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Nausea and PSC

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Have been combing the PSC literature in regards to nausea and PSC,

as Fred has been complaining off and on (now pretty much " on " ) of

nausea for about a month. We're trying to get in as quickly as

possible to see his doctor- but we don't know WHICH one? The

hepatologist or gastroenterolist (the latter treats his UC).

He feels pressure in the middle of his abdomen up to the top of his

chest. He's able to eat bananas, a little oatmeal, etc., and not

vomiting, although says that's a possibility. Says nausea much worse

when he lies down. When he walks around it is lessened.

We don't THINK it's a cholangitis attack, as he has no fever, nor

chills, nor most of the other symptoms, although he is belching.

He took 1 mg. Ativan last night and that helped a bit.

Anyone identify with this? Advice? He's definitely stressed out

about this!

Thanks y'all!

Wife of Fred, PSC 03/04, UC 03/06

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I would say got to the gastro doctor. When I have these sympthoms it's usually my colon.

On a different note, about 10 years ago right after I have my gall bladder removed, I got pancreas. Some of the symptions are similar. They will do lab work when you go see the doctor and you probably want to have the labs done so ask them to have labs done 4-5 days before your appointment so the doctor has the results when you visit him in person, ask for them to test the pancreas enzymes as well.

goodl uck.

Armanarman_shirin@...

Nausea and PSC

Have been combing the PSC literature in regards to nausea and PSC, as Fred has been complaining off and on (now pretty much "on") of nausea for about a month. We're trying to get in as quickly as possible to see his doctor- but we don't know WHICH one? The hepatologist or gastroenterolist (the latter treats his UC). He feels pressure in the middle of his abdomen up to the top of his chest. He's able to eat bananas, a little oatmeal, etc., and not vomiting, although says that's a possibility. Says nausea much worse when he lies down. When he walks around it is lessened.We don't THINK it's a cholangitis attack, as he has no fever, nor chills, nor most of the other symptoms, although he is belching.He took 1 mg. Ativan last night and that helped a bit.Anyone identify with this? Advice? He's definitely stressed out about this!Thanks y'all!Wife of Fred, PSC

03/04, UC 03/06

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Thank you Arman, however Fred is not in the mood to wait 4-5 days! :)

He has an appt. today with his hepatologist (who is also a gastro, of

course). Fred did some Internet research and found that his UC med

Asacol can actually cause peptic ulcers in susceptible people, so

perhaps that's it. We're hoping it's non-liver related. As we all

know, PSC is such a mystery - sort of like the " Clue " game: " The UC

did it in the colon with the Asacol, " or " the PSC did it in the

stomach with the backed-up bile, " etc.!

>

> I would say got to the gastro doctor. When I have these sympthoms

it's usually my colon.

>

> On a different note, about 10 years ago right after I have my gall

bladder removed, I got pancreas. Some of the symptions are similar.

They will do lab work when you go see the doctor and you probably want

to have the labs done so ask them to have labs done 4-5 days before

your appointment so the doctor has the results when you visit him in

person, ask for them to test the pancreas enzymes as well.

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I use to take Asacol and have switched to Colazal. It has worked better for me.

Shirin, Arman, Niki & Mateenarman_shirin@...

Re: Nausea and PSC

Thank you Arman, however Fred is not in the mood to wait 4-5 days! :)He has an appt. today with his hepatologist (who is also a gastro, ofcourse). Fred did some Internet research and found that his UC medAsacol can actually cause peptic ulcers in susceptible people, soperhaps that's it. We're hoping it's non-liver related. As we allknow, PSC is such a mystery - sort of like the "Clue" game: "The UCdid it in the colon with the Asacol," or "the PSC did it in thestomach with the backed-up bile," etc.! >> I would say got to the gastro doctor. When I have these sympthomsit's usually my colon. > > On a different note, about 10 years ago right after I have my gallbladder removed, I got

pancreas. Some of the symptions are similar. They will do lab work when you go see the doctor and you probably wantto have the labs done so ask them to have labs done 4-5 days beforeyour appointment so the doctor has the results when you visit him inperson, ask for them to test the pancreas enzymes as well.

Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

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> I would say got to the gastro doctor. When I have these sympthoms

it's usually my colon.

>> in regards to nausea and PSC, as Fred has been complaining off and

on (now pretty much " on " ) of nausea for about a month. We're trying

to get in as quickly as possible to see his doctor- but we don't know

WHICH one? The hepatologist or gastroenterolist (the latter treats

his UC)... He feels pressure in the middle of his abdomen up to the

top of his chest... We don't THINK it's a cholangitis attack, as he

has no fever, nor chills, nor most of the other symptoms, although he

is belching.

Hi , I'm a " pop in reader/poster " and happened to have time to

pop in today and see this thread. Could the nausea be a side effect

of one or more (combo) of Fred's meds? My son has been dealing with

an assortment of side effects as well as symptoms for months now,

including nausea off and on, and it has been extremely frustrating.

I mark my son's symptoms down and make a monthly chart graph from

that so all of my son's drs can see at a glance (single page) the

myriad symptoms and severities each month.

I would be interested, if you don't mind sharing, to learn what

Fred's drs say about his nausea. I rarely get on this board anymore,

and will likely miss a post, but if you have the time and remember it

when you post, if you could email me at Sns670@... (I rarely read

yahoo email). I've been quite frustrated with my son's drs in this

area --in fixing his daily issues. Imo, the drs are not so concerned

with daily living ('lesser' symptoms/issues -that still effect

quality of living) as with lab and test results.

Good luck!

Meghan, mom to newly 13yo Wyatt: FAP 8/01, PSC 1/07, Crohn's-Colitis

1/07 & 6/07, a-i hives 6/07

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