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Portal Vein clot & UNOS

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>>>>>

, such as a clot in the portal vein that

threatens to completely block the blood supply to the liver at any time.

Hi ,

My understanding of this is: , like Ken, already have

their portal veins completely blocked off.

But in neither case, is the blood supply to the liver “completely

blocked”, (they would be in complete liver

failure if it was) the blood still flows through the hepatic artery and collaterals. Both are on blood thinners, and Ken’s doctor doesn’t “expect”

more clots to follow. This is an important distinction, and probably why UNOS wouldn’t

be in a hurry to give extra points…… if the liver is working –

even at limited capacity, why give extra points? (That’s not me saying that, but

UNOS.)

We

spoke to Ken’s

transplant surgeon yesterday, he said Ken will

have to go through another evaluation, (probably not the same evaluation as

before, but still go through some of the paces.) He said Ken would

indeed be re-listed, but wasn’t sure how long Ken could

go before *needing* a new liver.

It could be 1-5 years, it could be

tomorrow, so re-listing made sense for Ken’s

doctor.

With love, Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (33) UC 91 - PSC 99 - Tx 6/21 & 6/30/07 @ Baylor in Dallas

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