Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Hi Glomer, I have many of the same symptoms you have been talking about and yet, since I live in South Florida the doctors hesitate to test me. I had a bulls-eye rash on my belly area for months last year and they said it was just inflamation. I did have one blood test done at Quest which came back negative, but heard that these tests are not always accurate. South Florida may not have deer ticks, but I researched the fact that other ticks carry a similar Lyme bacteria. And then I read that ticks can come to areas via migrating birds. So, it could be possible that I have Lyme and have not been diagnosed. Anyway, I have enjoyed your posts and I will continue to search for a doctor here that will continue my quest. In one way, I hope it is not Lyme--but it's better to be checked than go about my days not knowing. I also get the tingling in the limbs, joint pain, vulvar stinging and itching that comes and goes every couple of weeks (I literally feel sick when I get a flare--body aches, nausea, etc.), concentration problems and on and on. Tania > > [long post--sorry for the formatting problems (any advice on how I can remedy this?)] > > I saw Dr. Metzger yesterday to discuss my my positive lyme test with Igenex. She said 90% > of her endometriosis patients and 40% of her vulvar patients have lyme, and is about to > present a paper on the connection between lyme and pelvic pain. She has the disease > herself and appears to be VERY KNOWLEDGEABLE about every aspect of its treatment, both > conventional (antibiotics) and integrative (herbal medicine, energy work, etc.). She said the > diagnosis was in fact *very good news*, as we'd run up against a wall addressing my pain > from other angles. (For others who may suspect lyme, she said the fact that I constantly > teeter on the edge of a flare-up and that my flares often coincide with my period suggest > lyme, as does the vulvar tingling that always precedes my pain. My other clear lyme > symptoms are interstitial cystitis; fatigue; " brain fog " ; difficulty concentrating, especially > when reading and writing; tingling in the limbs; susceptibility to infection; and joint > inflammation.) > > In her view, lyme is but one part of the larger problem of immune dysfunction. In light of > my struggle with candida and mold allergies, she had no problem eschewing the > antibiotic route in favor of cat's claw, artemesinin for coinfections, detox measures, and > weekly acupuncture/massage to help support the immune system. She also told me to > continue with my desensitization drops; stay on my low-glycemic, anti-allergy, and > gluten-free diet; get a minimum of 8 hours of sleep per night; make sure I'm meeting a > number of nutritional requirements; and follow my intuition, especially pursuing whatever > practices and therapies " feel good. " She has had many patients improve rapidly and > dramatically on this protocol--one woman's vulvar pain disappeared after working up to > only two drops of cat's claw (out of an eventual 15), so I am very hopeful. Because of the > limitations of current testing methods, she gauges patients' progress clinically, and will > add other herbs and even intravenous colloidal silver and garlic later, if symptoms warrant. > She said that in other states where lyme docs are more persecuted (and prosecuted) they > often test again and again to legitimate their prescribed courses of treatment, but with > lyme at epidemic levels in California, she and other specialists have an easier time and can > spare patients' pocketbooks. > > Overall, I felt I was in very good hands and am *praying* that this piece of the puzzle is a > crucial--and tide-changing--one. I'm not sure yet if I'm going to stick to the two primary > herbs she prescribed or if I'll add others from Buhner's protocol. I will definitely let folks > know my results! > > Wishing everyone pain-free days, > Glomer > Quote Link to comment Share on other sites More sharing options...
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