Re: Re: Will my child be a normal adult?

[Guest guest]

Can you believe I accidentally deleted the wonderful long message from Dr.

regarding Vitamin E, for one thing. It was just posted the end

of last week, more than once, even, and dummie that I am, I do not have it any

longer. Could you please send that one out again.

Thanks so much. This is all truly a godsend.

Suzanne

[ ] Re: Will my child be a normal adult?

Holly we all wonder that when we find out our child

may

have " apraxia " -well that is after learning what that words

means! The answer to " will my child be a normal adult " in almost

all cases today -at least in this group -is yes. Of course it

matters if there are other factors outside of the apraxia -such as

receptive/cognitive ones. At times some suspect that there are

...and it's just that the child is being judged against children

that are verbal with perfect motor skills. When given time and help

to blossom however most apraxic children prove they have at

least " normal " abilities. The average person has average abilities -

and apraxia does not affect one's cognitive ability.

And in ways you'll learn -most apraxic children are above average!

(Incredible recall memory! A sign of a gifted child in school)

(this message is too long but I go into it in others)

The falling you speak of sounds like it's all part of the

apraxia/dyspraxia. Funny thing is that dyspraxia in the UK used to

be referred to as the " clumsy child syndrome " can you believe it?!

Anyway -I'm sure others are going to answer...and I hope Dr.

shares her secret to her success with her now 3 son ph (or I'll

archive it) because he 'used' to be like your son at 2...and now

he's already " normal " due to her scientific out of the box mind -and

it's just amazing for her son and all of our children!

One of the children I know that grew up with apraxia and is today an

adult is Meghan Dolan -who is right now working on her masters at

University of Florida in special education. In speaking with Meghan

today she sounds just fine to me...but she will tell you that she

knows which words she can or can't say -and will avoid those that

are not in her motor memory when she is with new people. She also

practices what she will be speaking about if she is going to be in a

new situation -or public speaking etc. In front of her friends and

family she will break down here and there....and I have to say that

if I didn't meet her parents and grandmother myself it would have

been hard to believe any of the above it true she spoke so well. I

met Meghan at a book signing for The Late Talker book.

Thing that is funny about that is Tanner since four years old (?)

has been practicing to talk in the bathroom mirror with the door

closed. I have to find it in the archives -he would practice saying

sounds, words, and even facial expressions (I used to peek in -BAD

Mommy!) As he grew I heard him saying sentences like " want to

play? " over and over. Meghan and Tanner bonded on this point -

because neither of them had been taught to practice in the mirror

since little -they both just did. (I don't believe Tanner does it

anymore -but today he is understood when he talks -his issue is more

that he sounds immature when he talks. He's around 2 deviations

below on expressive -but he is 10)

Below is a message about the CHERAB groups ambassador Khalid Mustafa

who like Meghan grew up with apraxia and is now a " normal " adult.

Without speaking to Meghan or Tanner -Khalid writes " to prevent

bloopers I still practice multifaceted words, specially for school

presentations " Most with impairments of speech will break down when

tired or stressed or expected to say something new that is complex.

So again below is a message about and then from Khalid to bring you

hope -and below that is a new member archive to get you started with

info that's ammo!:

Experiences that work together/Khalid you can fly!

Khalid you are my inspiration for Tanner. Through the years in

speaking with your mom she's shared with me various stages

you've gone through. And no matter what fears she has had you've

always managed to overcome. The last time I met you was when we had

you fly in for Inside Edition when you were 13 years old...can you

believe it was that long ago?!

http://www.cherab. org/news/ insideedition. html

I'll never forget how mature and kind you were to Tanner and Dakota

and Evan (even when Evan was trying to stick everyone that sat near

him with a fork at Mars 2112 you sat near him anyway -remember

that?!) http://www.cherab. org/information/ phototrip2000. html

I am so very sorry I didn't get to travel with you and your mom to

the conference in Qatar that was in association with Newsweek

magazine that CHERAB was invited to -but again I couldn't think of a

better " spokesperson " than you! We'll share more with stories and

photos once the page is up at CHERAB -and you can share here your

personal experience from that exciting trip!

And speaking of another type of exciting trip...Your mom told me

either your brother or sister said that when you first went on the

roller coasters you didn't scream -like Tanner. You said " cool " and

stuff like that -but didn't scream. We had to teach Tanner how to

scream and when he first did, it was like he was saying " ahhhh " at

the doctor's office with a tongue depressor in his mouth! Not sure

if you recall that. Tanner goes on every ride today...and we don't

see the surges that day -but the next day. I wish we lived even

closer to Orlando because I'd take him to the parks just about every

day if I could.

And on a side note -how happy are you that the stupid " Childhood

apraxia of speech " label wasn't around when you were a child growing

up with apraxia. " someone " tried to launch it just a few years ago

when you were a teen. One overcomes apraxia -but as long as you

don't/can't outgrow/cure it in childhood -why would anyone burden a

child with that cruel (no less complex and longest diagnosis name

ever) insult to injury name on a child with 'apraxia'?! Tanner

just turned 10 for example -at what age do you stop calling someone

a child?! I know he started to be aware of what's cool even before

7!

Our logo here -not CAS but KIS (keep it simple) It's apraxia..and

there is hope -there are amazing success stories like yours Khalid!

I am so proud of you Khalid! Please continue to share because you

bring us hope as the " Ambassador to the CHERAB Foundation "

Hope you are having a safe and incredible adventure with your

friends on your road trip to Colorado you are now on! (too funny

because one of the archives here was when you mom was worried with

your motor apraxia if you'd ever be " able to drive well " YES!!)

Yes...I believe you can not only drive...but fly if you wanted to!!

" Sometimes silence can seem so loud

There are miracles in life I must achieve

But first I know it starts inside of me,

Oh if I can see it, then I can be it

If I just believe it, there's nothing to it "

http://www.ladynwav s.com/icanfly. html

=====

[Guest guest]

Can you believe I accidentally deleted the wonderful long message from Dr.

regarding Vitamin E, for one thing. It was just posted the end

of last week, more than once, even, and dummie that I am, I do not have it any

longer. Could you please send that one out again.

Thanks so much. This is all truly a godsend.

Suzanne

[ ] Re: Will my child be a normal adult?

Holly we all wonder that when we find out our child

may

have " apraxia " -well that is after learning what that words

means! The answer to " will my child be a normal adult " in almost

all cases today -at least in this group -is yes. Of course it

matters if there are other factors outside of the apraxia -such as

receptive/cognitive ones. At times some suspect that there are

...and it's just that the child is being judged against children

that are verbal with perfect motor skills. When given time and help

to blossom however most apraxic children prove they have at

least " normal " abilities. The average person has average abilities -

and apraxia does not affect one's cognitive ability.

And in ways you'll learn -most apraxic children are above average!

(Incredible recall memory! A sign of a gifted child in school)

(this message is too long but I go into it in others)

The falling you speak of sounds like it's all part of the

apraxia/dyspraxia. Funny thing is that dyspraxia in the UK used to

be referred to as the " clumsy child syndrome " can you believe it?!

Anyway -I'm sure others are going to answer...and I hope Dr.

shares her secret to her success with her now 3 son ph (or I'll

archive it) because he 'used' to be like your son at 2...and now

he's already " normal " due to her scientific out of the box mind -and

it's just amazing for her son and all of our children!

One of the children I know that grew up with apraxia and is today an

adult is Meghan Dolan -who is right now working on her masters at

University of Florida in special education. In speaking with Meghan

today she sounds just fine to me...but she will tell you that she

knows which words she can or can't say -and will avoid those that

are not in her motor memory when she is with new people. She also

practices what she will be speaking about if she is going to be in a

new situation -or public speaking etc. In front of her friends and

family she will break down here and there....and I have to say that

if I didn't meet her parents and grandmother myself it would have

been hard to believe any of the above it true she spoke so well. I

met Meghan at a book signing for The Late Talker book.

Thing that is funny about that is Tanner since four years old (?)

has been practicing to talk in the bathroom mirror with the door

closed. I have to find it in the archives -he would practice saying

sounds, words, and even facial expressions (I used to peek in -BAD

Mommy!) As he grew I heard him saying sentences like " want to

play? " over and over. Meghan and Tanner bonded on this point -

because neither of them had been taught to practice in the mirror

since little -they both just did. (I don't believe Tanner does it

anymore -but today he is understood when he talks -his issue is more

that he sounds immature when he talks. He's around 2 deviations

below on expressive -but he is 10)

Below is a message about the CHERAB groups ambassador Khalid Mustafa

who like Meghan grew up with apraxia and is now a " normal " adult.

Without speaking to Meghan or Tanner -Khalid writes " to prevent

bloopers I still practice multifaceted words, specially for school

presentations " Most with impairments of speech will break down when

tired or stressed or expected to say something new that is complex.

So again below is a message about and then from Khalid to bring you

hope -and below that is a new member archive to get you started with

info that's ammo!:

Experiences that work together/Khalid you can fly!

Khalid you are my inspiration for Tanner. Through the years in

speaking with your mom she's shared with me various stages

you've gone through. And no matter what fears she has had you've

always managed to overcome. The last time I met you was when we had

you fly in for Inside Edition when you were 13 years old...can you

believe it was that long ago?!

http://www.cherab. org/news/ insideedition. html

I'll never forget how mature and kind you were to Tanner and Dakota

and Evan (even when Evan was trying to stick everyone that sat near

him with a fork at Mars 2112 you sat near him anyway -remember

that?!) http://www.cherab. org/information/ phototrip2000. html

I am so very sorry I didn't get to travel with you and your mom to

the conference in Qatar that was in association with Newsweek

magazine that CHERAB was invited to -but again I couldn't think of a

better " spokesperson " than you! We'll share more with stories and

photos once the page is up at CHERAB -and you can share here your

personal experience from that exciting trip!

And speaking of another type of exciting trip...Your mom told me

either your brother or sister said that when you first went on the

roller coasters you didn't scream -like Tanner. You said " cool " and

stuff like that -but didn't scream. We had to teach Tanner how to

scream and when he first did, it was like he was saying " ahhhh " at

the doctor's office with a tongue depressor in his mouth! Not sure

if you recall that. Tanner goes on every ride today...and we don't

see the surges that day -but the next day. I wish we lived even

closer to Orlando because I'd take him to the parks just about every

day if I could.

And on a side note -how happy are you that the stupid " Childhood

apraxia of speech " label wasn't around when you were a child growing

up with apraxia. " someone " tried to launch it just a few years ago

when you were a teen. One overcomes apraxia -but as long as you

don't/can't outgrow/cure it in childhood -why would anyone burden a

child with that cruel (no less complex and longest diagnosis name

ever) insult to injury name on a child with 'apraxia'?! Tanner

just turned 10 for example -at what age do you stop calling someone

a child?! I know he started to be aware of what's cool even before

7!

Our logo here -not CAS but KIS (keep it simple) It's apraxia..and

there is hope -there are amazing success stories like yours Khalid!

I am so proud of you Khalid! Please continue to share because you

bring us hope as the " Ambassador to the CHERAB Foundation "

Hope you are having a safe and incredible adventure with your

friends on your road trip to Colorado you are now on! (too funny

because one of the archives here was when you mom was worried with

your motor apraxia if you'd ever be " able to drive well " YES!!)

Yes...I believe you can not only drive...but fly if you wanted to!!

" Sometimes silence can seem so loud

There are miracles in life I must achieve

But first I know it starts inside of me,

Oh if I can see it, then I can be it

If I just believe it, there's nothing to it "

http://www.ladynwav s.com/icanfly. html

=====

[Guest guest]

My Oldest son 19 who was never formally diagnosed as Apraxia (but could have

been the poster boy for it) is entering his second year at s Hopkins

University and has wanted to be a physician for several years. He graduated

from high school in the top 5%.

Unfortunately for him, because of the lack of knowledge in diagnosing, he

had to work through and learned how to cope with apraxia without effective

therapy. He had ST through the school system but they just called him " lazy " ..

If I only knew then what I know now!!

He also has sensory issues that he's learned to deal with. So what if he

walks around with a coat on when it's 80! It'll work well for him as a

physician. LOL..

I also think he might have had some mild auditory processing issues. I have

given him fish oil supplements to take but he's a college kid and forgets them

more than he takes them.. He feels he's doing well and he is!! So I don't push

it.

My youngest son (5) also has apraxia, auditory processing issues and sensory

issues. My two sons are not biologically related and did not grow up in the

same environment. I guess it's just more common than many think!

Amy D.

Hutnick <starreone@...> wrote:

Dear Holly,

My son was diagnosed severely global apraxic at age 2 1/2 after I begged my

pediatrician for a referral to a speech therapist. He is the youngest of three

and I knew something was not right. is now 13 1/2 years old and going into

8th grade. He made high honor roll for the first time last year in 7th grade and

has participated in sports since age 5. He made the school football team and his

little league team won the " World Series " this summer. He played second base. He

is a wonderful boy who has worked very hard in all areas. It was an up-hill

battle to make sure received all the services he needed. He just completed

a reading program last year to help with his Dyslexia which made all the

difference for him in school. It is a long frustrating road, but thanks to the

internet and these wonderful web sites you are not alone. There is much more

support today then 10 or 12 years ago. Just take it one step at a time. I wanted

you to know that there are success

stories and that we started off where you are today. Don't give up, you will be

amazed at what he can do! Best to you,

[Guest guest]

My Oldest son 19 who was never formally diagnosed as Apraxia (but could have

been the poster boy for it) is entering his second year at s Hopkins

University and has wanted to be a physician for several years. He graduated

from high school in the top 5%.

Unfortunately for him, because of the lack of knowledge in diagnosing, he

had to work through and learned how to cope with apraxia without effective

therapy. He had ST through the school system but they just called him " lazy " ..

If I only knew then what I know now!!

He also has sensory issues that he's learned to deal with. So what if he

walks around with a coat on when it's 80! It'll work well for him as a

physician. LOL..

I also think he might have had some mild auditory processing issues. I have

given him fish oil supplements to take but he's a college kid and forgets them

more than he takes them.. He feels he's doing well and he is!! So I don't push

it.

My youngest son (5) also has apraxia, auditory processing issues and sensory

issues. My two sons are not biologically related and did not grow up in the

same environment. I guess it's just more common than many think!

Amy D.

Hutnick <starreone@...> wrote:

Dear Holly,

My son was diagnosed severely global apraxic at age 2 1/2 after I begged my

pediatrician for a referral to a speech therapist. He is the youngest of three

and I knew something was not right. is now 13 1/2 years old and going into

8th grade. He made high honor roll for the first time last year in 7th grade and

has participated in sports since age 5. He made the school football team and his

little league team won the " World Series " this summer. He played second base. He

is a wonderful boy who has worked very hard in all areas. It was an up-hill

battle to make sure received all the services he needed. He just completed

a reading program last year to help with his Dyslexia which made all the

difference for him in school. It is a long frustrating road, but thanks to the

internet and these wonderful web sites you are not alone. There is much more

support today then 10 or 12 years ago. Just take it one step at a time. I wanted

you to know that there are success

stories and that we started off where you are today. Don't give up, you will be

amazed at what he can do! Best to you,