Re: Re: please please please help if you can!!!!!!!!!!!!!!!!!!!11

[Guest guest]

And , every week our pastor has a children's sermon and I

mentioned to him the situation of your child and another who just had

a pituitary tumor and possibly malignancy on the adrenals show up

this week--the children prayed for both children to be healed. I

believe God hears the prayers of these innocent ones...

Peace,

Kathy E.

On Mar 19, 2006, at 8:57 AM, kiddietalk wrote:

> Hi !

>

> As we all know you have some questions that medical doctors and time

> will answer for sure, but I so understand your desperation in

> finding out as much as possible, and in finding others (at least

[Guest guest]

, thank you so much. I am reading reading reading all I can. Thank you so

much for the links. All the research I have tried to do on my own, I have never

heard of these websites. thank you. And thank you for caring and praying for him

he needs it. Thank you.

kiddietalk <kiddietalk@...> wrote: Hi !

As we all know you have some questions that medical doctors and time

will answer for sure, but I so understand your desperation in

finding out as much as possible, and in finding others (at least

one!) you can talk to right now who have gone through the same thing.

Just in case there isn't anyone here who can relate, even though I

don't I'd like to try to help point you in some directions outside

of muscular dystrophy since you already know to search for that.

In a situation like this I love the website wrongdiagnosis.com

because it can take the very same symptom -say rash - and this

website will provide you with various diagnosis and/or reasons for

that symptom ranging from the most benign to the most rare. Not

that they'll always list everything -but perhaps they'll provide

more reasons than any one MD you'll take your child to may think to

test for (they are not all Dr. House you know)

Here's a page from there on " muscle "

http://www.wrongdiagnosis.com/medical/muscle.htm

Here's a page from there on " muscle conditions "

http://www.wrongdiagnosis.com/m/muscle_conditions/intro.htm

Here's a page from there on " muscle disorder "

http://www.wrongdiagnosis.com/medical/muscle_disorder.htm

Due to this website I found this website which has in a parent

friendly way a description of the blood test your child just had.

" Creatine Phosphokinase (KREE uh TEEN FOS foe KI nace) Test

(Also known as CPK, Creatine Kinase, or CK Test) "

http://www.myositis.org/about_myositis/blood_tests.cfm

Please know I am not at all in any way suggesting that myositis

which is the website where I found this same blood test is the

condition that your child has because I am not saying that. I'm

trying to help find you support and this organization to me appears

to offer a warm and non alarmist approach based on their website,

and perhaps they will be able to answer some of your questions

and/or point you in a direction you were not aware of. It appears

that they also will be able to provide you with support and comfort

for any further tests your child may have to go through since they

deal with children as well.

http://www.myositis.org/community/juvenile.cfm

also know that even if nobody here can relate to this exact

situation in this group we embrace you with support and friendship

if and when you ever need someone to talk to any time of day or

night.

White light, positive energy and best wishes to you and your little

guy. He's in my prayers.

=========

[Guest guest]

He gets up just like that. Also if he drops something to the floor he will

scream for me to pick it up and I feel so bad cause I would tell him well pick

it up. and he would just cry so bad. So now I am feeling like well maybe it

hurts for him to do so, so i made him do it and made it worse for him. and like

climbing stairs he has to hold onto something and puts his other hand on his

knee to help hold himself up i guess. I don't know i just don't want this to be

it.

deverelementary <kearneysix@...> wrote: They may suggest mito testing as

well. You can check how your child

gets from the floor to a standing position, a md child will get up in

peculiar fashion, called gowers manueuver.They start out on their

hands and feet, planting their feet widely apart and pushing up their

bottom first. Then, they use their hands to push up on their knees

and thighs. Sort of hands on the floor pushing upwards, and then

sliding their hands along the length of their legs/thigh. Although

that CPK is elevated, and clearly something is going on, don't get

ahead of yourself with worry just yet. When he gets ill, is he worse,

more so than an average child?

[Guest guest]

Thank you again Kathy. So much. Yes, I believe he does hear the kids prayers. I

know he has a reason and purpose for everything, but He has enough problems

without having MD. I will pray for that child also if you can give me that

childs name add him/her to my churches prayer list.

Kathleen Eickwort <Kathleen_E@...> wrote: And , every week our pastor

has a children's sermon and I

mentioned to him the situation of your child and another who just had

a pituitary tumor and possibly malignancy on the adrenals show up

this week--the children prayed for both children to be healed. I

believe God hears the prayers of these innocent ones...

Peace,

Kathy E.

On Mar 19, 2006, at 8:57 AM, kiddietalk wrote:

> Hi !

>

> As we all know you have some questions that medical doctors and time

> will answer for sure, but I so understand your desperation in

> finding out as much as possible, and in finding others (at least