on the computer), " I want a bear " (Ethan's omega 3 gummy bears, which I'm giving to the kids quite liberally), " My turn " , " Mama out " and more little phrases than I can count. Again, articulation is still very sloppy. Intonation of words also sounds weird. The ups and downs of sounds doesn't sound quite right. But maybe this is something I need to work on with chelation? The R5P (and perhaps the goldenseal?) seems to have triggered a massive oxalate dump. This one's a doozie. Tiny patches of bumps on one of her cheeks, very loose stools, and cloudy urine. I haven't seen a dump like this since the spring. I'm not sure which did it -- probably the R5P. I have some allithiamine on order right now and I'm just waiting for it to get here. I'm excited to start that after hearing about Nanci's experience with it. We still need the carnosine to help with her apraxia. Her index finger pointing seems to dwindle when she doesn't have carnosine. Without carnosine, she'll point with an open hand and not just her index finger, and her articulation of words gets noticeably sloppier. She's also using single words to answer questions now. But that might be more ABA, because we've been working on this in ABA. She started that when we significantly increased her B6. She just " got " that when people asked a question, there needed to be an answer given (before the higher doses of B6, a question posed to her may as well have been a statement -- she couldn't identify that it was something where she's required to answer). However, something different is that her answers are coming more quickly in the last few days. But something odd and I'm not sure what to make of this -- she's been " talking " in her sleep. Little babbles and talking too fast for me to make out what she's saying and little giggles in her sleep. We've just hit our one-year mark of LOD. TBH, we've come further than I thought we would in a year. I still need to prompt her to say some things, but I'm thinking we could work with the ABA team to start fading the prompts and getting her to use more sentences unprompted. Just thought I'd share this -- this is pretty exciting for me. I feel like I've been waiting so long for her to talk. It's so nice to start hearing short sentences and it's totally put me on Cloud 9 the last few days. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 Way to go, Maia!!!! Great work! -Tammy To: m12valtrex <mb12valtrex >; Trying_Low_Oxalates <Trying_Low_Oxalates > Sent: Tuesday, January 3, 2012 8:18 AM Subject: Seeing language gains from adding in R5P and goldenseal I'd been meaning to increase our riboflavin and Toni suggested that we should try using R5P instead of riboflavin. Our OAT also indicated Maia needed more riboflavin for detoxification. We have a small amount of R5P in our b-complex, but the OAT indicated that we needed ten times more riboflavin than what was in the b-complex. I'd been adding just riboflavin because I was el broko and I couldn't afford to just order a bottle of R5P. So after I got paid for a bunch of jobs I did and the checks cleared, my first order of business (as it always is after I get some checks) is to order supplements. Wow. Wow. Wow! The riboflavin didn't do much, positive or negative. But when I switched the riboflavin we're padding onto our b-complex with R5P, holy moley... In the last few days, I've been spelling out words with letter cards and Maia is trying to sound them out. (Keep in mind, Maia is 4 and no one has actively tried teaching her how to read yet because her ABA program is working on letter identification). I was trying to teach her how to use a search engine because I thought it would help with motivating her for letter identification. Her ABA program has been working on A to E. So I spelled out words of interest to her "Elmo" "jump" "song" "Barney" "Hi 5" so she could see how they looked as she enters them into the search engine. As we read off the letters, she began to independently sound out the word. Slowly, and then saying the word that it said...without me saying it! I couldn't believe what I was seeing! I started spelling out all words that I knew were accessible to her in terms of articulation ("down" "up" "sit") and she was able to sound out all of them but needed help with the word "down". I'd always suspected she could sight read words (by attaching words to meanings), as she was always able to pick out what she wanted from drop down menus. But to sound out words and try to say them (and when I say "try", I mean that articulation is still not very clear -- takes her a lot of effort to form each syllable)...that's totally new! I was over the moon! But the other thing that's been happening -- sentences. No super complex sentences or questions but just "I want a turn" (on the computer), "I want a bear" (Ethan's omega 3 gummy bears, which I'm giving to the kids quite liberally), "My turn", "Mama out" and more little phrases than I can count. Again, articulation is still very sloppy. Intonation of words also sounds weird. The ups and downs of sounds doesn't sound quite right. But maybe this is something I need to work on with chelation? The R5P (and perhaps the goldenseal?) seems to have triggered a massive oxalate dump. This one's a doozie. Tiny patches of bumps on one of her cheeks, very loose stools, and cloudy urine. I haven't seen a dump like this since the spring. I'm not sure which did it -- probably the R5P. I have some allithiamine on order right now and I'm just waiting for it to get here. I'm excited to start that after hearing about Nanci's experience with it. We still need the carnosine to help with her apraxia. Her index finger pointing seems to dwindle when she doesn't have carnosine. Without carnosine, she'll point with an open hand and not just her index finger, and her articulation of words gets noticeably sloppier. She's also using single words to answer questions now. But that might be more ABA, because we've been working on this in ABA. She started that when we significantly increased her B6. She just "got" that when people asked a question, there needed to be an answer given (before the higher doses of B6, a question posed to her may as well have been a statement -- she couldn't identify that it was something where she's required to answer). However, something different is that her answers are coming more quickly in the last few days. But something odd and I'm not sure what to make of this -- she's been "talking" in her sleep. Little babbles and talking too fast for me to make out what she's saying and little giggles in her sleep. We've just hit our one-year mark of LOD. TBH, we've come further than I thought we would in a year. I still need to prompt her to say some things, but I'm thinking we could work with the ABA team to start fading the prompts and getting her to use more sentences unprompted. Just thought I'd share this -- this is pretty exciting for me. I feel like I've been waiting so long for her to talk. It's so nice to start hearing short sentences and it's totally put me on Cloud 9 the last few days. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 God bless you alberta..well done! To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, January 3, 2012 8:56 AMSubject: Re: Seeing language gains from adding in R5P and goldenseal Way to go, Maia!!!! Great work! -Tammy To: m12valtrex <mb12valtrex >; Trying_Low_Oxalates <Trying_Low_Oxalates > Sent: Tuesday, January 3, 2012 8:18 AMSubject: Seeing language gains from adding in R5P and goldenseal I'd been meaning to increase our riboflavin and Toni suggested that weshould try using R5P instead of riboflavin. Our OAT also indicatedMaia needed more riboflavin for detoxification. We have a smallamount of R5P in our b-complex, but the OAT indicated that we neededten times more riboflavin than what was in the b-complex. I'd beenadding just riboflavin because I was el broko and I couldn't afford tojust order a bottle of R5P. So after I got paid for a bunch of jobs Idid and the checks cleared, my first order of business (as it alwaysis after I get some checks) is to order supplements.Wow. Wow. Wow!The riboflavin didn't do much, positive or negative. But when Iswitched the riboflavin we're padding onto our b-complex with R5P,holy moley...In the last few days, I've been spelling out words with letter cardsand Maia is trying to sound them out. (Keep in mind, Maia is 4 and noone has actively tried teaching her how to read yet because her ABAprogram is working on letter identification). I was trying to teachher how to use a search engine because I thought it would help withmotivating her for letter identification. Her ABA program has beenworking on A to E.So I spelled out words of interest to her "Elmo" "jump" "song""Barney" "Hi 5" so she could see how they looked as she enters theminto the search engine. As we read off the letters, she began toindependently sound out the word. Slowly, and then saying the wordthat it said...without me saying it! I couldn't believe what I wasseeing! I started spelling out all words that I knew were accessibleto her in terms of articulation ("down" "up" "sit") and she was ableto sound out all of them but needed help with the word "down". I'dalways suspected she could sight read words (by attaching words tomeanings), as she was always able to pick out what she wanted fromdrop down menus. But to sound out words and try to say them (and whenI say "try", I mean that articulation is still not very clear -- takesher a lot of effort to form each syllable)...that's totally new! Iwas over the moon!But the other thing that's been happening -- sentences. No supercomplex sentences or questions but just "I want a turn" (on thecomputer), "I want a bear" (Ethan's omega 3 gummy bears, which I'mgiving to the kids quite liberally), "My turn", "Mama out" and morelittle phrases than I can count. Again, articulation is still verysloppy. Intonation of words also sounds weird. The ups and downs ofsounds doesn't sound quite right. But maybe this is something I needto work on with chelation?The R5P (and perhaps the goldenseal?) seems to have triggered amassive oxalate dump. This one's a doozie. Tiny patches of bumps onone of her cheeks, very loose stools, and cloudy urine. I haven'tseen a dump like this since the spring. I'm not sure which did it --probably the R5P.I have some allithiamine on order right now and I'm just waiting forit to get here. I'm excited to start that after hearing about Nanci'sexperience with it.We still need the carnosine to help with her apraxia. Her indexfinger pointing seems to dwindle when she doesn't have carnosine.Without carnosine, she'll point with an open hand and not just herindex finger, and her articulation of words gets noticeably sloppier.She's also using single words to answer questions now. But that mightbe more ABA, because we've been working on this in ABA. She startedthat when we significantly increased her B6. She just "got" that whenpeople asked a question, there needed to be an answer given (beforethe higher doses of B6, a question posed to her may as well have beena statement -- she couldn't identify that it was something where she'srequired to answer). However, something different is that her answersare coming more quickly in the last few days.But something odd and I'm not sure what to make of this -- she's been"talking" in her sleep. Little babbles and talking too fast for me tomake out what she's saying and little giggles in her sleep.We've just hit our one-year mark of LOD. TBH, we've come further thanI thought we would in a year. I still need to prompt her to say somethings, but I'm thinking we could work with the ABA team to startfading the prompts and getting her to use more sentences unprompted.Just thought I'd share this -- this is pretty exciting for me. I feellike I've been waiting so long for her to talk. It's so nice to starthearing short sentences and it's totally put me on Cloud 9 the lastfew days. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 Exciting news!!!!Sent from my iPod I'd been meaning to increase our riboflavin and Toni suggested that we should try using R5P instead of riboflavin. Our OAT also indicated Maia needed more riboflavin for detoxification. We have a small amount of R5P in our b-complex, but the OAT indicated that we needed ten times more riboflavin than what was in the b-complex. I'd been adding just riboflavin because I was el broko and I couldn't afford to just order a bottle of R5P. So after I got paid for a bunch of jobs I did and the checks cleared, my first order of business (as it always is after I get some checks) is to order supplements. Wow. Wow. Wow! The riboflavin didn't do much, positive or negative. But when I switched the riboflavin we're padding onto our b-complex with R5P, holy moley... In the last few days, I've been spelling out words with letter cards and Maia is trying to sound them out. (Keep in mind, Maia is 4 and no one has actively tried teaching her how to read yet because her ABA program is working on letter identification). I was trying to teach her how to use a search engine because I thought it would help with motivating her for letter identification. Her ABA program has been working on A to E. So I spelled out words of interest to her "Elmo" "jump" "song" "Barney" "Hi 5" so she could see how they looked as she enters them into the search engine. As we read off the letters, she began to independently sound out the word. Slowly, and then saying the word that it said...without me saying it! I couldn't believe what I was seeing! I started spelling out all words that I knew were accessible to her in terms of articulation ("down" "up" "sit") and she was able to sound out all of them but needed help with the word "down". I'd always suspected she could sight read words (by attaching words to meanings), as she was always able to pick out what she wanted from drop down menus. But to sound out words and try to say them (and when I say "try", I mean that articulation is still not very clear -- takes her a lot of effort to form each syllable)...that's totally new! I was over the moon! But the other thing that's been happening -- sentences. No super complex sentences or questions but just "I want a turn" (on the computer), "I want a bear" (Ethan's omega 3 gummy bears, which I'm giving to the kids quite liberally), "My turn", "Mama out" and more little phrases than I can count. Again, articulation is still very sloppy. Intonation of words also sounds weird. The ups and downs of sounds doesn't sound quite right. But maybe this is something I need to work on with chelation? The R5P (and perhaps the goldenseal?) seems to have triggered a massive oxalate dump. This one's a doozie. Tiny patches of bumps on one of her cheeks, very loose stools, and cloudy urine. I haven't seen a dump like this since the spring. I'm not sure which did it -- probably the R5P. I have some allithiamine on order right now and I'm just waiting for it to get here. I'm excited to start that after hearing about Nanci's experience with it. We still need the carnosine to help with her apraxia. Her index finger pointing seems to dwindle when she doesn't have carnosine. Without carnosine, she'll point with an open hand and not just her index finger, and her articulation of words gets noticeably sloppier. She's also using single words to answer questions now. But that might be more ABA, because we've been working on this in ABA. She started that when we significantly increased her B6. She just "got" that when people asked a question, there needed to be an answer given (before the higher doses of B6, a question posed to her may as well have been a statement -- she couldn't identify that it was something where she's required to answer). However, something different is that her answers are coming more quickly in the last few days. But something odd and I'm not sure what to make of this -- she's been "talking" in her sleep. Little babbles and talking too fast for me to make out what she's saying and little giggles in her sleep. We've just hit our one-year mark of LOD. TBH, we've come further than I thought we would in a year. I still need to prompt her to say some things, but I'm thinking we could work with the ABA team to start fading the prompts and getting her to use more sentences unprompted. Just thought I'd share this -- this is pretty exciting for me. I feel like I've been waiting so long for her to talk. It's so nice to start hearing short sentences and it's totally put me on Cloud 9 the last few days. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 Nanci, admittedly, we do take a lot of supplement breaks (sometimes unintentional breaks because we're rushing off to the ABA centre and then school and then she comes home and falls asleep before I can give her supps). When we do take breaks, I start over again and re-assess anything other than the basic supps. Sometimes I've had to remove supps after a few weeks because they weren't needed anymore....this is especially true with methionine and NAC (and the rest of the high sulfur supps). We see really amazing things at first and then it quickly backfires on me. Our DAN suggests to go lower and space out doses when this happens because it just might be too much. I'm having some problems with CP 11-strain, which is making me think that a lot of our problem is bacterial now. 2 doses of CP 11-strain and our 6-month long track record of good poops is shattered. Mind you, we did a CDSA last February and found that Maia's bifidos were in overgrowth...but that was so many months ago and so many courses of antibiotics for a persistent ear infection and then a UTI...so I figured the 11-strain wouldn't hurt. I was wrong. Stools have gone to hell in a handbasket and some food intolerances are back. Not even biotin is firming up the stools right now and I think a few doses of the 11-strain put the bifido strains back in overgrowth. I think I should never supplement anything with the bifido strains for her because she doesn't have problems with keeping the bifidos alive -- just the lactobacillus. SOMETHING is causing her lactobacillus not to stick and is symbiotic with her bifidos. And I can't help feeling that this something is bacterial and is competing with lactobacillus and is making a lot of minerals and her B's inaccessible. I can't help feeling that something about her knocks bacteria into overgrowth. She was also starting to show signs of strep overgrowth last February and I'm willing to bet dimes to donuts that the strep overgrowth is back, too. I'm not even sure it's KPU anymore because as a said, KPU would show deficiency. She does not show deficiency. None of the labs are showing that she has any mineral deficiencies or vitamin deficiency (except for Vit A, which might be a clue there that maybe viruses are at play too?). Maia's showing symptomatic deficiency but not actual deficiency. WTH? The only conclusion I can come to is that they're there but unavailable. And with the GI thing happening and the bacterial dysbiosis in her gut, I'm leaning towards thinking this beast is bacterial. I'm not going to pretend I understand it. I'll have to dig around a bit to see if there are any bacteria that are known to do this. And, if not, I'll look for viruses. But for now, I'm treating for bacteria, fungus and viruses. But I have a feeling that they're going to be attached to the minerals, too (copper included). Copper showed the same thing -- high copper serum, yet she gets boosts off of copper. Same with zinc. WHY???? I think labs aren't showing deficiency because the minerals and B's themselves are there but the body can't use them because of something the bacteria is doing to them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 you know...i noticed my son havin more stinky poop lately...and also when i give him his niacin along with his b complex he doesnt get the flush....this to me is tellin me his gut is not digesting the b vitamins...bacteria? virus? parasite? also...if the body is high in copper it is the wrong kind of copper...becuase from what i read the body is able to get rid of the copper it doesnt need if it is in the right form....so the body can still need copper even if it shows high...also i think that the good copper helps replace the bad copper... im sure you know that culturelle is the numer one bacteria fighting probiotic...as far as i know.. im also morphing again with my son....we crashed and burned with mms and diamatous clay... so i am onto a new protocol....i just ordered the book herbal antibiotics by buhner so will be learning some more stuff to look into....and share with my listmates:) To: m12valtrex <mb12valtrex >; Trying_Low_Oxalates <Trying_Low_Oxalates > Sent: Tuesday, January 3, 2012 9:51 AMSubject: Re: Seeing language gains from adding in R5P and goldenseal Nanci, admittedly, we do take a lot of supplement breaks (sometimesunintentional breaks because we're rushing off to the ABA centre andthen school and then she comes home and falls asleep before I can giveher supps).When we do take breaks, I start over again and re-assess anythingother than the basic supps. Sometimes I've had to remove supps aftera few weeks because they weren't needed anymore....this is especiallytrue with methionine and NAC (and the rest of the high sulfur supps).We see really amazing things at first and then it quickly backfires onme. Our DAN suggests to go lower and space out doses when thishappens because it just might be too much.I'm having some problems with CP 11-strain, which is making me thinkthat a lot of our problem is bacterial now. 2 doses of CP 11-strainand our 6-month long track record of good poops is shattered. Mindyou, we did a CDSA last February and found that Maia's bifidos were inovergrowth...but that was so many months ago and so many courses ofantibiotics for a persistent ear infection and then a UTI...so Ifigured the 11-strain wouldn't hurt. I was wrong. Stools have goneto hell in a handbasket and some food intolerances are back. Not evenbiotin is firming up the stools right now and I think a few doses ofthe 11-strain put the bifido strains back in overgrowth. I think Ishould never supplement anything with the bifido strains for herbecause she doesn't have problems with keeping the bifidos alive --just the lactobacillus. SOMETHING is causing her lactobacillus not tostick and is symbiotic with her bifidos. And I can't help feelingthat this something is bacterial and is competing with lactobacillusand is making a lot of minerals and her B's inaccessible. I can'thelp feeling that something about her knocks bacteria into overgrowth.She was also starting to show signs of strep overgrowth last Februaryand I'm willing to bet dimes to donuts that the strep overgrowth isback, too.I'm not even sure it's KPU anymore because as a said, KPU wouldshow deficiency. She does not show deficiency. None of the labs areshowing that she has any mineral deficiencies or vitamin deficiency(except for Vit A, which might be a clue there that maybe viruses areat play too?). Maia's showing symptomatic deficiency but not actualdeficiency. WTH? The only conclusion I can come to is that they'rethere but unavailable. And with the GI thing happening and thebacterial dysbiosis in her gut, I'm leaning towards thinking thisbeast is bacterial.I'm not going to pretend I understand it. I'll have to dig around abit to see if there are any bacteria that are known to do this. And,if not, I'll look for viruses. But for now, I'm treating forbacteria, fungus and viruses. But I have a feeling that they're goingto be attached to the minerals, too (copper included). Copper showedthe same thing -- high copper serum, yet she gets boosts off ofcopper. Same with zinc. WHY????I think labs aren't showing deficiency because the minerals and B'sthemselves are there but the body can't use them because of somethingthe bacteria is doing to them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 Oh, please do share with us what you learn, Channa. I haven't added in the allimax yet b/c we ran out a while ago and I never replaced our supply. I'd almost forgotten about that. I'm going to pick up some allimax in my travels today. Is your son still chelating, Channa? > you know...i noticed my son havin more stinky poop lately...and also when i > give him his niacin along with his b complex he doesnt get the flush....this > to me is tellin me his gut is not digesting the b vitamins...bacteria? > virus? parasite? > also...if the body is high in copper it is the wrong kind of > copper...becuase from what i read the body is able to get rid of the copper > it doesnt need if it is in the right form....so the body can still need > copper even if it shows high...also i think that the good copper helps > replace the bad copper... > im sure you know that culturelle is the numer one bacteria fighting > probiotic...as far as i know.. > im also morphing again with my son....we crashed and burned with mms and > diamatous clay... > so i am onto a new protocol....i just ordered the book herbal antibiotics by > buhner so will be learning some more stuff to look into....and share with > my listmates:) > > > > > ________________________________ > > To: m12valtrex <mb12valtrex >; Trying_Low_Oxalates > <Trying_Low_Oxalates > > Sent: Tuesday, January 3, 2012 9:51 AM > Subject: Re: Seeing language gains from adding in R5P and > goldenseal > > > > Nanci, admittedly, we do take a lot of supplement breaks (sometimes > unintentional breaks because we're rushing off to the ABA centre and > then school and then she comes home and falls asleep before I can give > her supps). > > When we do take breaks, I start over again and re-assess anything > other than the basic supps. Sometimes I've had to remove supps after > a few weeks because they weren't needed anymore....this is especially > true with methionine and NAC (and the rest of the high sulfur supps). > We see really amazing things at first and then it quickly backfires on > me. Our DAN suggests to go lower and space out doses when this > happens because it just might be too much. > > I'm having some problems with CP 11-strain, which is making me think > that a lot of our problem is bacterial now. 2 doses of CP 11-strain > and our 6-month long track record of good poops is shattered. Mind > you, we did a CDSA last February and found that Maia's bifidos were in > overgrowth...but that was so many months ago and so many courses of > antibiotics for a persistent ear infection and then a UTI...so I > figured the 11-strain wouldn't hurt. I was wrong. Stools have gone > to hell in a handbasket and some food intolerances are back. Not even > biotin is firming up the stools right now and I think a few doses of > the 11-strain put the bifido strains back in overgrowth. I think I > should never supplement anything with the bifido strains for her > because she doesn't have problems with keeping the bifidos alive -- > just the lactobacillus. SOMETHING is causing her lactobacillus not to > stick and is symbiotic with her bifidos. And I can't help feeling > that this something is bacterial and is competing with lactobacillus > and is making a lot of minerals and her B's inaccessible. I can't > help feeling that something about her knocks bacteria into overgrowth. > She was also starting to show signs of strep overgrowth last February > and I'm willing to bet dimes to donuts that the strep overgrowth is > back, too. > > I'm not even sure it's KPU anymore because as a said, KPU would > show deficiency. She does not show deficiency. None of the labs are > showing that she has any mineral deficiencies or vitamin deficiency > (except for Vit A, which might be a clue there that maybe viruses are > at play too?). Maia's showing symptomatic deficiency but not actual > deficiency. WTH? The only conclusion I can come to is that they're > there but unavailable. And with the GI thing happening and the > bacterial dysbiosis in her gut, I'm leaning towards thinking this > beast is bacterial. > > I'm not going to pretend I understand it. I'll have to dig around a > bit to see if there are any bacteria that are known to do this. And, > if not, I'll look for viruses. But for now, I'm treating for > bacteria, fungus and viruses. But I have a feeling that they're going > to be attached to the minerals, too (copper included). Copper showed > the same thing -- high copper serum, yet she gets boosts off of > copper. Same with zinc. WHY???? > > I think labs aren't showing deficiency because the minerals and B's > themselves are there but the body can't use them because of something > the bacteria is doing to them. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 what is allimax? i am unfamiliar with that...sadly i have not been chelating my son..in a long while....due to all the turmoil that has been goin on in my life thanks to DCF and my own health takin a turn for the worst....i have proven to myself i could burn the candle at both ends for a total of four years before i started spiralling down hill big time... i plan on starting this weekend again....i also wanted to get a full weeks worth of the new liquid mineral i got for him...i am concerned the chealting without giving him any zinc or magnesium because he didnt do well on them is the cause of his growth issues....i am hoping it is the cause....if not i will have to look into endocrine support... not f***in fun....seein my son day after day steppin on the scales with no change and seein his sparse hair....i would give my arm to see him grow again.... sorry getting emotional now.... i will tell you thou he does seem to be doin well with immusist , my orgone zapper( antiinflammatory),sea aloe gold and digest specrumfor his bloating ( suspect pathogens again) also valerian and scullcap...seems to help with the whole glutamate issue in brain for him....his speech is getting better....his trauma from his father is coming up....but i think out is always better then in.....i find that by praying passionatly with him at night gives him peace.... i cant afford all the fancy therapists ect....but there is something about passionate prayer...that is so powerful... channa channa To: mb12valtrex Sent: Tuesday, January 3, 2012 12:21 PMSubject: Re: Re: Seeing language gains from adding in R5P and goldenseal Oh, please do share with us what you learn, Channa. I haven't addedin the allimax yet b/c we ran out a while ago and I never replaced oursupply. I'd almost forgotten about that. I'm going to pick up someallimax in my travels today.Is your son still chelating, Channa?> you know...i noticed my son havin more stinky poop lately...and also when i> give him his niacin along with his b complex he doesnt get the flush....this> to me is tellin me his gut is not digesting the b vitamins...bacteria?> virus? parasite?> also...if the body is high in copper it is the wrong kind of> copper...becuase from what i read the body is able to get rid of the copper> it doesnt need if it is in the right form....so the body can still need> copper even if it shows high...also i think that the good copper helps> replace the bad copper...> im sure you know that culturelle is the numer one bacteria fighting> probiotic...as far as i know..> im also morphing again with my son....we crashed and burned with mms and> diamatous clay...> so i am onto a new protocol....i just ordered the book herbal antibiotics by> buhner so will be learning some more stuff to look into....and share with> my listmates:)>>>>> ________________________________> > To: m12valtrex <mb12valtrex >; Trying_Low_Oxalates> <Trying_Low_Oxalates >> Sent: Tuesday, January 3, 2012 9:51 AM> Subject: Re: Seeing language gains from adding in R5P and> goldenseal>>>> Nanci, Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 also..i wanted to add i am goin to get some humacleanse....becuase it is so important to keep the gut moving as bugs will always come back easier when their is impacted stool...biofilm ect.... channa To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, January 3, 2012 12:43 PMSubject: Re: Re: Seeing language gains from adding in R5P and goldenseal what is allimax? i am unfamiliar with that...sadly i have not been chelating my son..in a long while....due to all the turmoil that has been goin on in my life thanks to DCF and my own health takin a turn for the worst....i have proven to myself i could burn the candle at both ends for a total of four years before i started spiralling down hill big time... i plan on starting this weekend again....i also wanted to get a full weeks worth of the new liquid mineral i got for him...i am concerned the chealting without giving him any zinc or magnesium because he didnt do well on them is the cause of his growth issues....i am hoping it is the cause....if not i will have to look into endocrine support... not f***in fun....seein my son day after day steppin on the scales with no change and seein his sparse hair....i would give my arm to see him grow again.... sorry getting emotional now.... i will tell you thou he does seem to be doin well with immusist , my orgone zapper( antiinflammatory),sea aloe gold and digest specrumfor his bloating ( suspect pathogens again) also valerian and scullcap...seems to help with the whole glutamate issue in brain for him....his speech is getting better....his trauma from his father is coming up....but i think out is always better then in.....i find that by praying passionatly with him at night gives him peace.... i cant afford all the fancy therapists ect....but there is something about passionate prayer...that is so powerful... channa channa To: mb12valtrex Sent: Tuesday, January 3, 2012 12:21 PMSubject: Re: Re: Seeing language gains from adding in R5P and goldenseal Oh, please do share with us what you learn, Channa. I haven't addedin the allimax yet b/c we ran out a while ago and I never replaced oursupply. I'd almost forgotten about that. I'm going to pick up someallimax in my travels today.Is your son still chelating, Channa?> you know...i noticed my son havin more stinky poop lately...and also when i> give him his niacin along with his b complex he doesnt get the flush....this> to me is tellin me his gut is not digesting the b vitamins...bacteria?> virus? parasite?> also...if the body is high in copper it is the wrong kind of> copper...becuase from what i read the body is able to get rid of the copper> it doesnt need if it is in the right form....so the body can still need> copper even if it shows high...also i think that the good copper helps> replace the bad copper...> im sure you know that culturelle is the numer one bacteria fighting> probiotic...as far as i know..> im also morphing again with my son....we crashed and burned with mms and> diamatous clay...> so i am onto a new protocol....i just ordered the book herbal antibiotics by> buhner so will be learning some more stuff to look into....and share with> my listmates:)>>>>> ________________________________> > To: m12valtrex <mb12valtrex >; Trying_Low_Oxalates> <Trying_Low_Oxalates >> Sent: Tuesday, January 3, 2012 9:51 AM> Subject: Re: Seeing language gains from adding in R5P and> goldenseal>>>> Nanci, Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 not sure what your health issues are but have you checked into lymne for you both? you sound like our family From: Channa Brennon Sent: Tuesday, January 03, 2012 1:01 PM To: mb12valtrex Subject: Re: Re: Seeing language gains from adding in R5P and goldenseal also..i wanted to add i am goin to get some humacleanse....becuase it is so important to keep the gut moving as bugs will always come back easier when their is impacted stool...biofilm ect.... channa To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, January 3, 2012 12:43 PMSubject: Re: Re: Seeing language gains from adding in R5P and goldenseal what is allimax? i am unfamiliar with that...sadly i have not been chelating my son..in a long while....due to all the turmoil that has been goin on in my life thanks to DCF and my own health takin a turn for the worst....i have proven to myself i could burn the candle at both ends for a total of four years before i started spiralling down hill big time... i plan on starting this weekend again....i also wanted to get a full weeks worth of the new liquid mineral i got for him...i am concerned the chealting without giving him any zinc or magnesium because he didnt do well on them is the cause of his growth issues....i am hoping it is the cause....if not i will have to look into endocrine support... not f***in fun....seein my son day after day steppin on the scales with no change and seein his sparse hair....i would give my arm to see him grow again.... sorry getting emotional now.... i will tell you thou he does seem to be doin well with immusist , my orgone zapper( antiinflammatory),sea aloe gold and digest specrumfor his bloating ( suspect pathogens again) also valerian and scullcap...seems to help with the whole glutamate issue in brain for him....his speech is getting better....his trauma from his father is coming up....but i think out is always better then in.....i find that by praying passionatly with him at night gives him peace.... i cant afford all the fancy therapists ect....but there is something about passionate prayer...that is so powerful... channa channa To: mb12valtrex Sent: Tuesday, January 3, 2012 12:21 PMSubject: Re: Re: Seeing language gains from adding in R5P and goldenseal Oh, please do share with us what you learn, Channa. I haven't addedin the allimax yet b/c we ran out a while ago and I never replaced oursupply. I'd almost forgotten about that. I'm going to pick up someallimax in my travels today.Is your son still chelating, Channa?> you know...i noticed my son havin more stinky poop lately...and also when i> give him his niacin along with his b complex he doesnt get the flush....this> to me is tellin me his gut is not digesting the b vitamins...bacteria?> virus? parasite?> also...if the body is high in copper it is the wrong kind of> copper...becuase from what i read the body is able to get rid of the copper> it doesnt need if it is in the right form....so the body can still need> copper even if it shows high...also i think that the good copper helps> replace the bad copper...> im sure you know that culturelle is the numer one bacteria fighting> probiotic...as far as i know..> im also morphing again with my son....we crashed and burned with mms and> diamatous clay...> so i am onto a new protocol....i just ordered the book herbal antibiotics by> buhner so will be learning some more stuff to look into....and share with> my listmates:)>>>>> ________________________________> > To: m12valtrex <mb12valtrex >; Trying_Low_Oxalates> <Trying_Low_Oxalates >> Sent: Tuesday, January 3, 2012 9:51 AM> Subject: Re: Seeing language gains from adding in R5P and> goldenseal>>>> Nanci, Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 copper is copper, if your high you need zinc to help balance it or you will be low which will effect things like absorbing vit Bs From: Channa Brennon Sent: Tuesday, January 03, 2012 11:57 AM To: mb12valtrex Subject: Re: Re: Seeing language gains from adding in R5P and goldenseal you know...i noticed my son havin more stinky poop lately...and also when i give him his niacin along with his b complex he doesnt get the flush....this to me is tellin me his gut is not digesting the b vitamins...bacteria? virus? parasite? also...if the body is high in copper it is the wrong kind of copper...becuase from what i read the body is able to get rid of the copper it doesnt need if it is in the right form....so the body can still need copper even if it shows high...also i think that the good copper helps replace the bad copper... im sure you know that culturelle is the numer one bacteria fighting probiotic...as far as i know.. im also morphing again with my son....we crashed and burned with mms and diamatous clay... so i am onto a new protocol....i just ordered the book herbal antibiotics by buhner so will be learning some more stuff to look into....and share with my listmates:) To: m12valtrex <mb12valtrex >; Trying_Low_Oxalates <Trying_Low_Oxalates > Sent: Tuesday, January 3, 2012 9:51 AMSubject: Re: Seeing language gains from adding in R5P and goldenseal Nanci, admittedly, we do take a lot of supplement breaks (sometimesunintentional breaks because we're rushing off to the ABA centre andthen school and then she comes home and falls asleep before I can giveher supps).When we do take breaks, I start over again and re-assess anythingother than the basic supps. Sometimes I've had to remove supps aftera few weeks because they weren't needed anymore....this is especiallytrue with methionine and NAC (and the rest of the high sulfur supps).We see really amazing things at first and then it quickly backfires onme. Our DAN suggests to go lower and space out doses when thishappens because it just might be too much.I'm having some problems with CP 11-strain, which is making me thinkthat a lot of our problem is bacterial now. 2 doses of CP 11-strainand our 6-month long track record of good poops is shattered. Mindyou, we did a CDSA last February and found that Maia's bifidos were inovergrowth...but that was so many months ago and so many courses ofantibiotics for a persistent ear infection and then a UTI...so Ifigured the 11-strain wouldn't hurt. I was wrong. Stools have goneto hell in a handbasket and some food intolerances are back. Not evenbiotin is firming up the stools right now and I think a few doses ofthe 11-strain put the bifido strains back in overgrowth. I think Ishould never supplement anything with the bifido strains for herbecause she doesn't have problems with keeping the bifidos alive --just the lactobacillus. SOMETHING is causing her lactobacillus not tostick and is symbiotic with her bifidos. And I can't help feelingthat this something is bacterial and is competing with lactobacillusand is making a lot of minerals and her B's inaccessible. I can'thelp feeling that something about her knocks bacteria into overgrowth.She was also starting to show signs of strep overgrowth last Februaryand I'm willing to bet dimes to donuts that the strep overgrowth isback, too.I'm not even sure it's KPU anymore because as a said, KPU wouldshow deficiency. She does not show deficiency. None of the labs areshowing that she has any mineral deficiencies or vitamin deficiency(except for Vit A, which might be a clue there that maybe viruses areat play too?). Maia's showing symptomatic deficiency but not actualdeficiency. WTH? The only conclusion I can come to is that they'rethere but unavailable. And with the GI thing happening and thebacterial dysbiosis in her gut, I'm leaning towards thinking thisbeast is bacterial.I'm not going to pretend I understand it. I'll have to dig around abit to see if there are any bacteria that are known to do this. And,if not, I'll look for viruses. But for now, I'm treating forbacteria, fungus and viruses. But I have a feeling that they're goingto be attached to the minerals, too (copper included). Copper showedthe same thing -- high copper serum, yet she gets boosts off ofcopper. Same with zinc. WHY????I think labs aren't showing deficiency because the minerals and B'sthemselves are there but the body can't use them because of somethingthe bacteria is doing to them. Quote Link to comment Share on other sites More sharing options...
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