Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. Feeling Helpless in LA., Coston Deville, LA. (318)466-9677 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 - Have you had your son evaluated by your school district? He is legally entitled to free services if he qualifies (and with apraxia, he almost certainly will). Because he is 3, the evaluation and services falls within the realm of your school district. I know that is a basic question, but you did not mention this in your note. Didn't your Developmental Pediatrician point you in that direction? As an aside, having well-meaning professionals suspect autism spectrum disorder in our apraxic children is almost par for the course these days. I know that doesn't make it less difficult for you, but my family has been there too, if that makes you feel any better. You'll find manu stories like that here. The good news is that, with appropriate therapy and EFA supplementation (keep reading ... :-) ), our kids tend to do very well. Warm regards, ****************** (Rochester, NY) Mom to , 3.3 years, Verbal Apraxia & , 1.1 years (and babbling away!) ________________________________ From: [mailto: ] On Behalf Of chadmissy@... Sent: Monday, September 04, 2006 11:46 AM Subject: [ ] Feeling Helpless in LA., Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. Feeling Helpless in LA., Coston Deville, LA. (318)466-9677 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 Don't worry about the different diagnoses -- it's really common. I have found that there is so much more research re: austism that it really helps to keep an open mind and read as much as you can. The DAN approach recommends, among other things, high levels of essential fatty acids -- which is what has worked for many apraxia kids. The new search within really helps -- type in several keywords and start reading! Welcome and don't despair - we've all felt that way at times! Contact your local school ASAP - your son will be tested and will probably be eligible to start preschool and speech therapy several days a week this fall. > > Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. > > Feeling Helpless in LA., > Coston > Deville, LA. > (318)466-9677 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 - Have you had your son evaluated by your school district? He is legally entitled to free services if he qualifies (and with apraxia, he almost certainly will). Because he is 3, the evaluation and services falls within the realm of your school district. I know that is a basic question, but you did not mention this in your note. Didn't your Developmental Pediatrician point you in that direction? As an aside, having well-meaning professionals suspect autism spectrum disorder in our apraxic children is almost par for the course these days. I know that doesn't make it less difficult for you, but my family has been there too, if that makes you feel any better. You'll find manu stories like that here. The good news is that, with appropriate therapy and EFA supplementation (keep reading ... :-) ), our kids tend to do very well. Warm regards, ****************** (Rochester, NY) Mom to , 3.3 years, Verbal Apraxia & , 1.1 years (and babbling away!) ________________________________ From: [mailto: ] On Behalf Of chadmissy@... Sent: Monday, September 04, 2006 11:46 AM Subject: [ ] Feeling Helpless in LA., Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. Feeling Helpless in LA., Coston Deville, LA. (318)466-9677 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 , Hi, welcome. I live in the New Orleans area. I'm not familiar with Delville. I'm sorry you don't have much support where you are, but at least you got an appropriate diagnoses, which is probably the most important part! Have you read the Late Talker book yet? It gives an excellent overview of all the stuff we talk about on this group. It also answered most of my questions about therapy. There is a wealth of information on this group too, though I know all the supplement info can seem overwhelming at first. I'm not really a veteran or expert here but I'll just give you a " quick and dirty " overview of what I've learned so far: 1. Try to find an SLP through the ASHA website and the PROMPT website. I was surprised at how many PROMPT therapists are in Lafayette, which may not be close to you but I was just surprised that most of these therapists would be in Lafayette versus New Orleans or Baton Rouge. So you never know, there might be someone good close to you. 2. Consider Occupational Therapy. I would not have thought my son needed OT, but he did. The signs were subtle, but but a good SI- trained (Sensory Integration trained) therapist made a huge difference for him. I suggest the book, the Out-of-Synch Child to give you an overview of sensory processing problems that often accompany apraxia and can frustrate progress when not addressed. 3. Consider supplements. As you've probably gathered many of us supplement with a particular formula of fish oils and many of us are trying Vit E now as well. Most of us use Nordic Naturals Omega 3 6 9 (the label you find at Whole Foods and other markets) which is also known as Nordic Naturals ProEFA (the exact same formula but the label they use for mail order) along with Nordic Naturals EPA. The most popular ratio is 2 Omega 3 6 9/ProEFA to 1 EPA. I started out giving my 2 yr old 1 ProEFA a day (very conservative) and now give him 2 ProEFA and 1 EPA a day. Some here double or even triple that amount and report great results. I just started vit E tonight, 400 mg d alpha. Apparently the important thing to remember with the E is to get the natural, not synthetic vitamin. You don't want to see " dl " just " d " next to the alpha. It may be good if the vitamin E has some gamma too, but we aren't really sure. Can't hurt though. 4. Keep the faith and keep reading the posts here. Especially pay attention to the ones from " kiddietalk " which are from , co- author of Late Talker book and apraxia supermom and from , a researcher and pediatrician who gives us very good information--not officially as a doctor--but as a mom to a boy with apraxia who is the same age as your son I think. Still, she's got the brain power and expertise that we all really value. Feel free to email me anytime. As a fellow Louisiana girl, I'm happy to help however I can. Take care, Kristi PS Who/where was the dev ped who diagnosed your child? > > Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. > > Feeling Helpless in LA., > Coston > Deville, LA. > (318)466-9677 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Don't worry about the different diagnoses -- it's really common. I have found that there is so much more research re: austism that it really helps to keep an open mind and read as much as you can. The DAN approach recommends, among other things, high levels of essential fatty acids -- which is what has worked for many apraxia kids. The new search within really helps -- type in several keywords and start reading! Welcome and don't despair - we've all felt that way at times! Contact your local school ASAP - your son will be tested and will probably be eligible to start preschool and speech therapy several days a week this fall. > > Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. > > Feeling Helpless in LA., > Coston > Deville, LA. > (318)466-9677 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 , Hi, welcome. I live in the New Orleans area. I'm not familiar with Delville. I'm sorry you don't have much support where you are, but at least you got an appropriate diagnoses, which is probably the most important part! Have you read the Late Talker book yet? It gives an excellent overview of all the stuff we talk about on this group. It also answered most of my questions about therapy. There is a wealth of information on this group too, though I know all the supplement info can seem overwhelming at first. I'm not really a veteran or expert here but I'll just give you a " quick and dirty " overview of what I've learned so far: 1. Try to find an SLP through the ASHA website and the PROMPT website. I was surprised at how many PROMPT therapists are in Lafayette, which may not be close to you but I was just surprised that most of these therapists would be in Lafayette versus New Orleans or Baton Rouge. So you never know, there might be someone good close to you. 2. Consider Occupational Therapy. I would not have thought my son needed OT, but he did. The signs were subtle, but but a good SI- trained (Sensory Integration trained) therapist made a huge difference for him. I suggest the book, the Out-of-Synch Child to give you an overview of sensory processing problems that often accompany apraxia and can frustrate progress when not addressed. 3. Consider supplements. As you've probably gathered many of us supplement with a particular formula of fish oils and many of us are trying Vit E now as well. Most of us use Nordic Naturals Omega 3 6 9 (the label you find at Whole Foods and other markets) which is also known as Nordic Naturals ProEFA (the exact same formula but the label they use for mail order) along with Nordic Naturals EPA. The most popular ratio is 2 Omega 3 6 9/ProEFA to 1 EPA. I started out giving my 2 yr old 1 ProEFA a day (very conservative) and now give him 2 ProEFA and 1 EPA a day. Some here double or even triple that amount and report great results. I just started vit E tonight, 400 mg d alpha. Apparently the important thing to remember with the E is to get the natural, not synthetic vitamin. You don't want to see " dl " just " d " next to the alpha. It may be good if the vitamin E has some gamma too, but we aren't really sure. Can't hurt though. 4. Keep the faith and keep reading the posts here. Especially pay attention to the ones from " kiddietalk " which are from , co- author of Late Talker book and apraxia supermom and from , a researcher and pediatrician who gives us very good information--not officially as a doctor--but as a mom to a boy with apraxia who is the same age as your son I think. Still, she's got the brain power and expertise that we all really value. Feel free to email me anytime. As a fellow Louisiana girl, I'm happy to help however I can. Take care, Kristi PS Who/where was the dev ped who diagnosed your child? > > Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. > > Feeling Helpless in LA., > Coston > Deville, LA. > (318)466-9677 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Thanks for responding! My son is going to be evaluated for speech at the special education center in my school district. No one told me it was possible because I am sending my kids to private school. I never knew until recently that he could still receive his speech there. I am still waiting on the eval so we can begin. Tomorrow, Cale will start at a weeschool 1/2 day MWF program. I am luck enough that the school is patient and understanding. They are letting me stay as long as I need to feel that he is comfortable and that they can understand him. This is a step in the right direction at least. After reading all the info yesterday, I ordered the supplements, I can't wait to get started. I will keep you posted on what I find out. . Thanks, Coston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Hi ! It is Great to hear from someone here in my local area. I live in Natchez, Ms. My son is 3 and we are waiting to go to to be evaluated by a team of specialists there to determine everything that is going on with my , but i suspect that it is moderate to severe speech apraxia. (just from the the research that i have done). I completely understand how you feel about being alone, b/c here the doctors are unfamiliar with this and the most common thing here is ADHD, and i suspect that, that may become an issue later but it is too early to really tell on that. but has been going to speech since December of 04, and he has made SLOW progress if you would really consider it to be any. Our pediatrition likes to cater to my worries. He does not pass them off as nothing if i feel strongly about something but he does not always agree with me, which in this case i am glad that i stood firm b/c he has given us all the refferals that we need to get further treatment. True, he is a small town doctor but what i love about him is that when he knows that something is out of his medical expertise, he admits it and sends you to someone that can help you and he also trusts the mothers instinct. these days, i have found that there are not THAT many doctors like that still around. well i am not sure if i have even given you any help at all other than just showing excitement of someone being SO close to me. i am use to talking to people in Jersey & New York & Ohio, i was beginning to wonder if My was one of the ONLY SOUTHERN cases or not. well i will be more than happy to share with you my road that we have been on and talk to you more if you would like and i will let you know all that is going on in my little kiddo's world. you can personally email me if you would like. i hope to hear from you soon. With Lots Of Love Leah 's Mom myjunkytrash <myjunkytrash@...> wrote: , Hi, welcome. I live in the New Orleans area. I'm not familiar with Delville. I'm sorry you don't have much support where you are, but at least you got an appropriate diagnoses, which is probably the most important part! Have you read the Late Talker book yet? It gives an excellent overview of all the stuff we talk about on this group. It also answered most of my questions about therapy. There is a wealth of information on this group too, though I know all the supplement info can seem overwhelming at first. I'm not really a veteran or expert here but I'll just give you a " quick and dirty " overview of what I've learned so far: 1. Try to find an SLP through the ASHA website and the PROMPT website. I was surprised at how many PROMPT therapists are in Lafayette, which may not be close to you but I was just surprised that most of these therapists would be in Lafayette versus New Orleans or Baton Rouge. So you never know, there might be someone good close to you. 2. Consider Occupational Therapy. I would not have thought my son needed OT, but he did. The signs were subtle, but but a good SI- trained (Sensory Integration trained) therapist made a huge difference for him. I suggest the book, the Out-of-Synch Child to give you an overview of sensory processing problems that often accompany apraxia and can frustrate progress when not addressed. 3. Consider supplements. As you've probably gathered many of us supplement with a particular formula of fish oils and many of us are trying Vit E now as well. Most of us use Nordic Naturals Omega 3 6 9 (the label you find at Whole Foods and other markets) which is also known as Nordic Naturals ProEFA (the exact same formula but the label they use for mail order) along with Nordic Naturals EPA. The most popular ratio is 2 Omega 3 6 9/ProEFA to 1 EPA. I started out giving my 2 yr old 1 ProEFA a day (very conservative) and now give him 2 ProEFA and 1 EPA a day. Some here double or even triple that amount and report great results. I just started vit E tonight, 400 mg d alpha. Apparently the important thing to remember with the E is to get the natural, not synthetic vitamin. You don't want to see " dl " just " d " next to the alpha. It may be good if the vitamin E has some gamma too, but we aren't really sure. Can't hurt though. 4. Keep the faith and keep reading the posts here. Especially pay attention to the ones from " kiddietalk " which are from , co- author of Late Talker book and apraxia supermom and from , a researcher and pediatrician who gives us very good information--not officially as a doctor--but as a mom to a boy with apraxia who is the same age as your son I think. Still, she's got the brain power and expertise that we all really value. Feel free to email me anytime. As a fellow Louisiana girl, I'm happy to help however I can. Take care, Kristi PS Who/where was the dev ped who diagnosed your child? > > Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. > > Feeling Helpless in LA., > Coston > Deville, LA. > (318)466-9677 > With Love Always, Tommie Leah --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Thanks for responding! My son is going to be evaluated for speech at the special education center in my school district. No one told me it was possible because I am sending my kids to private school. I never knew until recently that he could still receive his speech there. I am still waiting on the eval so we can begin. Tomorrow, Cale will start at a weeschool 1/2 day MWF program. I am luck enough that the school is patient and understanding. They are letting me stay as long as I need to feel that he is comfortable and that they can understand him. This is a step in the right direction at least. After reading all the info yesterday, I ordered the supplements, I can't wait to get started. I will keep you posted on what I find out. . Thanks, Coston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Hi ! It is Great to hear from someone here in my local area. I live in Natchez, Ms. My son is 3 and we are waiting to go to to be evaluated by a team of specialists there to determine everything that is going on with my , but i suspect that it is moderate to severe speech apraxia. (just from the the research that i have done). I completely understand how you feel about being alone, b/c here the doctors are unfamiliar with this and the most common thing here is ADHD, and i suspect that, that may become an issue later but it is too early to really tell on that. but has been going to speech since December of 04, and he has made SLOW progress if you would really consider it to be any. Our pediatrition likes to cater to my worries. He does not pass them off as nothing if i feel strongly about something but he does not always agree with me, which in this case i am glad that i stood firm b/c he has given us all the refferals that we need to get further treatment. True, he is a small town doctor but what i love about him is that when he knows that something is out of his medical expertise, he admits it and sends you to someone that can help you and he also trusts the mothers instinct. these days, i have found that there are not THAT many doctors like that still around. well i am not sure if i have even given you any help at all other than just showing excitement of someone being SO close to me. i am use to talking to people in Jersey & New York & Ohio, i was beginning to wonder if My was one of the ONLY SOUTHERN cases or not. well i will be more than happy to share with you my road that we have been on and talk to you more if you would like and i will let you know all that is going on in my little kiddo's world. you can personally email me if you would like. i hope to hear from you soon. With Lots Of Love Leah 's Mom myjunkytrash <myjunkytrash@...> wrote: , Hi, welcome. I live in the New Orleans area. I'm not familiar with Delville. I'm sorry you don't have much support where you are, but at least you got an appropriate diagnoses, which is probably the most important part! Have you read the Late Talker book yet? It gives an excellent overview of all the stuff we talk about on this group. It also answered most of my questions about therapy. There is a wealth of information on this group too, though I know all the supplement info can seem overwhelming at first. I'm not really a veteran or expert here but I'll just give you a " quick and dirty " overview of what I've learned so far: 1. Try to find an SLP through the ASHA website and the PROMPT website. I was surprised at how many PROMPT therapists are in Lafayette, which may not be close to you but I was just surprised that most of these therapists would be in Lafayette versus New Orleans or Baton Rouge. So you never know, there might be someone good close to you. 2. Consider Occupational Therapy. I would not have thought my son needed OT, but he did. The signs were subtle, but but a good SI- trained (Sensory Integration trained) therapist made a huge difference for him. I suggest the book, the Out-of-Synch Child to give you an overview of sensory processing problems that often accompany apraxia and can frustrate progress when not addressed. 3. Consider supplements. As you've probably gathered many of us supplement with a particular formula of fish oils and many of us are trying Vit E now as well. Most of us use Nordic Naturals Omega 3 6 9 (the label you find at Whole Foods and other markets) which is also known as Nordic Naturals ProEFA (the exact same formula but the label they use for mail order) along with Nordic Naturals EPA. The most popular ratio is 2 Omega 3 6 9/ProEFA to 1 EPA. I started out giving my 2 yr old 1 ProEFA a day (very conservative) and now give him 2 ProEFA and 1 EPA a day. Some here double or even triple that amount and report great results. I just started vit E tonight, 400 mg d alpha. Apparently the important thing to remember with the E is to get the natural, not synthetic vitamin. You don't want to see " dl " just " d " next to the alpha. It may be good if the vitamin E has some gamma too, but we aren't really sure. Can't hurt though. 4. Keep the faith and keep reading the posts here. Especially pay attention to the ones from " kiddietalk " which are from , co- author of Late Talker book and apraxia supermom and from , a researcher and pediatrician who gives us very good information--not officially as a doctor--but as a mom to a boy with apraxia who is the same age as your son I think. Still, she's got the brain power and expertise that we all really value. Feel free to email me anytime. As a fellow Louisiana girl, I'm happy to help however I can. Take care, Kristi PS Who/where was the dev ped who diagnosed your child? > > Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. > > Feeling Helpless in LA., > Coston > Deville, LA. > (318)466-9677 > With Love Always, Tommie Leah --------------------------------- Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 , I am in La (Baton Rouge) too and sometimes you feel no one else there has any idea what apraxia is. I feel like all I do is educate the people around me with information regarding apraxia. One thing I would do is get your child evaluated by your local school system. You may qualify for therapy through the school system based on the severity. You have to have a standard score of at least 77 to qualify for speech therapy services where I work. YOu may have to bring your child to therapy. I would recommend this with private therapy. APraxia therapy needs to be consistant and often. Kristi gave some great ideas regarding this site and the supplements. Good luck. Mia > > Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. > > Feeling Helpless in LA., > Coston > Deville, LA. > (318)466-9677 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2006 Report Share Posted September 6, 2006 , I am in La (Baton Rouge) too and sometimes you feel no one else there has any idea what apraxia is. I feel like all I do is educate the people around me with information regarding apraxia. One thing I would do is get your child evaluated by your local school system. You may qualify for therapy through the school system based on the severity. You have to have a standard score of at least 77 to qualify for speech therapy services where I work. YOu may have to bring your child to therapy. I would recommend this with private therapy. APraxia therapy needs to be consistant and often. Kristi gave some great ideas regarding this site and the supplements. Good luck. Mia > > Hi! I am new to this group and would like info of all kinds. My son is 3 and recently diagnosed with oral motor apraxia. The whole process has been frustrating. His pediatrition thought he was high functioning autistic. I couldn't see it, so I found a developmental pediatrition in my state. She immediately confirmed that it was not autism, but apraxia. The only answers I have been given is to have him in speech therapy twice a week. I can't even find anyone to see him that often. Obviously, I am at my wits end. It amazes me that I am left to my own devices. Where do I even begin, and what are my options? My only answers come from talking to other people and personal research. I just don't know what to do next. If you have info, I would be grateful. > > Feeling Helpless in LA., > Coston > Deville, LA. > (318)466-9677 > Quote Link to comment Share on other sites More sharing options...
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